Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-16-2007, 05:05 PM #1
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Unhappy Hi there

Desi,

I am sorry for what you are going through right now... My doc just bumped my does up from 300 mg 3 x daily to 400 mg 3 x daily for 10 days and then 600 mg 3 x daily... for sure concerned i wont be able to function as it already makes me sleepy!

I hope that rsd is not spearding.. I fear for you... I really hope you can make it through the weekend and you PM has someting to offer you!!!

Pain free hugs hun!!
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Old 08-16-2007, 06:12 PM #2
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Feel better honey. I take 3600 of neurotin for PN,i don't know why they
do it so fast. But if it makes you feel bad do exactly what you said. Sue
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Old 08-16-2007, 06:26 PM #3
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That's a fast amount of Neurontin! I have handled it well and have been able to increase it faster than others, but for someone who hasn't handled it well... hmm! I wonder *why* the doctor is doing it that way?! Wow... I would slow it down myself.

Feel better, Sweetie! Poor girlie! You are in my thoughts and prayers!
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Old 08-16-2007, 07:04 PM #4
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Desi,
You are such a sweet person. Iam sorry your feeling so bad. I will be praying for you and thinking of you always. I hope things calm down soon. God Bless you.

SUE K.
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Old 08-16-2007, 09:37 PM #5
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HI DESI.
i use 400 three times a day and once did try to bump it up to four times a day but i just got loopy and did not have further pain control. that sounds like a big increase all at once. take only what you feel makes you feel better and no more.
take care joan
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Old 08-17-2007, 03:40 AM #6
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Hi Desi,
That is really quite some increase in Neurontin. I imagine that some people may tolerate a sudden tripling of the dose but I would suspect you may have felt a lot better if it had been titrated with a little more patience
If you slept for such a long tiime in one position in bed there is a possibility the extra swelling could be dependent oedema (just as legs will swell if left dangling down for too long)
Please don't panic about spread, it maybe something else completely.
Fingers are crossed for you
Please take care
Tayla
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Old 08-18-2007, 11:22 PM #7
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Hi Tayla!! I love your name too and I'm jealous of it! LOL anyway, thank you for all the good sound advice, Tayla! I was really on my face!! from 300 mg. to all that higher of a dose!! crazy, I tell ya.. crazy! LOL Your right, I may have felt a lot better, if the dose of neurontin had been titrated with a little more patience! hmmmmmmmm..?? You may be right about my legs swelling that it could have been from sleeping so long! I still have pain in both knees, but not as bad as before!! I'll try not to panic Tayla, as your right, this could be something else and not spread! Thanks, I needeed to hear this one, sweetie! Love (((hugs, Tayla)) Love, Desi
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Old 08-18-2007, 11:12 PM #8
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Hey there, Joan!! Yes, that is a rather BIG increase in the neurontin!! Geezzzzzz.. what ya gonna do?? some doc's, I think .. don't know sometimes what their doing, but I do like him a lot, oh gosh, I never wanna go back to that other "Doogie Houser (PMD) I went to before!! EVER!! LOL ... Joan, I will for sure take your advice and take only what makes me feel better!! thanks for the advice, Joan! Love and ((Hugs Joan)) Love, Desi
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Old 08-18-2007, 11:07 PM #9
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Hi there Sue K. How ya doing these days?? better I hope!! you sure have had a lot on your plate, Sue as well!! Your a very, very sweet person too, Sue! Thanks so very much for your prayers and thoughts!! I hope things calm down here too! Between the morphine, xanax.. and Neurontin, Effexor XR I'm one loopy gal!! LOL LOL Love, ((Huge Hugs, Sue)) Love ya hun!~ Desi
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Old 08-18-2007, 11:02 PM #10
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Hi ya IHH Yup, your right in saying;"you wonder why the doctor is doing it this way"! Maybe he has so many patients, he has me confused with someone else?? LOL anyway, my dear friend, thank you so much for always being here for me!! Thank you so very much for your thoughts and prayers. You too, are ALWAYS in mine (prayers) too sweet friend of mine! Love ya!! Love, Desi
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