Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-11-2020, 06:13 AM #1
annabanana123 annabanana123 is offline
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annabanana123 annabanana123 is offline
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Thanks all! I am headed for a MRI this weekend to see what exactly is going on as x-ray was inconclusive but they could see "something." Best case scenario is scar tissue broke off and is causing the issue and can be fixed so we can keep limping along.

I tried prolo therapy and synvisc (I think it's called?) injections as well as cortisone and all failed sadly. Which led to a tibial osteotomy to fix the bone on bone issue which led to CRPS...then the screws started coming out through the skin and surgery #4.

I am young...in my 30s still...but if it will solve my issues for 15-20 years I don't really mind doing it multiple times in my life. I know that sounds crazy but since the tibial osteotomy is worse recovery-wise and did not save the joint I think I can handle it. I was non-weight-bearing for 2 months and didn't drive for about 3 and live in an area where you can't go anywhere without driving. plus 6ish months of 3/wk PT. All with a 8 yr old at the time...
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Old 06-12-2020, 10:51 PM #2
RSD31 RSD31 is offline
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RSD31 RSD31 is offline
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Default After surgery’s

I have had 8 surgeries on RSD effected limbs what they have done is a post nerv block just before surgery and I have taken vitamin c before after surgery they used different pain medication after like the last 2 times I had shoulder replacement they used tordal and dilad every 4 hours while I was in hospital then when I when home they used different pain medicine that I was not taking before on till I did not need the stronger stuff from surgery then I went back to my normal pain medication for my RSD and I had to get booster nerv blocks bone to keep the RSD under control hope this helps.
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Old 06-15-2020, 09:58 AM #3
annabanana123 annabanana123 is offline
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That does help! I just want to know what I'm in for if I have to/decide to go this route.
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dose, knee, management, pain, replacement


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