Vicc, I just wanted to say "Thanks". I have been doing a bit of research since you started this thread. I am fascinated by your approach to this awful disease.

There is a dr. named B. Kaada who has many articles about ischemia in the European Heart Journal. I think you might find some of this info helpful.

Oddly enough, I came across the name of this Dr. through a printout given to me for my TENS unit. Kaada's name is on it, and basically he/she equates rsd/crps with ischemia.

I hope this name helps you in some small way to prove your theory. I would dearly love for you to be correct, so we can all get the treatment we need and deserve.

Like you, I have virtually no life off my couch or bed. As my legs are elevated above my heart 24 hours a day, I have little in the way of color changes, unless I am on my feet at the grocery store for a while. As my crpsII spreads to other limbs, I have noticed that the color changes don't ever start in the limb! I get all the cramps, spasms and pain, however. I can't say that the pain isn't related to my other conditions (epilepsy & aids), though... I know the aids is the reason for my inability to heal properly, it's probably responsible for the pain not subsiding with the other symptoms. The meds I am supposed to take for aids would also add greatly to my pain levels... they cause peripheral neuropathies, joint pain and muscle problems of every sort. That's why I am NOT on any... the whole dying of aids thing is a lot more merciful than a lifetime of crpsII.

Keep up the good work, Vicc! Without people like you working towards a proper diagnosis, this mess will never be cleared up.

Vicc,

I am sorry that you think that you are wasting your time answering my questions but I actually did not address these questions to you specifically.
As I have said previously I would not still be asking questions if I thought you had supplied me with an answer that I thought explained my queries.

You brought attention to me saying that 'the only symptom of RSD/CRPS was pain" and I feel I must address your comment.
Long gone are the days when doctors rely on a page full of signs and symptoms before RSD/CRPS is diagnosed.
Current well informed doctors look for the possibility of RSD/CRPS if pain is a problem far after it's expected time of healing as early diagnosis and intervention is preferred before the list does get longer.
Many people have got better from the early intervention with nerve blocks--the Noigroup web site will validate this and also leaves me convinced that if this was not a disease neurologically based that this would just NOT be the case.

I still have many questions that remain unanswered from my last two posts. I guess that is how it will stay.

Cheers
Tayla

Vicc
I know your intentions are good but I am not sure what the whole point is here.
IRI has been in the RSD research and literature for as long a I have been reading and long before that.
You only need to put RSD and ischemia into your google search engine and you get about 35,000 hits.
You are not reinventing the wheel or bringing anything new to the table.
There is no conspiracy to hide this part of the disease process from us.It is well known to most doctors who are knowledgeable in RSD
Why I just pulled this randomly from the google search http://www.rsdinfo.com/rsdinfo3.0/art_6.htm.
It is part of the picture but an an incomplete pathology - that is why the docs and we in turn do not have ALL the answers.
When I was first diagnosed in 2000 there was a nurse named Heather on these boards who sought HBOT for her RSD and got very good results with it.
Another patient followed her to the very same clinic and did not see any change in her condition-same clinic same air pressure - and same consistency in treatments - completely different results. I guess there must be something else at play here.
There are many if not hundreds of HBOT centres which offer treatment for RSD especially in big cities. The inflammatory response( abridged big time) which is a big part in all diseases can only be helped with this kind of treatment .Maybe if you got out more you would know this is happening.I know this is not your fault but the internet can sometimes give you a false sense of reality if you follow the information highway and take a left turn when it should have been a right .That can mess up the whole theory

What troubles me is your refusal to answer questions- only someone who is
unsure of their knowledge and doesn't have the answers would feel so threatened by something as innocuous as a question
Once you put yourself out there that is part of the deal

In peace
GnP

GnP

IRI has been in the RSD research and literature for as long a I have been reading and long before that.

I write about IRI because I believe it isn't well-understood. My posts get a lot of hits, and I get comments thanking me for them; I suggest this means I am helping some members better understand this disease process.

When I was first diagnosed in 2000 there was a nurse named Heather on these boards who sought HBOT for her RSD and got very good results with it.
Another patient followed her to the very same clinic and did not see any change in her condition-same clinic same air pressure - and same consistency in treatments - completely different results.

I wrote about the reason for different outcomes and outright failures of HBO on Buckwheat's thread Vascular Issues. Perhaps after reading that you will better understand my explanation for outcomes.

What troubles me is your refusal to answer questions- only someone who is
unsure of their knowledge and doesn't have the answers would feel so threatened by something as innocuous as a question

I asked that questions be limited to what I posted on a the thread on which the question is posed. I think that is reasonable as others may have no idea of exactly what I wrote in another thread. I think my request is reasonable...Vic

(added later): I tried Google using "iri and rsd" and the first two links I found were NT and this thread. Using "rsd and ischemia", this thread was the 7th link. Thanks, I needed that...Vic

(added even later): Using "rsd and cyanosis". this thread was the 1st link. I'm assuming Google automatically lists the most recent entry, so this thread should fade rather quickly.

(added even later): Using "rsd and hbot", this thread was # 4 on page 2. This is fun.

I am not going to be another to fall for your word games so this will be my last post on the matter.I spoke my peace and you chose to address those points that interested you and left the rest .
The last thing I want to do is get into a game of semantics and power with you.

I will respond to the issues: re HBOT
I mentioned this case precisely because the 2 cases were treated EXACTLY the same way-SAME HBOT centre - same practitioner -same air pressure - same treatment -DIFFERENT outcomes.
I believe you mentioned in Roz's thread that the air pressure could be different which would explain why one was not cured and the other was-NOT the case here . I could not find the thread so I am not sure what you said exactly, but it was along those lines - please don't argue minute variables
.All variables re:HBOT were constant here EXCEPT for disease presentation in the patient !!!!


Ischemia is part of the disease process in most illnesses from heart attack to stroke to diabetes to liver disease .If that were the only component involved in RSD then doctors researching this scourge for 30 years might just have figured it out by now and we would all be cured.
Yes, it is a piece in all of this but it is only one fully understood component in a muti-faceted pathology .


Peace

GnP

Added in response and to refute Vicc's response below although I still may make a new post on it:

.Heather was indeed "cured".She had a good result .That does not mean that if you use HBOT you will be cured of RSD . I did not mean to imply this .It happened in this particular case . - Again I am not going to argue semantics ,or what you choose to read into things.
Again you are blaming the industry,doctors etc.for the pitfalls in your theories - an HBOT centre is run by "professionals " and overseen by doctors and often run by them as well as well.
You do realize that HBOT uses different pressures to treat each different disease -HBOT is NOT a one size fits all approach
According to you it is just another in a line of conspiracies to keep everyone who stays at home and pontificates sick .
Do your research - find a good centre and you will get the outcome that is right for you just like with every other treatment out there-eeeeeshhhhhhh!!!!!!!


added later : the fact that you derive so much pleasure from showing up on a google search engine and having to announce it here not once, but 3 times makes me question all your motives -
Are you truly that ego driven a person. You are recycling information that is already out there for your own self motivated reasons -
Two years ago you were anorexic ,claiming RSD had the best of you and you had lost the will to live.We all tried our best to get you the help you needed including calling social services in your area.What happened to that humble man to turn him so angry and egocentric???It is really sad.
Funny how you left that tidbit out of your newly minted biography

GnP

I believe you mentioned in Roz's thread that the air pressure could be different which would explain why one was not cured

The last thing I want to do here is debate something I wrote on another thread, but I suggest you try reading what I wrote before commenting on it: If you read my post you will see that I argue that the industry standard for HBO (100% oxygen at 2 ATA) is too much oxygen at too high an ATA for RSD patients. I said that patients are fortunate that they didn't have adverse outcomes at those levels.

Also, I never talk about HBO as a cure...Vic

I'd like to jump in here quickly and respond to something.

Vicc said:

You may feel that reasonable. Some may agree, others may not. Others may wish to discuss what's here (or elsewhere as it applies) in depth, even revisiting at times.

We can't expect to to state how another member, or members, should post/respond/question. We can ask, but there are more than just one reading the thread and it's a public thread/conversation, so it doesn't mean that all responding will agree to requests. That's OK. Just as in real life, we can ask but we can't control the other side(s) of a conversation...keeping in mind that conversations evolve with the natural flow as they continue.

What we *do* have full control of is our choice whether or not to respond if others still choose to carry on the discussion in the ways they feel the need to. If someone asks what you feel is an inappropriate question, or is redundant, it's your choice not to respond knowing that there are others reading who may want to with the knowledge they have.

Also, if you're concerned that others might not have the information from another thread, you can always quote or link in your response *should you choose to respond*.

Thanks,

KD

I had my HBOT at 2 ATA as did all my fellow chamber mates.
It was considered by our HBOT physician that less ATA would not be therapeutic.
I would agree that for a small minority of patients 2 ATA maybe too much for them as has been documented on this site by someone who did get worse after her treatment. HBOT does come with risks when in the hands of inexperienced technicians or for those people who may have certain other illnesses or for those who smoke but there is an extremely thorough medical history taken before you are accepted for HBOT and there should always be medical and nursing staff on hand to recognise any problems if they arise.

I would suggest that our Physician his hardly likely to play Devil's Advocate and risk our lives at that ATA if he had any major concerns with those he had in the chamber.
My only problem was with my first dive which was only 1.5 ATA when I had oxygen toxicity, the other 50 or so dives went without incident for myself or my fellow "divers"
I trusted that after I had made many enquiries about the treatment centre that I was referred to and found that it was indeed reputable and had been providing quality care for many years, that I was going to be safe in my treatment----and I was.
Am I lucky to have survived 50 or so 2 ATA treatments No, I don't think so. It was clear we got exactly what our bodies could take and that was no fluke.
Cheers Tayla