Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-16-2007, 12:33 PM #1
Donny G Donny G is offline
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Originally Posted by jennyk38 View Post
Donny,

That was a great article and something I had not read nor heard of before! I will be printing it up and taking it with me to my next appt. with p.m. I'm not sure how long I've really had this or what stage I'm in but it can't hurt to try it! Did you bring that study with you to your appt. by any chance? How many pain management docs have you seen? I am on my third one and have only been diagnosed since March and am presently thinking about seeing my fourth. I have not had much luck finding someone who wants to treat me the way I want to be treated Sounds like you are going through the same crap!

I hope your therapy goes well. I know I just said this about my p.m. but I am being evaluated by my fourth physical therapist next week. I really hope this one has a clue. Can you tell I'm a difficult patient? Take care, good luck and thanks again, jenny

I was diagnosed just thee weeks after my fracture around the end of april 07
so it's been 16-17 weeks, and only I've seen one pain mgmnt Dr.
all he did was refill my tramadol prescription, and prescribe Elavil

all of the Dr.'s Ive seen have all been very young and very closed minded. I did bring in article in initially, the first day at the university, the artile was about ischemic contracture, the Dr wouldn't even look at it long enough to read the title

I swear they are out to kill me

listen, pain mngmnt and physical thereapists IMO are the wrong choice they all want to do stellate ganglion blocks

I'm seriuosly thinking of seeing a rheumitologist

if you want someone to talk to you can call me anytime and that goes for any of you

use the private message feature and I'll send you my number
Donny
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Old 08-16-2007, 04:35 PM #2
jennyk38 jennyk38 is offline
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Donny,

You truly have a way with words that makes me laugh! I too feel like they are all secretly conspiritng against me and my quest for a cure/remission. Seriously, though, your best bet might be finding yourself a different doc, someone a little more experienced and mature than say...doogie houser?

I've had one stellate ganglion block and that was enough for me, thank you very much!! It was done in an office without the use of fluoroscopy! Was one of the most excruciating moments of my llife!! I swear that man dug around in my neck for about half an hour and hit the nerve to my hand twice and stilll didn't manage to get it in the right spot!

I have since decided that I will look for alternative treatments and thus far that has worked for me. I doubt that I'll ever be completely 100% free of this crap but at least I don't feel like dying anymore (even though I think they are still trying to kill me!)

I was just informed today that I have to go to another "independant" medical exam for work comp at the end of the month and I just can't wait to see what they have in store for me....oh boy!

Lots of luck, Donny
jen p.s. what state do you hail from?
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Old 08-16-2007, 08:28 PM #3
Donny G Donny G is offline
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Oh God W.C. cases are absolutely a lost cause, pay into it forever and try to collect..................... fat chance

My sister went round for round same as You, rotator cuff they waited till She had nothing else to lose and threw Her a bone

ATTORNEY TOOK HIS cut,AND SHE WAS LEFT WITH LESS THAN 12 MONTHS SALARY 5 years of agony not to mention being followed, for less than a years wages


all the research I've done has had me come across several W.C. abstracts on google, it's really not worth the aggrevation better off getting yourself mentally and physically fit I truly believe ball breaking cardiovascular excersize is the way out of this dark dark tunnel we've gotten ourselves into

seems a lot us were smokers, thank God I quit that two years ago
btw I was a soda pop junky too, quit the day I got the cast actually started drinking diet sprite, till I read about aspartame that $hit'll kill ya

buck up, and reach out to Your Kids.............. my 11 year old Son's love keeps me striving to get healthy

ps GOOD LUCK with WC ............. no good Bastages Donny

I'm in Huntington Beach California

Last edited by Donny G; 08-17-2007 at 09:59 AM.
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Old 08-16-2007, 09:40 PM #4
jennyk38 jennyk38 is offline
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Donny,

Did they really follow your sister! That is truly insane !!! I can honestly say I haven't been waiting for them to give me the OK to see doctors, specialists, etc. but when they tell you to go to an IME, FCE or any other kind of B.S. I have no choice but to go....not holding my breath for a good outcome.

It's interesting that you bring up smoking as a possible link to this disease, I am a smoker, unfortunately, and once I started reading about free radical scavengers and thinking about the vasoconstriction, hypoxia, mottling etc. that was occurring I wondered if that might have played a role in it. I don't know anybody else personally who has this though and haven't seen it discussed in any of the research papers, etc. that I have read.

My 11 yr. old also inspires me to get well, actually she just kind of inspires me. Why do you think cardio is the key? If you don't mind me asking... I personally have been seriously considering hbot, any thoughts?

Well, have a good night, hope your sister is doing better and trust me I know what farging bastages the w/c people are, I have been going through this with them for 3yrs. 4mos and 2wks. Truly sucks out loud!! jenny
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Old 08-17-2007, 10:06 AM #5
Donny G Donny G is offline
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Absolutely, they videotaped Her as well

as for smoking, it hardens and narrows the arteries anyone serious about improving their quality of life/healing must give up smoking (cigarettes too) Donny


I'm off to occupational therapy evaluation .................and very nervous
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Old 08-18-2007, 10:03 AM #6
jennyk38 jennyk38 is offline
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Hey,

Hope your O.T. eval went well. Try not to be nervous....as far as smoking goes, trust me I KNOW how bad it is. Both of my parents died from lung cancer. I'm working on quitting but not so easy I'm afraid. One of the biggest regrets of my life is ever starting.

I wonder if it is legal for w/c to do that? If they video tape me I have nothing to fear.....and nothing to hide but it would make me very angry and I know I would feel very violated!

Well, off to farmers market and then football game to watch my daughter cheer....................have a good weekend jenny
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