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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Has anyone tried lamictal- my new pm doc gave me a sample- a little nervous to try them- He told me its like neurontin but without all the side effects...any infor would be appreciated!
Deb |
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#2 | ||
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Hi Deb,
I've been on Lamictal for 3 weeks now and it seems to be working on the bad pain where my siatic nerve is injured. No bad side effects so far. I can't tell yet if its working on my foot because I fell and banged the RSD side on the leg of a table. But yesterday I had no pain at all anywhere. That didn't last long. But I still feel better than before I started taking it. Good Luck! Sue K. |
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#3 | |||
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In Remembrance
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Hi,
I used Lamictal for a couple of years and found it to be effective against the allodynia and burning pain and didn't notice any side-effects; I had several with gabatril (Gabapentin) and was glad for the change. That said, some of the listed side-effects for Lamictal can be severe, and I'm glad I've got a doc who lets patients make informed decisions by giving them the information we need; he made sure I understood the risks and the signs to look for. Being forewarned, I kept a close watch for anything that might indicate a problem; confident that observation and slow titration would allow me to stop taking it before anything serious could happen. Nothing did. I urge anyone considering Lamictal to read the FDA warning on this product; bad things can happen. This is an instance when knowledge really is power...Vic
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The great end of life is not knowldege but action. T. H. Huxley When in doubt, ask: What would Jimmy Buffett do? email: : . |
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#4 | ||
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Thanks for your replys- I am going to start taking it this friday- I will sure look out for rashes- Lets hope it helps!
Deb |
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#5 | ||
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Vicc, I guess you are referring to a rash ?? I think thats the only thing i read that could be dangerous?
Sue- Still doing well with it? Im gonna start it tonight but nervous! |
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#6 | |||
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Hi there, I tried Lamictil and it did ramp the pain down about 2 points. It also made me itchy all over and it felt like my skin was on FIRE. I really wanted to hang on and keep using it because of the pain relief (plus the mood stabilizing was a big plus for me) but my doc took me off it even though I did not have the dreaded Lamictil Rash (which can bring on Stevens-Johnson Syndrome).
I hope it gives you some relief. The advice I got over and over was to ramp up reeeeeeeallly slowly - much more slowly than the doctor recommends - to avoid any itchy scratchies or rash. |
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#7 | ||
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Hi Deb,
Still doing ok on it. The pain relief is really good. I see my dr. on the 13th. So I'll see what they say. Sue K. |
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#8 | ||
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the first sign of any skin rash;
fever, sore throat, and headache with a severe blistering, peeling, and red skin rash; chest pain; pale skin, easy bruising or bleeding; fever, chills, body aches, flu symptoms; or nausea, stomach pain, low fever, loss of appetite, dark urine, clay-colored stools, jaundice (yellowing of the skin or eyes
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Courage ... doesn't always roar, sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow." |
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#9 | |||
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I tried Lamactil back in 04 & I also got the itches really bad so I also quit taking it. I was too chicken to keep taking it. I am glad it works really well for some.
DebbyV |
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