I don't know if there is an official definition of full-body. I have always thought I was "lucky" because the RSD seemed to be confined to my left leg and foot. As painful as it got, I had pretty good health/strength/pain levels everywhere else. This lasted for many years.

A couple of years ago, I started to get pain in my right leg, then my hands, then my shoulder. etc. Now, there are times when I hurt all over and any little trauma (like an injection or blood test) will cause a flare-up. I suppose that is what people refer to as full-body. It is almost a comparative thing.

I still have the worst pain in my left leg. I am not being treated any differently for the full-body, other than the SCS does nothing for any other areas.

I am still lucky because I have not had to quit my job (yet.) Good luck to you.

Mike

Hi Mike,

Yes, I'm lucky too. I also work FT. Mine is primarily in my left arm/hand/shoulder. Although, I have signs in my right arm. My legs burn occasionally too. But, they don't look like they have RSD.

When it's going to storm (like tonight) I'm absolutely miserable. I'm a secretary so typing with my left arm is horrible.

Today is just a hard day. I wanted to stay home because I hurt, but to make matters worse, I was just given a dictation to transcribe which should take me about 3-4 hours....

Can I kill myself now????

Thank you everyone for responding.

i looked everywhere and could not find a real definition of 'full body' rsd, but i did see that it was called full body and systemic interchangably on one study so that is what i had said to jules.
i also said who cares? if you have a little rsd, that is too much, and it does stress ones entire body mind and soul. i said it was like being a little pregnant ... ha!
and please don't kill yourself! my goodness, don't even joke about that.
joan

It doesn't sound (to me) like you have full body if it isn't in your full body, for instance, it is not in your back, chest/ groin, face, etc...

please see my other post in "When is RSD 'full body'?", here: http://neurotalk.psychcentral.com/sh...57&postcount=8

Lets not minimalize anyone's pain. We all know whats its like to be in pain and we don't want to make any one person feel like their pain doesn't matter or doesn't count.

Let's respect everyone's situation and realize we are all in the same boat. Pain stinks no matter how much or little you have. Let's support each other not tear each other down.


NOTE: Thank-you Vanessa for editing your post after I commented.

I agree with you Joan, any pain is too much pain!

Hi Everyone.

InHisHands, Yes, I have burning in my face, legs, shoulder (left) in addition to both arms. I didn't think that your comment was very polite.

Yes, any pain is too much pain and, to be honest, life is that much harder when you're in pain.

Why didn't you think that InhisHands comment was very polite?? Well, I for one didn't think she said anything wrong!! She was telling you the FACTS!! She is very ill right now and has a lot of pain going on. All she said was she didn't think that you had it. She should know, she does have it!!!Plus you asked a question and all she did was tell you the honest truth!!

Hey Desi,

I think we were both commenting on a post that is no longer there. Thats why I posted a comment about respect.

If I am incorrect about your comment DealingwithTos, please correct me...

Heather