Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-02-2007, 09:28 PM #1
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Both of my legs from my toes to mid thigh are always ice cold to the touch and both hands and forearms are always cold as well. The pain is waves as well that go up and down. Never know when it'll come. Sometimes it's really bad, other times not so bad.

Hugs,

Karen
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Old 08-04-2007, 11:02 AM #2
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RSD/CRPS is so strange, isn't it (we all know it's a nightmare, too)

I have never experienced my areas being cold. Only hot. Just as if there were a heating pad on it for a long time and I had just removed it. I don't experience much in the way of color change either, but then again, two doctors have told me that I have a "bizarre RSD presentation"
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Old 08-04-2007, 06:14 PM #3
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LOLOL Bizarre presentation. Ummm...they need to do a bit more reading I guess then. The majority of RSD'ers have "cold" RSD and a smaller number have "hot" RSD. Pretty self explanatory there. LOL Usually with the cold your skin looks purplish or mottled, blue from light to dark in nature. With the hot usually skin is redder than normal and can range from a light to dark tone as well.

Personally I love it when people associate the words bizarre, weird, and abnormal with me. LMAO!

Hugs,

Karen
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Living, loving and laughing with RSD for 14 years and counting.
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