Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-16-2007, 03:47 PM #1
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Attention Not doing so good!

Hello all. I can't hardly type, as my entire right wrist is swollen and my left wrist also. I am going in to see my PMD on Mon.(he had me on 300 mg. of neurontin, called me yesterday to take 900 mg.) this put me flat on my face) He upped it to 900 mg. in the morning, 900 mg. afternoon. 6oo mg at bedtime!) OMG I stopped it and am staying at 300 mg. 3 times a day until I see PMD on Monday)why did he up this Neurontin so fast like this?? I really need answers, please!!! how come there are so many on here that can take a higher dose, and I can't?? I mean, I slept for 1 and 1/2 days in and out of sleep! this is crazy! I can't understand also, as this is now moving, spreading?? into my left hand. it blew up right along with the right side(my left hand!)Can this b spreading?? sorry for all the question's! this has me puzzled!! anyway, please say some prayers. thank you. love and hugs to you all. Love Desi
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Old 08-16-2007, 04:18 PM #2
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Default sorry desi...

Hi desi,

I just wanted to tell you how sorry I am that you are suffering the way you are I don't really have any answers for you I'm afraid....I'm unable to take high dosages of neurontin myself, I only take 300mg at bedtime. I wish there was something more I could do or say to help you. You are always so kind and supportive to everyone and want you to know how much you are appreciated. Hope you get some relief soon, jen
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Old 08-16-2007, 04:37 PM #3
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Hi Hon,

I'm sorry this has happened to you. I take 900 mg a day, 300 morning, and 600 nite. It made me very sleepy at first, but after a few days it was easier. I have found that my 300 in the am makes me sleepy. Always take a late morning nap. the 600 at nite doesn't seem to make me sleepy at all. Maybe you could take 600 at nite and see if it works. Hang in there, and take it easy. We are here for you.

very gentle hugs and pats.
mary
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Old 08-16-2007, 05:05 PM #4
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Unhappy Hi there

Desi,

I am sorry for what you are going through right now... My doc just bumped my does up from 300 mg 3 x daily to 400 mg 3 x daily for 10 days and then 600 mg 3 x daily... for sure concerned i wont be able to function as it already makes me sleepy!

I hope that rsd is not spearding.. I fear for you... I really hope you can make it through the weekend and you PM has someting to offer you!!!

Pain free hugs hun!!
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Old 08-16-2007, 06:12 PM #5
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Feel better honey. I take 3600 of neurotin for PN,i don't know why they
do it so fast. But if it makes you feel bad do exactly what you said. Sue
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Old 08-16-2007, 06:26 PM #6
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That's a fast amount of Neurontin! I have handled it well and have been able to increase it faster than others, but for someone who hasn't handled it well... hmm! I wonder *why* the doctor is doing it that way?! Wow... I would slow it down myself.

Feel better, Sweetie! Poor girlie! You are in my thoughts and prayers!
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Old 08-18-2007, 10:58 PM #7
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Hi ya Sue!! Your right, the PMD did up the Neurontin wayyyyyyyy fast! They just wanna shut us up, just kidding.. LOL Your a real gem, Sue! thanks for your "Oh so true post" up it.. I WILL LOWER IT.. UP it when I want!! HA! HA! HA! Love ya ((Hugs Sue)) Love, Desi
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Old 08-18-2007, 10:51 PM #8
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Hi ya Jacquelina!! How is my good buddy doing these days?? hmmmmmmm.. fine I sure hope! so, your PMD bumped your dose up too, huh?? Hmmmmmm... well, I got used to .. well.. not all the way used to the neurontin some what!! I sure hope the RSD is NOT spreading either!! now!! Jacquelina(I just love your name!!) I'm jealous!! LOL ;0) anyway, I sure hope that this RSD is not spreading either!! Both of my knees were swollen and hurt.. hmmm..??still do! And I noticed with my left hand, it is tingly, swollen, hurts. Now I know why!! duh!! LOL I have Carpal tunnal in that wrist also! will NEVER have Carpal tunnal surgery again, as this is what caused this hidious beast of a disease..in my right hand! (RSD) anyway!! sending pain free hugs your way too sweetie! Love ya!! Love, Desi
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Old 08-18-2007, 10:39 PM #9
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Hi sweet mary!! hey, my friend, I am now taking 600 mg. in the morning, 600 mg. in the afternoon and 600 or 700 in the evening! So, I am getting used to this some what! Mary, you mentioned that it makes you real sleepy in the A.M. Ya know, "Your so right"!! OMG I almost fell down my freekin' stairs! LOL My hubby started yelling and saying, get away from the stairs!! LOL.. like I'll never go down/ up them again? LOL I will also remember to take that late morning nap anyway, sweetie I want to thank you ever so much for your nice reply backto me... and Mary.. ((((Gentle hugs back atcha))) I love ya my sweet friend! Love, Desi
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Old 08-18-2007, 10:29 PM #10
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Hi ya Jenny and the rest of you friends!
Just want to say, sorry it took me so long to write back!! I had a huge flair up, pain, swelling.. that I couldn't even hold a ink pen! Anway, thanks Jen. You said;"you wished you could say or help me more"?? Jen, you sweetheart, You!! Ya already did, just by your kind reply back to me, hun! I love ya, my friend, Jen!! ((Hugs Jen))) Love, Desi
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