Hi flippnout,


I know of 2 people who have RSD/CRPS as a result of a simple venepuncture prodecure for routine bloods.
I would have thought that this would constitute the diagnosis CRPS Type 2 as they were told that the pathology staff had in fact damaged the nerves in the cubital fossa and yet they both have been diagnosed as CRPS type 1
Is it any wonder there is such confusion amongst us.
I do know however that these people have had major improvements from stellate ganglion blocks and ketamine infusions, one having gone back to work with just a tiny patch of pain in the originalinjury site.
This is a disease seems to have it's very own agenda in each and every body it chooses as it's host.
Regards
Tayla

oops...have to try again

I am making a request for this discussion to remain *on topic* and *within the guidelines*, which means NO personal attacks or flame posts please.

This is not singling anyone out as it is evident that more than one person is becoming personal in their comments instead of keeping the debate objective

I have removed one post and I am about to edit others that are found to contain flame comments

I would greatly appreciate everyone's co-operation on this

We want to allow open debate and discussion here, but we simply cannot overlook the guidelines in doing so.

thank you
Cheri

Dear Chemar,

I have 3 son's that are very close the fights at times were unbelieveable. But they care about each other very much. Much Love, Roz

Roz

perhaps if you could read the MANY reports and VERY irate PMs we are receiving on all this you would understand that maybe others dont see this as you do

When violations of the guidelines are reported to us, we are obliged to act within those guidelines

I repeat, flames and personal attacks will not be permitted here.
Civil debate and discussion will



thank you
Cheri

ok
I am back from having to rush out to take care of a very important business thingy....

I really do want to post on a lighter note because I care, as does the whole admin/mod team, about all of you and for you to feel comfortable and honest in your posting here.

We are honestly not trying to restrict free speech here, even when it becomes a bit heated.

We stay out of most discussions, even tho they may get a bit heated at times.
We value exchange of ideas and information, and rely on you, the members, to apply your own knowledge and experiences, or research articles , etc to agree with or refute other comments posted.

That is healthy debate.
Disagreement while remaining objective rather than subjective in comments

When things take a personal turn, and posts are perceived as attacks or written in a flaming manner, and when we get reports and PMs, we discuss things on admin as much as possible and reach consensus, having looked at as many aspects and views as possible, and when we act, we act in accordance with the very reasonable guidelines that DocJohn has in place.

Those guidelines really arent harsh or restrictive...they are really just guidelines most of us apply to our everyday life....to be respectful of others and treat them as we would hope to be treated.

We really dont intervene a lot, and do try to allow a lot of leeway ( the guidelines are not written in stone )

but when other members of the board, report a post we have to look, evaluate, and act as admin decisions is made.


Of course we cant all be expected to agree, or even to like one another.
But it isnt unreasonable to expect to be treated respectfully by those who disagree with us.
We all have the right to be treated within the guidelines here, just as we have to abide by them.

This is a board filled with highly intellectual and also very caring members.
Let's see these debates reflect that.

with respect and care for all members here
Cheri

Dear Tayla,

Just a thought but why did your 2 mates need to have blood drawn in the first place. Hugs, Roz

Tayla4me,
I hope you are ok today! along with everyone else out here
That is my point there is so much confusion of this horrible moster we all have here. There has to be a study done and try to come up with a conclusion to this, otherwise I feel some docs do not take this monster as being there instead you have some docs who say it is a junk diagnosis.
That is why it is COMPLEX REGIONAL PAIN SYNDROM too complex for me, that is why I trust my doc I have now. I say find a doc you trust and knows of RSD/CRPS and go from there, I'm sure we all agree there, if some of you do not have a good doc yet I hope you find one soon. Try going to your teaching hospitals connected to a Uni. thanks

Hi Roz,

One was for a pregnancy test and the other for Thyroid function tests.
Just normal everyday stuff

I have blood drawn very regularly and whilst I must admit I am usually quite nervous, I have never had a problem from it (so far)
Take care Roz
Tayla

Tayla,

One of your more recent posts piqued my curiosity so much that, even though I think it unlikely you will answer, I have to ask a question.

You wrote: ...when I read the research of many very learned people who have spent years developing the theory behind the cause of RSD/CRPS then I tend to find comfort from the consistancy from these people. It also makes good sense to my level of understanding.

Can you tell me which theory you agree with?

Do you agree with the one that claims that RSD results from a peripheral nerve injury?

Or do you agree with the theory that this disease is caused by damage to nerves in the sympathetic nervous system?

Or do you agree with the one that says RSD begins with a peripheral nerve injury that completely heals, leaving no symptoms, which are then assumed by the central nervous system?

Oh, yes, and if you think they all make some sense, can you explain how you find consistency between these three competing explanations of RSD?

(Added later) The reason I doubt you will answer this is that you have not yet answered an important question I asked earlier on this thread:

Since it appears to be widely accepted that CRPS-I (the overwhelming majority of RSD cases) is NOT caused by nerve damage, why do you insist that it is?