Hi Flipnout!
Please don't ever get the idea that we hate you here!! where did you get that from?? we care about you as well as every single person here.I am so sory to hear about your eye site and so forth And Ada.. what the?? You know we speak to you as well. Let us not do this to each other and to this board ! Everyone here is entited to have a bad day, a bad mood, etc. but to say your not liked here is not true. Ada, I don't understand why you would say this as well?? what's up with that!! Hugs all around to all. Love, Desi

Hi Flippnout,
Sorry to hear that you are going through such a rough time. I know what it's like to be so restricted and feel so isolated. I haven't been on this board for very long and don't check in as often as I would like to. I only have a limited amount of spoons and some days I have to do "normal" things like laundry and pay the bills. By then, I'm tired or in too much pain to sit at the computer. Sometimes, I check in and read some of the posts & have to quit before I can even reply to any. (Sorry, everyone - you all are in my thoughts and prayers). Maybe it's that way with others as well. Some days it's just so hard getting through that while we have the best of intentions it just doesn't get done.
I hope you get the blurriness problem resolved soon. That must be so scary & limit even more of what you might be able to do.
Linmarie

Hugs. Sometimes I don't know how to respond to someones post. I have a hard time taking my words from my head and putting them on screen. They sound GREAT in my head, but when I start to post they come out jumbled.

I believe that everyone on this board, old and new, have so much to offer everyone else. Even the littlest piece of detail about life, or something like it, is so beneficial for us. Even you. As for the other board, I cannot comment. I can say however that they are not us. As a community I think we are strong, and you and your voice/posts add to that strength. Please rethink your decision to pull back from the group. With all that you have going on right now, blurred vision and RSD, please continue to receive all the support you need. AND, if you need more support than you're getting, just scream I NEED MORE SUPPORT. We'll be glad to offer it to you.

Hugs.

blurry vision is a problem with TOS also - as well as just getting older

I'm not on any meds and ever since I got RSI/TOS my close /reading vision has really been affected.

i'm sorry.....i truly wish i had the power to make everything all right for you and everybody else and myself too. i hope you have better days soon

support is here, and i think everyone answers questions. i think sometimes i read where people just make a statement, and so it is not seen that it needs a reply. i read almost all the posts, and put the 'thanks' on the info ones or the pep talk ones, and i reply if something is something i have dealt with. but as far as support, i don't think i have ever asked a question and not gotten an answer. so keep asking, my friend. joan

Hey I have got to say thank yo all! I have had some issues and they caused a bad flare up but feeling somewhat better NOW. I do not know what I would do without this board thank you for caring.
I had some people who cared less not from this board but in real life, they have given me dirty looks and said some mean things all because I have something and cannot see it. They see me in a wheelchair or parked in handicap but think hey he looks young, and I dont see anything wrong so he is fine and pass judgment on me! and it hurts after awhile, along with the fact I have to say sorry for my spelling cause I am getting dumb from all this, so I type bad with one hand and cannot spell
But I thank you ALL! and I care for you all TOO! ready group hug 1-2-3 rrrrr no didnt that feel good? ok we can all let go now.
HUGS
flippn

Stay strong. It's all we have left.

I'm rarely very chatty but always respond to direct questions or statements.

People in our condition definitely need a hobby or something. It's easy to get bored when there's little we feel up to doing.