Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 09-11-2007, 10:02 AM #1
Desi's Avatar
Desi Desi is offline
Member
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Desi Desi is offline
Member
Desi's Avatar
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Default

If I hurt anyone I am truly sorry. Thank you! love,~Desi
__________________
I Will Always Believe in Poems, Prayers And Promises
Love, Desi
.
Desi is offline   Reply With QuoteReply With Quote
Old 09-11-2007, 05:07 PM #2
HeatherAnne's Avatar
HeatherAnne HeatherAnne is offline
Junior Member
 
Join Date: Dec 2006
Posts: 38
15 yr Member
HeatherAnne HeatherAnne is offline
Junior Member
HeatherAnne's Avatar
 
Join Date: Dec 2006
Posts: 38
15 yr Member
Post

Yeah I have been surprised as well at some comments.

I think we should all be helping each other deal not belittling anyone for their pain or whether or not we have RSD in one hand or full body.

Pain is pain and it stinks for anyone who has it...
__________________
Heather

I found I could say things with color and shapes
that I couldn't say any other way...
things I had no words for
.-Georgia O'Keefe
HeatherAnne is offline   Reply With QuoteReply With Quote
Old 09-11-2007, 06:06 PM #3
dawn3063's Avatar
dawn3063 dawn3063 is offline
Member
 
Join Date: Aug 2006
Location: Southern California
Posts: 518
15 yr Member
dawn3063 dawn3063 is offline
Member
dawn3063's Avatar
 
Join Date: Aug 2006
Location: Southern California
Posts: 518
15 yr Member
Default

I would like to step in here and just say one thing. When someone apologizes for something that he or she has done and in my opinion Desi is one of our angles. That apology should be accepted and not overlooked by going on about how one another hurts each other.
If I began to tell you how many times words have hurt it wouldn't end. I am sorry that your thread was misunderstood but please move on.
Thanks
Dawn
__________________
Live Well, Love Much, Laugh Often
.
dawn3063 is offline   Reply With QuoteReply With Quote
Old 09-12-2007, 11:30 PM #4
Desi's Avatar
Desi Desi is offline
Member
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Desi Desi is offline
Member
Desi's Avatar
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Default

Thanks for your very kind reply that you said about me, you Dear "SWEET" friend of mine. I appreciate that so very much, Dawn!! Love ya lot's my good friend!! much ((Hugs, Dawn)) ~Love, Desi
__________________
I Will Always Believe in Poems, Prayers And Promises
Love, Desi
.
Desi is offline   Reply With QuoteReply With Quote
Old 09-13-2007, 11:54 AM #5
frogga's Avatar
frogga frogga is offline
Member
 
Join Date: Nov 2006
Location: UK
Posts: 830
15 yr Member
frogga frogga is offline
Member
frogga's Avatar
 
Join Date: Nov 2006
Location: UK
Posts: 830
15 yr Member
Default

I guess I see full body as every inch of me hurting, burning, with full colour change, spasms, temperature differences and swelling going on from time to time and of course alloydinia. I also have systemic difficulties from the RSD - I have already answered the other post 2 seconds ago so it's all there. However, I wanted to add that when I got RSD in one arm it sucked, now it is full body it still sucks. Pain is horrific to deal with wherever it is.. but I personally feel that the term full body refers to pain everywhere, and in my case organ problems as well.

We all have the right to have different opinions on this - everyones body is different as Tayla says, but I personally feel that full body =, well, full body!!

Just another bit... I guess having RSD already makes you more likely to develop it in other areas - and more likely for a spread to happen but it doesn't mean that it will spread and end up full body. If you look on this site there are very few people with full body RSD... hope this helps!!!

Love

Frogga xxxxxx

Last edited by frogga; 09-13-2007 at 11:56 AM. Reason: added a bit
frogga is offline   Reply With QuoteReply With Quote
Old 09-13-2007, 01:47 PM #6
dealingwithtos dealingwithtos is offline
Member
 
Join Date: Jan 2007
Location: Midwest
Posts: 192
15 yr Member
dealingwithtos dealingwithtos is offline
Member
 
Join Date: Jan 2007
Location: Midwest
Posts: 192
15 yr Member
Default Hi Frogga!

Thanks for your opinion Rosie. That's what I was looking for.

By the way, I did get your postcard. Thank you so much. What a surprise to get it in the mail!

I hope you're doing alright. I would love to hear more about your trip!

I've been horrible. I'm switching from Lyrica 600mg to Neurontin 3600mg and I'm in horrible pain and nothing seems to help. At night I've tried tramadol and oxycodone which I feel I could take like candy...

I'm at work dizzy, nautious, in pain but trying to keep a smile on my face.

Thank you again for the postcard.

Beth.
dealingwithtos is offline   Reply With QuoteReply With Quote
Old 09-11-2007, 06:11 PM #7
Desi's Avatar
Desi Desi is offline
Member
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Desi Desi is offline
Member
Desi's Avatar
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Angry

Quote:
Originally Posted by HeatherAnne View Post
Yeah I have been surprised as well at some comments.

I think we should all be helping each other deal not belittling anyone for their pain or whether or not we have RSD in one hand or full body.

Pain is pain and it stinks for anyone who has it...
[COLOR="Blue"]Ok.. ok.. why don't you leave well enough alone damn it!! I said I was sorry if I hurt anyone and you keep it up, so just go into your little corner now!! I am NOT a nasty person, but you just don't know when to stop do you?? ENOUGH SAID!! GezzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzDes i COLOR]
__________________
I Will Always Believe in Poems, Prayers And Promises
Love, Desi
.
Desi is offline   Reply With QuoteReply With Quote
Old 09-11-2007, 07:11 PM #8
lostmary's Avatar
lostmary lostmary is offline
Member
 
Join Date: Apr 2007
Location: fredericksburg, Virginia
Posts: 459
15 yr Member
lostmary lostmary is offline
Member
lostmary's Avatar
 
Join Date: Apr 2007
Location: fredericksburg, Virginia
Posts: 459
15 yr Member
Default

Desi, You-Rock

We all love you and know that you would never hurt anyone with words or otherwise. No more said...
I'm seeing my PMD on Monday. (after I spend the weekend going to see another Broadway musical. can't wait.. gonna see RENT>>>>) and I'm hoping to get my first block for my foot. What should I expect and what does it mean. any info would be great...

Mary
lostmary is offline   Reply With QuoteReply With Quote
Old 09-11-2007, 08:34 PM #9
Desi's Avatar
Desi Desi is offline
Member
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Desi Desi is offline
Member
Desi's Avatar
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Heart

Quote:
Originally Posted by lostmary View Post
Desi, You-Rock

We all love you and know that you would never hurt anyone with words or otherwise. No more said...
I'm seeing my PMD on Monday. (after I spend the weekend going to see another Broadway musical. can't wait.. gonna see RENT>>>>) and I'm hoping to get my first block for my foot. What should I expect and what does it mean. any info would be great...

Mary
Hello Mary!! And you Rock too sweetie!! So, your going to a Broadway musical??Rent?? hmmm.. I never heard of that one.. you lucky lady, you are!! can I come along?? LOL I had three SGB in my neck. I am going to be getting more, as I have a new PMD. I believe he wants to try a new medication and he will sedate me.He also wants me to start bootcamp PT up again! After I had it,(the blocks, that my old PMD did) since I wasn't drugged or given not even an asprin for it(well xanax) but I've been on those for years, so I'm used to it. I did feel a little dizzy for around 20 min. and after that, my throat hurt on the 3rd. one he gave me. when are you getting yours done? what kind of a block are you having? I hope and pray my friend that this gives you so much relief! Your a good friend, Mary.. don't ever change!! Love ya bunches!! Please let me know how your block went. Ohhhhhhhh.. I'll be waiting here for YOUR limousine to pick me up!! will it be "black tie"?? LOL Love ya!~Desi
__________________
I Will Always Believe in Poems, Prayers And Promises
Love, Desi
.
Desi is offline   Reply With QuoteReply With Quote
Old 09-12-2007, 07:25 AM #10
lostmary's Avatar
lostmary lostmary is offline
Member
 
Join Date: Apr 2007
Location: fredericksburg, Virginia
Posts: 459
15 yr Member
lostmary lostmary is offline
Member
lostmary's Avatar
 
Join Date: Apr 2007
Location: fredericksburg, Virginia
Posts: 459
15 yr Member
Default

desi,

More PT.. UGH.. Do you know what meds he is planning on using? Keep us posted after you see him.

The Limo leaves friday at 1:00pm. the show is Sat 2:00pm. Rent is all about love, loving and being loved no matter what. Also about friendship and illness. It is great. I saw it last time along with hairspary..awsome. Love them both

Hope the doc appt goes well.

love and friendship
mary
lostmary is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
IgA nephropathy in systemic lupus erythematosus. Sandel Autoimmune Diseases 0 07-26-2007 11:08 AM
Systemic Autoimmune Disorders in Celiac Disease jccgf Autoimmune Diseases 1 11-26-2006 08:04 PM
Systemic Autoimmune Disorders in Celiac Disease jccgf Gluten Sensitivity / Celiac Disease 0 11-26-2006 07:39 PM


All times are GMT -5. The time now is 04:11 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.