Hello Guys Kimmie is back!

I woudl love to hear from all my Old buddys and hear from New Friends.
Can we ntroduce are selfs. I'll start

Hey guys

its Kimmie here don't know if you rember me I don't post alott mostly
just watch.

I was ina head on collision car accident.
(L) Carpultunnel surgerys x 2
(R) Carpultunnel surgery x3
I have had 2 surgerys on the (R) side scalemenectomy, 1st rib resection "98"
I have had 3 surgerys in my (L) side 1st rib resection, scalenectomy, 1st rib resection Jan. "99" 7 months later. removel of Bone spure, redue
sympathectomy witch was very very painfull I don't recomend it., "2003"

BAck fusion surgery ALIF "2004" digenitive disc. L45-S1
I also had to have a Pota-Cath placed because when they go to draw blood they don't get any. Do's any one else have the same thing.???

I have Thoracic Outlet Syndrome sence 1997
I only had RSD sence 2003

Kimmie

My real name is Mark and I can't spell

Will be 43 the 14th of October

I love running naked as often as I can. Why? Because I can barely walk. If I can run I'm gonna do it as often as I can!!! Plus I love being naked!!!!

I am a Airline Human Resources/Personnel Director (I just lost my job because of my RSD/CRPS)

I was in a head on car collision on 30 June 2000 at 1:38pm. It was her fault but I lost my law suit because she had a great deal of money and my lawyer sucked. Oh well!!!

I was diagnosed with RSD/CRPS shortly after the accident following my first surgery.

Have had four hand surgeries, Two spinal surgeries and a spinal cord stimulator implant installed. (Makes me sound like a car don't it)?!.

None of the surgeries helped I suffer from the worst case of pain you can imagine from the top of my head to the bottom of my feet 24 hours a day 7 days a weeks. I take tons and tons of very colorful pills like the colors in Crayola Coloring Boxes.

I was recently diagnosed with Peripheral Neropathy of my legs and feet just to add insult to injury!!!!

I love everyone on here even if I do not know you. And if you get out of line I'll sick some of the women on ya!

That's it in a nutshell. Chin Up!!!!

Mark

Hello

Happy B-Day its my Birthday also October 14,1971

cool!

kimmie

Hello fellow Libras: Happy birthdays Kimmie and Mark. My grandson's birthday is October 9, my brother in law's is the 10th, mine is the 11th, and my son's anniversary is the 12th. My sister celebrated her birthday the 2nd and my nephew's is the 3rd. My family inhales a lot of candle smoke and eats a lot of cake in October.

Now the requested profile:

I will officiallly become a Senior Citizen next week. Whoo Hoo!!!
( It will be OK for me to be cantankerous and outspoken. I can't help it.
I am a Senior Citizen and nobody can do a thing about it.)

I have two grown sons and four grandchildren.

I live with three dogs and one cat. I am going to weave a rug out of pet hair as soon as I can find a loom real cheap.

I used to be a shoe person. (You ladies can relate.) I had many pairs and loved wearing heels. Now I have only one pair of ugly black oxfords that I can wear. No more business suits either, just loose fitting polyester pants with wide legs to accommodate my brace. I really look the part of the "little old lady".

I love the outdoors and go outside as much as I can. I live in a rural area and have deer, possums, racoons, and so forth in my yard every day. I am not too happy with the squirrel that has taken up residence in my attic, though.

I am so glad I have met the wonderful people on this forum. Being able to come here has helped me through many rough parts on this RSD road. Finding people who really do understand what we feel is a blessing.

Regards, Lil

Diagnosed with CRPS II, right upper extremity 12/99, after what doctors belived was a gig with repetitive strain and tendonitis of the right thumb and wrist. Shortly after a frozen right shoulder and RSD continued to consume my arm to my shoulder. To date, I have had a spread to the left arm.

I found BT, early, when I logged on to the Repetitive Strain injury board for my mystery pain. It was a very short distance down when my doctors mention RSD. I've been a member of BT since 2000.

Early, 2000, atrophy set in so hard that I had absolutely no movement in my fingers or wrist. I've had so many SGB's and now epidurals I lost count. I consider myself lucky that this form of treatment continues to keep my pain at a tolerable level and I hope limits my spread to other parts of my body. I've also had two 5 day continuous epidurals. This is where I stayed in the hospital for 5 days and the meds were run for the full 5 days. This treatment held me pain free for not only the 5 days but a considerable amount of time after.

I'm truly grateful for BT and to JL. What he provided to me was a place where I met others who knew exactly what my pain experience was. And now to DocJohn and ZS for BT2. Where I think I may stay.

At this point, whether it's BT1 or BT2, I adore my many friends. The knowledge of the group as a whole is abundant. The support is unmeasurable. Their endurance is unforgettable! Their ability to fight this unbearable disease and for the most part keep a smile on my face when I'm down and out...well this is what a friend with RSD is all about.

I thank you all today, tomorrow...and of course...forever.

Aloha, Dana

Hello I am flippnout lol I have found this sight and other helpful in learning about my conditions.
I have three wonderful kids, 2 boys and a girl who care about daddy and want my pain to go away so I do not have to see doctors anymore. They worry so much when I haft to go see my docs I tell them it is ok, they think now I might haft to stay in the Hospital for awhile again like with surgery for my tos and sympathectomy.
I was hurt at work and had shoulder surgery for impringments, bone spurs and a mumford. Still had pain wich kept getting worse as time went on could not use my right could not lift my arm above chest, was told by WC docs nothing wrong, making it seem like it was all in my head, as I just kept hurting told by them go back to work.
I couldnt and would not let them push me around so I found my own docs to help me a well known Nuero Vasc, a well known Ortho, and pain managment doc, I'm lucky to live close to a great teaching Hospital. I had test run for CRPS found out I had it in shoulder and arm, also I had TOS.
Had surgery 21 days ago for TOS and for a sympathectomy both done at same time. I feel my RSD has spread to chest and hand and feet now doc says wait a few more weeks to heal it is nerves still aggravated from surgery, mean while orderd blood work and a doppler to be done.
So mine is a ongoing story I am happy to find this site and meet all of you.
I have a long road ahead of me to recovery doc says and I agree,but at least I have other who know my pain. I would use my name but stuck in WC world so it just flippnout saying HI!

Hi to all! My gosh did I miss the advice and knowledge I received in the past. I posted in the past as Tiff16. I didn't post a lot as I felt I didn't have anything to offer. But perhaps if nothing else you will know I am here for any support I can give. And maybe a laugh or two in the process...
Try to make it a short profile:
I am 33 years old, I am married with one dog, work as a secretary until 12/1, then my job will not let me work anymore. I am trying to file disability through work. We will see what happens with that.
I have not officially been diagnosed with RSD but at the pain clinic I am going to they have said, "Looks like RSD... It is RSD... If I had to diagnose I would definately say RSD". So I ask is it RSD and they say "We only treat pain here, we do not diagnose". So I kinda stuck in limbo. I have had one surgery on my left elbow (ulnar nerve) and two on my right elbow. I recentely found out they cut a nerve in the last surgery which was 8/2006. That surgery was after plenty of ice and casting.
Now I am worse then ever. I believe it has spread to my left elbow, both wrists and hands and my right foot. I do have many of the symptoms of RSD but trying to get a diagnosis is so hard where we live and with the insurance that we have.
I am just trying to hang in there, keep my sense of humor and stay strong.
You definately don't know what you have until it's gone. I always felt so much support from you all and you understand what I am going through. It is so hard to try to make others understand. My husband really tries but he just can't and he knows he can't. It hurts him so that I am in so much pain and he can't make it better. I tell him just being together, close, him listening and trying to understand is all I ask for.
Well, so much for the short post, huh? OK, so I babble sometimes... If you have made it to the end of this post I congratulalte you! And thank you!!
Hope everyone has as happy a day as possible!!

well, i'm 38, married, and thanks to my employer I still work. I work for a Trinity Hospice, no longer as a field nurse, i'm in the office now, on the phone with Dr.s all day (but it's still something to keep my mind of my problems). Dx in 93 after a patient with alzheimer's hit me with a cane to my right knee. Now have RSD total right side, left side from hip to toes. Working on my 3rd spinal pump and 5th SCS. I make by on the theory that laughter is the best medicine, and in my line of work you have to believe that. I've been a member here since 2000, under Dolphin and foreverdolphin. The advice you've given over the years has been wonderful, but more then that, i've always had a shoulder to cry on here. Not that I need it very often, but it's nice to know there are people in this boat with me. I truely care for all of you.

Im glad to be back in touch with everyone, and the caring informative site is alive once again.

I will squish 6 and a half years into a few paragraphs I hope.

I was the Marketing Director for a casino, and at the time also interim Food & Beverage Director, and interim Network Administrator. I loved my job tremendously, and worked long hours holding down all 3 positions. They kept promising replacements, but it was ok with me that they were dragging their heels because I had complete control of every marketing event that I could dream up. It meant success was a sure bet when I controlled the main departments that counted when it came to pulling off an event.

RSD started for me when a doctor, or someone under a doctor accidentally blocked the femoral artery in my right leg. It was blocked for 8 days before I had surgery to remove the clot they put in my leg following an angiogram. I was deemed healthy as a horse, except for the little piece that got away, and lodged itself in the top part of the calf.

They couldnt recover the clot, but told me leaving it wouldnt be as bad as going after it. Doctors wouldnt believe there was anything wrong with my leg, but sent me for back surgery in 2003, but the neurosurgeon came in and said that they couldnt find anything wrong with my back, but have I ever heard of RSD?

Then the tests really began, all showing dead nerves, and muscles in the right leg, and so far the pain is crazy. I started complaining that the pain was in my shoulder now also, but the doc didnt care at all. This summer I realized I could put pressure on the shin bone with my finger, and leave a dent that would last 2 to 3 days. The doctor freaked when I showed her. She took blood and urine samples, and put me in physical therapy immediately.

The PT guys have only hurt me worse so far, but I will stay at it for a while more, but be more vocal about what I will or will not do. Also have had some of what I thought were heart related issues, but also turned out to be RSD.

I applied for SSI/SSDI about 3 years ago I think, and am now at the appeals council level waiting on their decision. If it wasnt for some people on this forum I truly wouldnt be here right now. They talked me out of suicide, and have also helped me out financially. They truly are blessings to me, and I pray special blessings for them daily.

Let's see, I started posting somewhere in 2003 I think, and I feel like everyone is family, and man it is good to see all of ya!

Love
Allen

I was diagnosed with CRPS type I and II in October of 2002. This was after two failed carpul tunnel surgeries on my right had (which were done three weeks apart) in Feb of 2002. I complained for 8 months and told to "live with the pain" by several docs.

I finally found the worlds most compassionate pain doc in late September of 2002 who immediately started doing upper body blocks. 17 of the from October 2002 to February 2003.

Feb 03 I had the trial SCS implanted (still working at that time too - I was a network engineer). It worked wonders and I really wanted off the Oxycontin! May 2003, the perm SCS was implanted, and I soon was weaned off all the pain drugs and the nightmare Neurontin.

In Oct of 2003, I was "laid off". I won't go down that road right now. I found BT in Feb of 2003, and everyone was so nice (still are! ). I knew then that I was not alone with this RSD.

Here I am now, moved to the Western WA area (from TX) over two years ago, and I have had a wonderful job (software developer) since I moved here. I divorced my rotten husband in TX in 2004 before I moved here. I soon met a wonderful, understanding man, here in WA, and we have been engaged for the past year.

My RSD is still pretty much in remission. I have only used 20% of my battery life in the past 3 1/2 years, and I am going strong. I cannot walk long distances (due to two squished discs - L3-L4 and L2-L3 - another story), but I seem to hold my own when we venture out to Mt. St. Helens or just the mountains surrounding this wonderful area. I only turn on my SCS when I have RSD knocking at my door. Which, for now, is only about once or twice a week.

Oops, sorry, this turned into a long post

BTW - I will be setting up the Christmas card exchange again this year.....in the next couple of weeks

((((( gentle hugs to all )))))

Shanin