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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-31-2020, 12:07 AM #1
RSD31 RSD31 is offline
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RSD31 RSD31 is offline
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Default Katamine
They want me too do. The katamine infusion but my wife an daughter are not happy with what they have read about it I would love to talk to someone who has done it the problem I think for me is I’m 42 years this June with this RSD and I think I,m running out of thinks that will help me because I,m having problems with kidneys and other organs because of the RSD and the long term use of Rx’s.
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Old 06-01-2020, 07:22 AM #2
annabanana123 annabanana123 is offline
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Originally Posted by RSD31 View Post
They want me too do. The katamine infusion but my wife an daughter are not happy with what they have read about it I would love to talk to someone who has done it the problem I think for me is I’m 42 years this June with this RSD and I think I,m running out of thinks that will help me because I,m having problems with kidneys and other organs because of the RSD and the long term use of Rx’s.
I'm sorry! What about the ketamine are they unhappy with? I would try it in a heartbeat if my insurance was willing to pay for it. Also which meds messed up all of your organs? My understanding is some are worse than others and I'd like to avoid what I can...praying you get some clarity and can reach the same page as your family on what the best next steps are.
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Old 06-02-2020, 08:34 PM #3
RSD31 RSD31 is offline
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40 plus years of taking NSAIDs and pain pills .plus don’t know if we will pay for katamine plus I have to go the st-Paul Minnesota not a good time to be there with Cov and the other crap that going down.
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Old 06-03-2020, 09:09 AM #4
annabanana123 annabanana123 is offline
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Gotcha! Yeah my insurance refuses to pay for it so it's not an option for me right now. I can't justify spending that much money on something that might temporarily work. It's a horrible time to do that, I agree, but most hospitals are being super careful with how they handle covid versus non-covid patients. I have been to my PM and felt safe while there.
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