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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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01-18-2018, 05:37 PM
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Junior Member
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I'm sad that people don't use this forum more. It's the only place I know how to reach Fellow sufferers
About me - RSD for 20 years with recent spread & worsening (3 yrs ago).  Yesterday I had my first acupuncture session. No needles in affected areas. It caused a flare even while I was pin-cushioned.  Anyone have success? Even knocking it down a bit would help Mac |
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01-18-2018, 07:17 PM
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Senior Member
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I have heard of people getting relief...for me it just caused flare ups. I've been extremely sensitive to anything invasive though (every little pin prick). Did you try searching on here? I feel like I remember reading about some success stories on here.
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01-21-2018, 03:58 PM
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Member
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I have never tried acupuncture personally in the 22, (almost) 23 years into this. I have tried an abundance of other things:
- acetylcystein (free radical elimination) (often given together with DMSN cream). - calcitonin injections (very effective for me in the early stages, on my arms = quite effective, not so much on the legs) - bisphosphonates (treatment was too late for the legs) And then pain patches + medications & Neurontin to keep the pain under control.
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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