Amber,

In your last post (#8, dated 09/05 at 7:54 PM). you're probably talking about my remark that this is all good fun: This isnt fun for me to do and rather be reading stuff from the boards. Please consider the possibility that my words were my way of hiding my frustration at having to repeatedly say "I didn't say that" in response to your and Tayla's repeated misrepresentations of what I actually said.

I would much rather be working on my post about cold pain than constantly repeating "I didn't say that". I thought my reply (#6 09/04 at 4:30 PM). in which I cited six times when I referred to the warm or inflammatory stage of RSD, {which was in direct response to a post you made), would finally put an end to your accusations that I said RSD pain is always cold pain.

I went even further, stating that: RSD begins with the warm, red skin of inflammation, which later becomes cold (and usually cyanotic). I hopt this clears up any questions you have...and then you repeat your accusation again in your last post:

I am not harping on you either.. but you are saying 2 different things and even admitted [on another forum] to haveing "warm" stage RSD when you say that RSD is only cold??

Then you say; and im NOT asking you to repeat your self over and over!!! I would love to know why you say that..

I say it because you continue to misrepresnt what I've said. and I don't want people to remember your representations of my words as my actual words. Every time you misquote me, I'm forced to repeat "I didn't say that", and then repeat what I actually said;.again and again.

I researched IRI and i only find stuff on ishecmic bowl and liver disease.. nothing about RSD or any peripheral disase. Medline shows that there are 19,007 documents matching IRI; PubMed shows 20,980 (almost all of them duplicating those found at Medline).

I have more than 100 abstracts on IRI in my computer files, and I estimate I read five for every one that I saved. You have to dig for the facts, not give up because the first couple of abstracts don't seem to fit what you're looking for.

...why go on a crusade or what ever and say its IRI when even the docs right now dont know IRI [?] IRI experts know what IRI is, but they don't know anything about RSD. I'm on a "crusade" because I knew about RSD when I began investigating IRI, and I concluded that they are one and the same.

but dont get all ..... i dont want to say preachy but thats all i can come up with right now, but preachy about something and not take any considerations or back it up. I don't understand exactly what you're saying here but I don't need to back up what I say by citing research: I say things that are found in commonly known facts about science and medicine; anyone can go online and look for science that contradicts what I say.

I'm "preachy" because I know that RSD is IRI and I know that properly administered HBO can bring significant relief for almost everyone here. What should I do? Keep silent when I know something will help someone? Can't do that.

I guess that's all I have to say for now...Vic

Vicc,

I am guessing that when you feel up to it you will comment on my post and if you do I was wondering if you could comment on what you mean by 'properly administered HBOT"?
Have you experienced improperly administered HBOT?
HBOT as you know is a complex treatment that requires highly trained technicians, doctors and nursing staff to firstly to assess you for the treatment, to ascertain the timing and depth of the dive and then to medically supervise the dive. There are far too many restrictions in place here to allow for anything other than properly administered HBOT so I am wondering whether perhaps you work to completely different guidelines in the US?
Our medicare here requires each patient to have a proven hypoxic illness or wound caused by hypoxia or infection before they will ok the payment of treatment.
I know people who have been assessed with me who were knocked back for treatment as their TCOM (Trans cutaneous Oxygen Measurement) revealed no hypoxia in their tissue yet they have been diagnosed as having RSD/CRPS.
Can you possibly explain how you feel that this can be the case?
Thank you
Regards Tayla

Hi Curious,

I'm not surprised that you missed the one time I mentioned that tourniquet ischemia (TI) is surgical tourniquet ischemia. I just looked for that reference and couldn't find it; guess it got buried in the mass of words these three thread have become.

I didn't actually use the words surgical tounrniqueat ischema: I simply said something like iatrogenic ischemia followed by surgery. I was pointing out that IRI experts currently believe that TI, followed by surgery, is the only way one can develop this disorder. My argument with this view is that the known signs and symptoms of IRI and the predictive signs for RSD are identical, and the only the idea that TI is a prerequisite for an IRI stands in the way of linking the two.

IRI experts know that compression ischemia (CI) is the reason the disease spreads, and I take the position that CI (a part of the immune response to trauma), not only spreads IRI, but that it can cause it; that TI is NOT a prerequisite.

I probably shouldn't have even mentioned TI here, but I guess I felt it was necessary at the time. It is just a distraction at this point...Vic

Tayla,

Thank you for your diascussion of TCOM, I suspect it is known under another acronym here as I seem to recall a similar sounding test used in an experiment involving RSD patients. (Now I will have to look it up and learn whether it measures arterial or microvascular oxygenation: If it is the former, it isn't useful in understanding what is happening in RSD, but if it is the latter I might be a good diagnostic test for this disease).

The abstract you posted isn't really very useful as it doesn't contain any information about the dosage of oxygen or the atmospheric pressure (ATA) at which it was delivered. Both are critical in treating RSD.

I know that all modern folks call RSD, CRPS. but I think both taxonomies are unrealistic: RSD representing the discredited view that damage to the SNS causes this disease, and CRPS implying that this is only a pain disorder. Given that neither are accurate, I prefer the one that involves typing fewer letters.

Referencing your last reply: I am not prepared to get involved in a protracted discussion about HBO at this time, preferring to present my views in an organized manner in a single post.

Anyway, these discussions have already travelled far from their starting place: Steff's question to me and my reply to her. I don't want to get involved in another long discussion of something else. I'll try to limit my replies here to questions about what has already been introduced or to provocations I must refute. I want to get back to work on posts I've already promised...Vic

Vicc,

I respect the fact that you do not wish to answer my queries now but l look forward to when you can take the time.
I agree we have strayed somewhat from Steff's original post but as you have a new thread devoted to your hypothesis then I thought this was the most appropriate place to discuss things with you.
I do have one more query--you mentioned that the dose of oxygen and the ATA are critical in the treatment of RSD, I was wondering that seeing as the dose is always 100% oxygen the only differential being the ATA by what criteria do the doctors choose what ATA to use?
Here, unless you are lucky enough to have a chamber to yourself then that ATA is one that will suit the majority of the patients in the chamber.
I have had varying pressures for my dives depending on whether I was being treated for infection or my oedema and hypoxic tissue damage of RSD. The most usual being 2ATA.
Look forward to your response
Regards Tayla

Tayla,

If you're interested in what I have to say about HBO, please read Buckwheat's thread Vascular Issues. In it you will find nearly everything I will say in my intended post: They involve replies to questions and clarifications where necessary, and they aren't well-organized structurally, but the answers to the questions you ask are there...Vic

Thank you Vic,


There was something you mentioned that really concerned me and that was that in some states people could be flipping burgers then running HBOT
I find it unimaginable that your AMA could allow this to occur when this treatment in the hands of unqualified personel could be lethal.
Our HBOT centres do not run unless there is a physician qualified in hyperbaric medicine, 4 qualified nursing staff and a hyperbaric technician all in attendance.
I would recommend that anyone considering HBOT do not proceed unless these staff are present to handle any emergency that may occur.
Cheers all
Tayla