Andrea,

Thank you so much for the update. That was very nice of you to let all of us know how she's doing.

When you talked about blurry vision, I also had a reaction to a medication where my eyes were permanently dialated. I was taking cymbalta. I don't know if she's on that or not - or something similar. It did take quite a few weeks to get my vision back to normal. Even close to a month.

BTW, did you go on your vacation?

Please let Alison know that I'm thinking about her and to try to keep her chin up. You are amazingly strong, Andrea. I can't imagine what it must be like to see Alison in so much pain - and so young.

I hope that there is a support system for you both. If nothing else, every one of us here knows what the pain is like.

Wishing you good luck at the doctor,

Beth

I'm so sorry your little girl is going through so much right now. She is lucky though to have a mom who cares as much as you obviously do! It is beyond my realm of comprehension that a medical professional would actually accuse a 12yr. old of faking anything, that really adds insult to injury and it's too bad she was made to feel that way when she desparately needed help and understanding.

I hope your daughter has better days and soon. I will pray for you and your family and please tell her we are all wishing her well! Hopefully she will be like most other children who acquire rsd and simply recover, that would truly be a blessing and one I hope she is witness to it soon!

wishing you well,
jenny

Sorry I didn't post last night but it was late when we got back from the hospital
Good News - Alison's arm is not broken - Just badly sprained !!! Wow, what a relief !!!!
I was amazed that the doctor in our local A&E Department had actually heard of RSD even though he didn't understand it fullly
Alison has been referred to Fracture Clinic on Monday to check her progress - we are seeing the doctor who admitted her six weeks ago and who first suspected RSD and got us the transfer to the Pain Management Unit
Alison is really worried that she will develop RSD in her right arm as a result of the injury and I seem to think that concern is echoed by the staff at our local hospital - hence they are also arranging for her to see a physio who specialises in the rehabilitation of hands
They did ask that we keep the arm in a removable splint and elevate to reduce the swelling. My only concern is that they asked me to "ice" the arm at regular intervals and I know that is really bad for RSD - I know she hasn't got RSD in her arm but I feel like icing it may be an open invitation for RSD to come and join her there !!!
Have any of you had further injuries once you were diagnosed with RSD and how did you rehabilitate them. What are the chances of the RSD spreading to her arm following this recent injury ?
I will be contacting her Pain Management Team this morning to discuss the situation with them too
Many thanks for your help
Andrea & Alison

AWWWWW... I too, am so sorry to hear about poor Alison and all she is going through! Please tell her hello for us and that we care about her. She is in my thoughts and prayers. Alisons mom, If her arm swells up, or she complains a lot about it, please take her to the emerrgency room! ((Hugs to you both)) Love, Desi

Hi Alison and Andrea,

I would definitely not ice the arm. I think that would make things worse and probably not help immensely in the first place. I just wouldn't risk it. I'm glad you have researched RSD enough to know that.

I have not had a major injury since being diagnosed with RSD. So, I can't comment specifically about that. I do know that it does spread. Mine is spreading from my left arm to my right. If she does get RSD in her arm - you'll know it. She won't get better and develop the burning, etc. that she has in her RSD areas.

I really hope that it doesn't spread. That would be just aweful.

Thank you for the update. I was looking to see what happened.

Beth.