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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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08-04-2020, 03:32 PM
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Junior Member
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Has anyone had this spread to (or start in) your mouth/tongue? I am feeling a lot of burning there today and it's miserable. If you have do you have any tips/tricks?
Thanks!! |
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11-04-2020, 03:07 PM
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Newly Joined
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I have RSD in my mouth, sinuses, eyes, and ears as well as the rest of my body. My mouth can get incredibly sore. One thing that helps me is taking the supplement L-Lysine (not regular Lysine) but that helps with soft tissue repair. It's cheap and I take about 4 a day when I'm in a flare. Also swishing with warm salt water. I'm sorry you are hurting.
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11-05-2020, 09:59 AM
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Thanks Lyla! I will definitely look into that. Thankfully it's not all day every day so I can eat most of the time - and during that flare up I do a lot of protein shakes and greek yogurt and smoothies. It's no fun but we all learn to cope I guess when there's not another option
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11-05-2020, 10:23 AM
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Grand Magnate
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Welcome Lyla Grace.
 Kitt |
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| "Thanks for this!" says: | Lyla Grace (11-14-2020) |
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11-07-2021, 02:16 PM
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Quote:
How are you doing? |
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