You give that sweet understanding husband a great big 'ol smooch for being such a great loving husband, dealingwithtos! Wow!! What a guy ya have there! You can't do things sweetie and he knows that! Please don't get down on yourself! I know, I know I do the same thing, feeling guilty because Bill does do a lot and when he see's me lifting anything heavy, he too yells. Thank God we have husbands like that!! Wishing you a good day today, dealingwithtos! Love, Desi

dealingwithtos,
Everything you listed I dealt with way before I ever had RSD. Due to Fibromyalgia. Dxed with it in 1989. Had a hard time picking up little things, would drop things from half gallon of milk to pins. Would slide right thru my finger tips more or less. Numbness & pain in muscles, fingertips to toetips *LOL* Memory problems like really bad. I was 32 I believe when dxed with Fibro. Was decided I probably had been born with Fibro. My Mom used to describe how I didn't like cuddled or touched a whole lot as an infant, especially when I was sick. Now that doesn't sound like a normal infant does it??? I imagine I was in pain from touch & that is why I preferred to be left alone when ill especially. There were other things as a child that led the doctors to believe I have been suffering from Fibro all my life too. Then RSD came into my life & just made the pain so much worse. Today is a Fibro day. The pain meds that work on RSD do NOT work on the Fibro pain much at all. Sad isn't it??

Anyway I think pain causes so many of our problems whether it comes from TOS, RSD, Fibro, Sjogren's, arthritis. Doesn't matter. Our nerve responses don't work right, & that is that.

DebbyV

Jo55,

Yes, that's exactly what I do. I get home from work and I'm absolutely exhausted. I come home and sleep. The kids take turns emptying the dishwasher, loading it, vacuuming, etc. My son is 11 and my step daughter is 19. I just see something that needs to be done around the house and it's hard to just let it go.

Desi,

Thank you for the kind words about my husband. Yes, he is wonderful to me.

Debby,

Pain definitely controls my life. I find that stress significantly affects my pain levels. When I have alot going on and I'm stressed, I am in a lot more pain.

Beth,
i don't know how you do it ... to work with this pain. i never went back once i got rsd, but i also had a bad hip put in and got nerve palsy at the same time too, so with all that, i was done ... pain is exhausting, so God bless your effort to keep working. try to at least stretch before you get out of bed in the morning. it helps.
joan

I really thought on top of the TOS and RSD i was losing my mind.... Then I came across this post... I use to be very reliable and always remebered everything... A bit **** you could call me... Lately, i can be told the same thing 10 times and not remember.... Or try to think of a word and its at the tip of my tounge but can get it...Ie. The color green... I was looking at the lawn and could not think of the freaking color... I really thought i was losing it... Now i feel better learn that forgetting things is a part of this condition... I was really feel down about it.... Just one more thing to get use to...

Dealing.... I am new at this as well... I am glad you have found this site i learn something new every single day!!!!

Also, as i said above i have both TOS and RSD.... I forget about the TOS because of the RSD pains and symptoms... My RSD is not visible... I have temp change and buring pain deep in my bones... and the blocks did help... I always ask people how do i know what condtions is causing what... Its hard! We all feel down that we can do things.. But dont let it get the best of you... Its learning a new life styel... I am only 21... Its hard!

It sounds like you have a good support system at home... I am glad you have someone special and he sounds like a great man!!!

Pain free hugs!

Pain free hugs foreveryone

Beth,
I also feel the guilt of not being able to do the things I did before. I had always taked care of my family. You need to go to counseling. I can't afford it at all, but you can find a place that works on a sliding scale. They only charge what you can afford. I started 3 weeks ago and it really helps. Memory is a big issue with me and half the time I don't even know what I have said. Hang in there.

Sue K.

I wanted to say how much I admire anyone who keeps working through all you are going through with the RSD and TOS.

I wish you could get in PT. I know with the TOS the posture is all messed up.
My neck is still messed up. I hold my head wrong. Also my shoulders are up to high. I am better though after having the therapy.

They stretched my arms and fingers and worked on my ribs. The way I looked when I got the TOS is that I was afraid of everything. I looked like a shriveled up old woman. One Dr. even referred to me as having the body of an 80 year old. The more I think about it that's how I looked before therapy. They worked on my neck, and back also. It took a lot of therapy to get me better so I know for you it would be expensive. There might be a place tied in with a hospital near you that will go by your income. We have one here like that.

I don't know what kind of job you do but if it's repetitive or typing it only makes the TOS worse.

To me the TOS is just as bad as the RSD in a lot of ways. The pain from TOS is horrible as anyone with it knows. After my surgery on my right side I am much better but I still have it on the left side and I have to watch what I do.

As far as councelling, I am so thankful for it because it helps me to accept where I am at and to deal with anything that comes up. It also gives a person someone they can confide in and know it won't go any farther. It helps with self esteem and being ok with where a person is in life.

I know though that when a person has no insurance it's very hard. i went 5 years with any so I did without meds a lot of the times. I didn't know at the time that companies will furnish meds that a person can't afford.

I hope you start seeing some better days soon. You are a very strong woman.

Ada

Hi Everyone.

Thank you so much for taking the time to write.

Joan,

Thank you. To be honest, it sucks to be working - and that's putting it mildly. It's scary to know that this isn't going to get better and there's no light at the end of the tunnel.

Wildberry,

I'm glad that you found this post also. Atleast you have some sort of piece of mind that you aren't the only one. I have a really hard time with finding the right words. It's embarrassing in a business environment. I'm not sure if it's the medications or the RSD. To be honest, I'm not sure it matters. I'll never be off the medication and I'll never NOT have RSD... Yes, thank God I have my husband. I'm not sure what I would do without him...

Sue,

I agree. I've always just cleaned what needed to be done. Picked up my son's "things". I try to still do that, but any other cleaning I can't do. I don't want to loose the "mom" things... Not sure if that makes sense.

Ada,

As with my PM, Thank you.

All, I need to get back to work... I've spent just about an hour posting...



Beth.