Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-15-2018, 06:26 PM #1
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Default Crps rsd X 22 yrs

Any help from ultrasound guided injection of numbing agent and steroid? Anything long lasting? Thanks in advance for help and your experiences! My Dr wants to try this referring me to sports med dr. Curious if it helps with long term red/crps.
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Old 01-17-2018, 05:18 PM #2
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Hello and Welcome Kirsti

22 years! you are quite a warrior.

I have had ultrasound guided injections of steroid + lidocaine to my tibial and plantar nerves. They were done by a Physical Medicine and Rehabilitation doctor who is certified in peripheral nerve ultrasound.

Mine were done partly to address surgical scar tissue to try to make some room in there but also to calm the nerves down. I did find them helpful. I had them pretty early on but it gave me a break and let me rehab better. It took something of a series of them. I had at least three. You gotta watch for atrophy in the injection area due to steroid with repeats.

Having the ultrasound guidance makes the injection much safer and better targeted. Of course there are risks with anything but the fact that the doc and I could both see the nerve on the screen made me much more comfortable than if it had been done blind.

I wish the best with whatever you decide is best for you.

Sending healing thoughts and soft hugs,
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Old 01-21-2018, 03:47 PM #3
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22 years is a lot. Sadly I can't answer your question.

I have RSD/CRPS myself now, this September 22 years also. I'm nearing my 23rd year this year. Sad to say.
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 01-21-2018, 07:22 PM #4
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Default Thanks for your reply Little-paw

Quote:
Originally Posted by Littlepaw View Post
Hello and Welcome Kirsti

22 years! you are quite a warrior.

I have had ultrasound guided injections of steroid + lidocaine to my tibial and plantar nerves. They were done by a Physical Medicine and Rehabilitation doctor who is certified in peripheral nerve ultrasound.

Mine were done partly to address surgical scar tissue to try to make some room in there but also to calm the nerves down. I did find them helpful. I had them pretty early on but it gave me a break and let me rehab better. It took something of a series of them. I had at least three. You gotta watch for atrophy in the injection area due to steroid with repeats.

Having the ultrasound guidance makes the injection much safer and better targeted. Of course there are risks with anything but the fact that the doc and I could both see the nerve on the screen made me much more comfortable than if it had been done blind.

I wish the best with whatever you decide is best for you.

Sending healing thoughts and soft hugs,



I'm curious whether or not I have both the CRPS and the neuroma. After 22 years they say I have a different type of CRPS and that if they can get the neuroma under control I will be healed! But I didn't get much relief at all from the first injection.
Thanks again.
Be well!
Kirsti
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Old 01-22-2018, 06:54 AM #5
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I'm going on 38 years of RSD an still today get injection they are the only thing that helps with me I have to have a couple of injection to get any lasting effect so hang in there best of luck.
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Old 01-29-2018, 01:42 PM #6
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Quote:
Originally Posted by CRPSbe View Post
22 years is a lot. Sadly I can't answer your question.

I have RSD/CRPS myself now, this September 22 years also. I'm nearing my 23rd year this year. Sad to say.
Thank you for posting!
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Old 02-04-2018, 10:44 AM #7
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Quote:
Originally Posted by kirsti View Post
I'm curious whether or not I have both the CRPS and the neuroma. After 22 years they say I have a different type of CRPS and that if they can get the neuroma under control I will be healed! But I didn't get much relief at all from the first injection.
Thanks again.
Be well!
Kirsti
Hello! 27 years here and full-body. I didn’t think that an ortho would do such an injection...interesting. Are they talking about a nerve block or what? I have had various nerve blocks in the past, they helped more early on than they did many years into this. What do you mean by a “different type of CRPS”? Also, RSD/CRPS cannot be “healed” or cured, there is only remission
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Old 02-13-2018, 01:27 PM #8
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Quote:
Originally Posted by Nanc View Post
Hello! 27 years here and full-body. I didn’t think that an ortho would do such an injection...interesting. Are they talking about a nerve block or what? I have had various nerve blocks in the past, they helped more early on than they did many years into this. What do you mean by a “different type of CRPS”? Also, RSD/CRPS cannot be “healed” or cured, there is only remission
Thanks for your reply. Yeah-originally they said it was not from an injury but now it is? That's what they meant by different type. However I always mentioned it was after the brake rotor fell onto my foot. That is as far as I could tell what started the whole mess. And now I feel it has spread outward from the original area since the injection that I had. So that totally sucks. The injection was using an ultrasound to guide the sports medicine specialist to inject lidocaine and a steroid.

Wow-you must have a lot to deal with. Full body must be rough. Thanks for your kind reply!
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