Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 06-30-2018, 11:36 AM #3
BioBased BioBased is offline
Member
 
Join Date: Jun 2015
Posts: 630
8 yr Member
BioBased BioBased is offline
Member
 
Join Date: Jun 2015
Posts: 630
8 yr Member
Default

Quote:
Originally Posted by whiteaa View Post
On top of the CRPS and resulting gastroparesis, I now also have chronic INTENSE headaches that I wake up with and last until roughly mid afternoon. The pain is behind my eyes and quite debilitating. Does this happen to others with CRPS?

I don't know if I should see a neurologist or pain doctor or what. Any recommendations or information is appreciated. Thank you ahead of time and have a spoonfilled day!
My neurologist said it is all part of it. I wake up early AM with an upset stomach, throbbing feet, legs and hands. Nothing helped the headache that seemed to be a part of this and the amplified pain, until I paid for botox on my forehead over a month ago. I have had almost a month without headaches, the first long cessation in 4 years. I don’t think it is a coincidence. I think we probably grimace in our sleep from pain and tension.

I know that the severity of my pain is in proportion to my stomach woes, which are in tune with the weather. I can tell without looking outside how overcast it will be.

You may have to try several meds first, but be warned they can upset your stomach. Ask for suppositories or sublingual meds. I vomited from the triptans. Indomethacin did nothing.

My pain doctor sent me to the neurologist, which is where you should start, unless your pain doctor agrees you have global CRPS and will treat it. Most know very little.
BioBased is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
PurpleFoot721 (06-30-2018)
 

Tags
crps, headaches, intense, neurologist, pain


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Intense headaches post-surgery shezbut Epilepsy 3 05-07-2010 06:29 PM
Medicare Part D...what is your experience for Part D? Stitcher Parkinson's Disease 5 04-04-2008 12:14 PM
nummular headaches evolving into CRPS Sandel Reflex Sympathetic Dystrophy (RSD and CRPS) 4 01-25-2008 04:53 PM
Part 2...Medicare Part D/Prescription Coverage Stitcher Parkinson's Disease 1 12-17-2006 12:50 AM


All times are GMT -5. The time now is 03:49 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.