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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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If I hurt anyone I am truly sorry. Thank you! love,~Desi
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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Junior Member
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Yeah I have been surprised as well at some comments.
I think we should all be helping each other deal not belittling anyone for their pain or whether or not we have RSD in one hand or full body. Pain is pain and it stinks for anyone who has it... ![]()
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Heather I found I could say things with color and shapes that I couldn't say any other way... things I had no words for.-Georgia O'Keefe |
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I would like to step in here and just say one thing. When someone apologizes for something that he or she has done and in my opinion Desi is one of our angles. That apology should be accepted and not overlooked by going on about how one another hurts each other.
If I began to tell you how many times words have hurt it wouldn't end. I am sorry that your thread was misunderstood but please move on. Thanks Dawn
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Live Well, Love Much, Laugh Often . |
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Thanks for your very kind reply that you said about me, you Dear "SWEET" friend of mine. I appreciate that so very much, Dawn!! Love ya lot's my good friend!! much ((Hugs, Dawn)) ~Love, Desi
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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#5 | |||
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I guess I see full body as every inch of me hurting, burning, with full colour change, spasms, temperature differences and swelling going on from time to time and of course alloydinia. I also have systemic difficulties from the RSD - I have already answered the other post 2 seconds ago so it's all there. However, I wanted to add that when I got RSD in one arm it sucked, now it is full body it still sucks. Pain is horrific to deal with wherever it is.. but I personally feel that the term full body refers to pain everywhere, and in my case organ problems as well.
We all have the right to have different opinions on this - everyones body is different as Tayla says, but I personally feel that full body =, well, full body!! Just another bit... I guess having RSD already makes you more likely to develop it in other areas - and more likely for a spread to happen but it doesn't mean that it will spread and end up full body. If you look on this site there are very few people with full body RSD... hope this helps!!! Love Frogga xxxxxx Last edited by frogga; 09-13-2007 at 11:56 AM. Reason: added a bit |
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#6 | ||
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Thanks for your opinion Rosie. That's what I was looking for.
By the way, I did get your postcard. Thank you so much. What a surprise to get it in the mail! I hope you're doing alright. I would love to hear more about your trip! I've been horrible. I'm switching from Lyrica 600mg to Neurontin 3600mg and I'm in horrible pain and nothing seems to help. At night I've tried tramadol and oxycodone which I feel I could take like candy... I'm at work dizzy, nautious, in pain but trying to keep a smile on my face. Thank you again for the postcard. ![]() Beth. |
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#7 | |||
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Quote:
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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#8 | |||
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Desi, You-Rock
We all love you and know that you would never hurt anyone with words or otherwise. No more said... I'm seeing my PMD on Monday. (after I spend the weekend going to see another Broadway musical. can't wait.. gonna see RENT>>>>) and I'm hoping to get my first block for my foot. What should I expect and what does it mean. any info would be great... Mary |
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#9 | |||
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Quote:
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__________________
I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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#10 | |||
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desi,
More PT.. UGH.. Do you know what meds he is planning on using? Keep us posted after you see him. The Limo leaves friday at 1:00pm. the show is Sat 2:00pm. Rent is all about love, loving and being loved no matter what. Also about friendship and illness. It is great. I saw it last time along with hairspary..awsome. Love them both Hope the doc appt goes well. love and friendship ![]() mary |
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