Will someone please come along and give me their experiences with these injections? I have had 2 and the first one last for for about 2 wekks. My second after the feelings came back made my foot hurt like a burning hell. The next morning when I arose from bed the bottom of my back right above my buttocks was killing me everytime I made a move. It would shoot down my back into my right hip about middle ways and go down my leg about to my knee. Has anyone experience this? And the sweats are totally killing me.
I stay drinched almost all day and I cant hardlt bear that.
Can anyone give their stories on these injections and how many have they recieved.
God Bless You All

hi,
everytime i had a block done i would hurt for at least 3 days after. But after that i felt better. After a while though the blocks stoped working so i don't get them anymore. they put me on meds. I hate the sweats. I am like that all the time. I hate that. Its so bad that next week Iam getting my hair cut short. Iam always soaked. I've had alot of blocks over the years and after a while i didn't hurt after having them. I wished that they had kept working. Good luck to you.

Sue K.

Hello!

I have had 5 nerve blocks over the course of a year and a half. Anf personally for me, the first one worked very well for about 3 weeks and then each one after that (which were about 2 months apart) slowly got shorter and shorter. The last one didn't work at all thus them stopping the nerve blocks.

The first few days after I was sore (just because it is invasive) but the RSD affected area was great.

hey! i had 6 nerve blocks done (in my neck). the first one worked right away and lasted for many days. the second one was good as well. then they just kinda went downhill. the third one paralized my face for awhile. then i didn't even know why i was going in for them. all 6 of them were over a few week period.

Hi. I had maybe five or six of them over a year's time. As others have reported, at first they were effective, but then they wore off.

That said, there are three very important practice points in this:

1. The fact that one gets some immediate relief is extremely helpful in confirmining a diagnosis of sympathetically maintained pain, e.g. RSD/CRPS;

2. They wear off over time because there's a phase shift in the disease, which is why it's important that they be given early on; and

3. With not a lot of emperical evidence on hand, it's my firm conviction that my relatively early rounds of nerve blocks helped prevent to disease from spreading to the rest of my body.

Mike

I get them periodically because I think they have helped in respesct to spreading. I have the upper ones about once a year when my hands start to burn & go numb. It puts it on hold for several months. I am trying the lower blocks again to see if they too will stop the spread up my legs.

This started for me in 2003 in both feet simultaniously (sp?). Was Dx'ed in 2004 finally. Had the lower blocks & they didn't help much at all as far as with the pain, but I do believe as my PM Doc does also, that it stopped the spread up my legs & it also stopped alot of the color changes, temp changes from going over the edge. Also the swelling isn't as bad as I have seen others deal with in their feet.

I am not WC, & that is why I was able to get the blocks done aggressively once I was Dx'ed.

DebbyV

i posted "bilateral selective nerve root block peripheral neuropathy" before this thread and didnt get a response- so i am posting again here as a reply. i guess they can be the same thing but called different.
havent had one in 20 years and that one was useless and made me feel like i was going down the tunnel of death.
however, i wonder about it diagnosising what i do have since no doc seems to agree. and i do not want to live in this pain since no one seems to be able to help me
like to read the rsd responses as they deal with burning pain. thats what i have up my legs with no color or temp change

steff

Hi Mike!
Question here;'' My three GB never helped me at all"! I mean the surgeon caught my RSD within 3 mos. of my surgery, and like I mentioned.. ALL 3 DID NOTHING! Now, I'm going yet to another PMD today. I mean this RSD was caught early and people around here say the eariler it's caught, the better! I don't know why these doc's are playing so much around!! what's next after the blocks don't work?? I did a lot of PT that only flared the RSD. is the SCS the only thing left. I'm sick of taking morphine, sick of taking neurontin. I remember missing either a dose of the neurontin or morphine at bedtime and I was like a nut case I felt so bad, was wondering why.. looked on the sheet of paper(where I write down my doses) and here, I forgot a dose, took it.. 15 min. latter wasn't going crazy! I hated that feeling!! I mean 1 dose missed, and I felt like in a daze, shaking foggy!! So my question is, how come the eariler the better.. Not for me!!The RSD has now spread to my upper arm, shoulder and now the right side of my neck. My blocks didn't work, so now I am yet shuffled to another dr. this just makes me angry and confused? Thanks!~ Love, Desi

Hi Desi,

I hope you don't mind me butting in here when your question was to Mike but in answer to your question about why your blocks didn't work, I think it does often depend greatly on the skill of the doctor who is doing the block.

Wrong dose, wrong medication, wrong administration and wrong diagnosis I believe are the most likely causes and as I am sure your diagnosis isn't wrong I wonder if it is one of the others

Have your blocks been done under the guidance of Image Intensifying or Fluoroscopy?
I am so sorry you have had a negative response to what can be such a wonderful source of relief for some.
Take care
Tayla

Desi - I think I may have mentioned this already?{sorry for repeating if I did}
But I wonder if you have some aspects of TOS also??
It could be why the treatments you have been having aren't really working for you??

By any chance have you looked thru the TOS forum stickys and some of the website links there?
some of the main sites-
TOS info:
http://www.medifocushealth.com/RT017/index.php
http://www.nismat.org/ptcor/thoracic_outlet/
http://tos-syndrome.com/newpage12.htm
http://tos-syndrome.com
http://www.doctorellis.com
http://www.cwce.com/feinbergarticles/tos.htm
http://www.tellmeabouttos.com
http://www.vascularinstitute.com/Resource_TOS.htm
http://drbrantigan.com/about/index.htm
http://www.ecentral.com/members/rsanders/
http://www.causeof.org/posture_tos.htm
http://intraspec.ca/tos.php

sticky link-
http://neurotalk.psychcentral.com/showthread.php?t=84