Dear Vic,

I know I've never talked to you before but I would like to say thank you so very much for all of your insights and obvious hard work. What you say about ischemia is the first thing that has made since to me since my own diagnosis. I am not a doctor, just an LPN but everything the pm, neuro's, pcp's and so on just didn't add up! I always knew there was an element of hypoxia, obviously, because of the cyanosis to my arm and coldness to my hand. Nobody even tried to explain that, I also assumed it was because they honestly didn't know what was causing it anymore than they know what causes rsd. I hope and pray you will continue posting and sharing your information, I have done lots of research myself but unfortunately I am a better nurse than computer wizard and don't know how to post the links that I find onto a different web site. By the way do you take trental by any chance? just curious Thanks again, Vic , I appreciate it more than you know, jennyk

It's interesting that one of the things that is most stressful for me is using my hands above my heart and that one of the best things for me in ghinko biloba. I was having memory problems so tried the ghinko and it didn't help the memory in the least but helped a lot with the pain. This leaf extract is supposed to improve circulation in the capillaries.

Jenny,
I think I am about the only one on this forum, that I know of, who does take Trental. I have done so since about 3/2005. Have I found it helpful. Yes I have found it to be in that all my meds seemed to work better since being on Trental.

DebbyV

Hi Debby,

Thank you for your response to my question about trental! Any and all advice, info is always greatly appreciated I'm wondering if you could be a little bit more specific in how it helps? Does it help with mottling and temperature of affected extremity? just curious, jenny

Thank you all for your responses. This subject is so bewildering to me.

Vicc,
I would very much like to have your info. I did briefly talk to the rheumy on the phone and she did say ischemia is a possibility with me. I have an appointment in October and would like to learn what I can by then.
Sorry to hear that your energy is so low. But I think I can kind of relate. I don't even get on the computer every day. So, whenever you are up to it my email is lindaandsteve2@earthlink.net.
Thanks again,
Linmarie