Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 09-27-2007, 11:04 AM #1
frogga's Avatar
frogga frogga is offline
Member
 
Join Date: Nov 2006
Location: UK
Posts: 830
15 yr Member
frogga frogga is offline
Member
frogga's Avatar
 
Join Date: Nov 2006
Location: UK
Posts: 830
15 yr Member
Default Pain pump

Agh..

I've got an appointment in London tomorrow to discuss a pain pump - any ideas - I am trying not to get too excited about it but hopefully it would help. I will HOPEFULLY if the dr agrees be able to get either a morphine/ baclofen pump or a ketamine/ baclofen pump.

Only slightly worried that the drs won't let me have one because either I'm too young for it (21) or that I have had such bad reaction to previous surgeries. Grr.

So... any advice needed!!

Love

Frogga
frogga is offline   Reply With QuoteReply With Quote

advertisement
Old 09-27-2007, 12:19 PM #2
sue k sue k is offline
Member
 
Join Date: May 2007
Location: Western MA
Posts: 272
15 yr Member
sue k sue k is offline
Member
 
Join Date: May 2007
Location: Western MA
Posts: 272
15 yr Member
Heart

Frogga,
I don't have a pain pump. They couldn't do it because if I get an infection it would eat away at the hip replacement. But people i've talked to have one and are very happy with it. If you get one I hope it works well for you.

Sue K.
sue k is offline   Reply With QuoteReply With Quote
Old 09-27-2007, 03:21 PM #3
kejbrew kejbrew is offline
Member
 
Join Date: Feb 2007
Posts: 129
15 yr Member
kejbrew kejbrew is offline
Member
 
Join Date: Feb 2007
Posts: 129
15 yr Member
Default

Frogga,

The end of November my pump will have been in for three years (and I would do it all over again in a heart-beat). The evaluation process to determine my candidacy was methodical and very thorough; ending in a trail after it was decided that I was a good candidate. The stated goal of the trial was to achieve a 50% pain reduction, and I loved the relief the trial provided.

Your age will not matter if they determine that you qualify for the pump. If your experience is anything like mine, quality of life will be greatly improved. At the same time maintaining realistic expectations are key to this or any other treatment modality.

Please feel free to PM me if you want to further discuss the pain pump option.

Best regards,

EJ
kejbrew is offline   Reply With QuoteReply With Quote
Old 09-27-2007, 03:23 PM #4
LMJunior LMJunior is offline
Junior Member
 
Join Date: Jan 2007
Location: New Jersey
Posts: 71
15 yr Member
LMJunior LMJunior is offline
Junior Member
 
Join Date: Jan 2007
Location: New Jersey
Posts: 71
15 yr Member
Default Hi Frogga

Hi Frogga,
I just read your post today and wanted to wish you Good Luck tomorrow at the doctors. I hope you can get the pain pump so you can get relief soon. Take care I will keep you in my prayers.

(Lmjunior)

Laraine
LMJunior is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Pain Pump? Good Idea? Harryinny Chronic Pain 15 10-19-2011 05:32 PM
Intrathecal Pain Pump causing strokes? Cheyenna Stroke 3 11-05-2010 08:38 PM
pain pump AJSG Reflex Sympathetic Dystrophy (RSD and CRPS) 12 03-13-2007 12:12 PM
Baclofen Pump spoons Multiple Sclerosis 8 10-16-2006 05:53 PM
Arachnoiditis and Pain Pump ?????? Junie Spinal Disorders & Back Pain 2 10-12-2006 05:44 PM


All times are GMT -5. The time now is 05:56 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.