Thank you,

I looked more into TOS just now because it sounded familiar and I had all recommended tests for it. All came back normal.

That is the one constant. All my tests always come back normal.

I just dont know.

I am borderline TOS/chronic RSI, w/past whiplash, past concussion, RSI shoulder strains.. hyper mobile... but all standard testing comes up negative.. according to general main stream MDs...

My chiro & a PT professor did more in depth & more hands on evaluations and they agreed. Most Drs don't really do that hands on, if imaging or standard test don't show it they don't look deeper..
I do have the white hand when arms are up and flushing red when lowered, plus the trigger points, muscle spasms, and a raised & stuck top rib from extreme muscle spasms- that was greatly reduced by the PT professor with a top rib mobilization.. I related that to chiro and he followed up when needed..
My chiro had a low level laser (aka cold or soft laser) that was awesome for pain relief..might be worth exploring that topic.

So you could be in a similar situation, not severe enough to warrant TOS experts or deep testing, usually those are for pre surgical cases/severe pain.. but the proper PT and gentle stretching & posture can be very beneficial..

You certainly don't want to risk getting into the severe stage...if it is a mild version now. Explore the RSD/CRPS sticky threads too if you haven't yet..

I had been seeing Chiro up until a month after my surgery but had to stop due to finances. I dont have any colour change in my hands or arms and I dont experience any muscle issues apart from general tightness from not being able to fully stretch without causing flare ups. Most of my swelling is from my arthritis. However I have been thinking of going back my chiro doctor. I will for sure mention TOS to my doctors when I see them. Looking up the symptoms though I dont seem to fit. But who knows Stranger things have happened!

Well, don't be surprised if Drs dismiss TOS right away, many have very limited knowledge, unless they have an actual interest in it..

If you feel it isn't a fit right now, just keep it in mind if more things start to match up later on..
My version was more of a pre TOS situation, I luckily was able to reverse & recover from the worst sympoms, now I have more of a Myofascial pain syndrome (MPS) but still can't hold my arms up for more than a minute..

Good luck and keep searching..