Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-11-2007, 06:11 PM #1
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Quote:
Originally Posted by HeatherAnne View Post
Yeah I have been surprised as well at some comments.

I think we should all be helping each other deal not belittling anyone for their pain or whether or not we have RSD in one hand or full body.

Pain is pain and it stinks for anyone who has it...
[COLOR="Blue"]Ok.. ok.. why don't you leave well enough alone damn it!! I said I was sorry if I hurt anyone and you keep it up, so just go into your little corner now!! I am NOT a nasty person, but you just don't know when to stop do you?? ENOUGH SAID!! GezzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzDes i COLOR]
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Old 09-11-2007, 07:11 PM #2
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Desi, You-Rock

We all love you and know that you would never hurt anyone with words or otherwise. No more said...
I'm seeing my PMD on Monday. (after I spend the weekend going to see another Broadway musical. can't wait.. gonna see RENT>>>>) and I'm hoping to get my first block for my foot. What should I expect and what does it mean. any info would be great...

Mary
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Old 09-11-2007, 08:34 PM #3
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Originally Posted by lostmary View Post
Desi, You-Rock

We all love you and know that you would never hurt anyone with words or otherwise. No more said...
I'm seeing my PMD on Monday. (after I spend the weekend going to see another Broadway musical. can't wait.. gonna see RENT>>>>) and I'm hoping to get my first block for my foot. What should I expect and what does it mean. any info would be great...

Mary
Hello Mary!! And you Rock too sweetie!! So, your going to a Broadway musical??Rent?? hmmm.. I never heard of that one.. you lucky lady, you are!! can I come along?? LOL I had three SGB in my neck. I am going to be getting more, as I have a new PMD. I believe he wants to try a new medication and he will sedate me.He also wants me to start bootcamp PT up again! After I had it,(the blocks, that my old PMD did) since I wasn't drugged or given not even an asprin for it(well xanax) but I've been on those for years, so I'm used to it. I did feel a little dizzy for around 20 min. and after that, my throat hurt on the 3rd. one he gave me. when are you getting yours done? what kind of a block are you having? I hope and pray my friend that this gives you so much relief! Your a good friend, Mary.. don't ever change!! Love ya bunches!! Please let me know how your block went. Ohhhhhhhh.. I'll be waiting here for YOUR limousine to pick me up!! will it be "black tie"?? LOL Love ya!~Desi
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Old 09-12-2007, 07:25 AM #4
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desi,

More PT.. UGH.. Do you know what meds he is planning on using? Keep us posted after you see him.

The Limo leaves friday at 1:00pm. the show is Sat 2:00pm. Rent is all about love, loving and being loved no matter what. Also about friendship and illness. It is great. I saw it last time along with hairspary..awsome. Love them both

Hope the doc appt goes well.

love and friendship
mary
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Old 09-12-2007, 07:58 AM #5
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I will know what kinds of meds he is going to use when I go back and see him on the 26th. of this month, Mary. I know one thing for sure, this new PMD leaves it up to me, when I told him I wanted to be relaxed or sedated when I get the Stelliate ganglion nerve block done. My other PMD didn't want to give me anything!! I don't know what type of medication he is using for the block, if this is what you meant?? I know that you will need probally nothing for pain afterwards. But if you do hurt from it, tell him/her! Ok now, you went to see Hairspray?? OMG your so darn lucky, girl!! who-Hooo!! LOL I'll be ready for the limo before 2:00.. say 1:00 ish.?? LOL Love ya! Thank you so much for the well wishes mary! ~Love, Desi
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Old 09-11-2007, 11:25 PM #6
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Quote:
Originally Posted by lostmary View Post
Desi, You-Rock

We all love you and know that you would never hurt anyone with words or otherwise. No more said...
I'm seeing my PMD on Monday. (after I spend the weekend going to see another Broadway musical. can't wait.. gonna see RENT>>>>) and I'm hoping to get my first block for my foot. What should I expect and what does it mean. any info would be great...

Mary



Mary,
Do you know what type of block it is for your foot? I would love to share my experiences if it was one that I have had. I have had Bier blocks, lumber sympathetic blocks and facet joint injections.
Love Tayla
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Old 09-12-2007, 07:20 AM #7
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Tayla,
I'm getting a lumbar block. It is for my right foot. I fell a few months ago and broke the toes on that foot. It isn't healing, so my PMD feels that the rsd has started in on that foot. No need for the block (according to my doc) for my left foot as I've had rsd there for a few years. What should I expect? some say warmth,how long should it last? Did they give you anything for pain? looking forward to your reply.

Mary
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Old 09-12-2007, 07:55 AM #8
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Quote:
Originally Posted by lostmary View Post
Tayla,
I'm getting a lumbar block. It is for my right foot. I fell a few months ago and broke the toes on that foot. It isn't healing, so my PMD feels that the rsd has started in on that foot. No need for the block (according to my doc) for my left foot as I've had rsd there for a few years. What should I expect? some say warmth,how long should it last? Did they give you anything for pain? looking forward to your reply.

Mary

Hi Mary,
I have had multiple Lumber sympathetic blocks, some have worked well for quite a while and some have been quite short lived but I am always happy to have another go.
They will lie you face down and hopefully give you some light sedation so that you will actually sleep through the procedure.
I have had one without sedation and I found it just too hard to keep still as it was painful just lying that way.
They should use fluroscopy/image intensifier to find the sympathetic nerve so as to maximise the relief.
When you wake you will probably feel a very warm sensation in your leg. It will probably look quite pink too, this is a sign that the anaesthetic has hit the right spot.You will often have a numb pubic area and parts of your upper leg maybe numb to touch. Walking is usually not affected unless you have had a very generous block that has hit the motor nerves also.
There is some discomfort on your back where they insert the needle and sometimes a bruise but compared to the pain we aare used to it is usually quite easy to manage.
Sometimes the pain relief is not immediate, don't despair if you feel no change, it can take a day or so before it kicks in.
I wish you all the best with your block, look forward to hearing how you go.
Cheers Tayla:

addit--My Pain doctor injects lignocaine into the block, he once included some steroid but only the once

Last edited by tayla4me; 09-12-2007 at 08:09 AM. Reason: read Desi's post and realised I forgot to answer a question
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Old 09-12-2007, 01:53 PM #9
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Quote:
Originally Posted by Desi View Post
[COLOR="Blue"]Ok.. ok.. why don't you leave well enough alone damn it!! I said I was sorry if I hurt anyone and you keep it up, so just go into your little corner now!! I am NOT a nasty person, but you just don't know when to stop do you?? ENOUGH SAID!! GezzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzDes i COLOR]

Desi, it wasn't you that we were commenting on, we think you were completely fine at the comments you said. Just FYI.. I think everyone is confused at the point we were making but it wasn't at all about your posts...
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Old 09-12-2007, 08:33 PM #10
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Quote:
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Desi, it wasn't you that we were commenting on, we think you were completely fine at the comments you said. Just FYI.. I think everyone is confused at the point we were making but it wasn't at all about your posts...
Again, Heather.. don't want to start any trouble here, but I did NOT post a comment on this thread!You mentioned that I was completely fine with my comment? I for one am not confused, just looking out for a very good friend(InHisHands) .. I sure hope you were not commenting on InHisHands comment?? If so, she is very ill and still managed to post a really great reply, and I for one just love her and will stand by her, as she is very close to my heart.she would never hurt you or anyone else by her well meaning comments, just so that's all cleared up. All the best~Desi
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