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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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09-01-2007, 01:10 AM
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im sorry so many things have failed since your tens unit is effective you may want to look into a trial stimulator. i have 2 so if you have some quwstions feel free to fire away. one suggestion though if you do decide to have one avoid the ketamine pain pump it didnt work at all for me and with a previous history i wouldnt rely on it.
just a thought the other messages regarding the medication is probably the smarter route and i hope those work but if they dont the stim might help
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rsd following a botched epideral for knee surgery 1993 remission from 99-2003 shoulder dislocation 2003 CRPS Type 2 scs (cervicle 2005) (lumbar 2007) Strong mind Strong body . |
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09-04-2007, 01:54 PM
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Yes about a year ago I tried lyrica. It did help some but not enough to swallow the expense for it. Neurontin I tried back in high school (about 5 years ago) but I didn't find it much help even being up to 3000 mg a day back then, plus I couldn't function on such high of a dosage..
Heather
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Heather I found I could say things with color and shapes that I couldn't say any other way... things I had no words for.-Georgia O'Keefe |
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09-05-2007, 04:02 PM
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Hi Heather,
I am envious that you are able to sleep, rest and relax. I wish (beyond all wishes) that I could do that. I work FT and literally sleep the weekends away. You have an admirer... |
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09-05-2007, 05:16 PM
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Well, Its tough and it stinks. I work Full-time as well now that I've graduated college... but during the time away from work, I try to rest as much as possible and do relaxing things. For me I am an artist so I paint, but it could be anything that takes your mind off of the pain and where you can relax and sit down...
I do definitely sleep at night better than a few years ago but still my wonderfully patient boyfriend spends many nights up with me when the pain gets too bad to sleep. I also have found that instead of me taking sleeping medicine, on the nights that I can't sleep, I will have a glass of merlot (which is heart healthy as well) to relax me enough to fall asleep... just about 4 -5 oz... but that is a trick I have found works so it limits the use of medicine that i hate taking.... The other thing that kinda sets me back is working.. I work non-consistent hours and really late hours (like til 11-11:30pm) soo that does wear me out a lot quicker. I have been trying for months to get them to put me on a set (or somewhat set) schedule where I can sit most of the day but it hasn't worked out yet... Lets hope soon! then I will be a happy camper. Heather
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Heather I found I could say things with color and shapes that I couldn't say any other way... things I had no words for.-Georgia O'Keefe |
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