Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-10-2007, 07:53 PM #11
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Default Hi,

I saw my Dr. today and got my prescription for the clonidine. I will pick it up tomorrow. Keep your fingers crossed that it helps the sweating.

Thanks so much for the advice.

Ada
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Old 10-10-2007, 09:03 PM #12
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Ada,
I got one over on you *L* I can come out of a shower sweating. no kidding. I haven't taken a shower in warm or hot water in years. And if I actually do lather up using warm water, I end up turning it to cool water to cool my body down before I get out to towel dry. Then like I said before I finally get finished driessing I am sweating again. So yes it is miserable.

Thanks for your post on my thread. I had to distract myself a bit from all that is going on.

DebbyV
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Old 10-10-2007, 09:28 PM #13
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Default Hi Debby,

I think we are about even on that one. I actually do the same thing. If I get my water too hot in my tub, I am running cold water to cool me back down. My swamp cooler is in the hallway by the bathroom door and I actually keep it running while I am taking a bath to keep cool then when I get out of the tub, I am turning it off to warm back up. What a mess, huh?

I am sitting here now with the fan going on me and it is about 50 outside. It's cold in here but I still have that fan going. I was lucky, one of my fans went shot last week and another one is going. I still have 2 more though. I have one in every room. I have tv's in every room and if I am watching tv in one room I have to turn the fan on me to watch it.

When I went to the Dr. today, I started getting to hot and my nurse got me some ice water and by the time my Dr. got in there I was freezing. He was going to turn the air off for me and I told him no, just give me a minute and I'd be burning up again.

We were talking about Bill today. They were good friends. Bill always told him that I was freezing him at night. He was laughing about how opposite Bill and I were. We reminise about him every once in awhile. I did freeze him out every once in awhile.

I do know what you are talking about girl about trying to get your mind off of your loss. I was that way when I lost Bill. I came on here to talk to everyone here. I hope it gets easier for both of us in time as I do for DiMarie. We all have a long road to go yet, I know that.

I do hope you get some rest tonight Debby. It's hard I know but you have to get rest to be able to keep going.

Ada
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Old 10-11-2007, 08:49 AM #14
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All I can say OMG Im not alone!!

I have had this crap going on since the begining of my RSD deal. I thought it was the birth control i was on bc i am on it continuosly so i dont get a cycle and just blew it off as hormones, welll this summer I started a shot that just shuts down the ovaries and no hormones involved at all.. and thouhgt ok this will be good now that summer is here and i can enjoy some heat... WRONG!! so they blame it on my RSD i guess from what you guys are saying. I wake up sweating and need to head right for the shower bc im soo sweaty and I sleep with the ac and a fan blowin rihgt on me!! ANd during the day.. its 50-s her now and still have the ac on and fan blowin on me and sit in the living room with a hand fan blowing bc im soo darn hot. I get so hot at times that it gets me sick!! I can feel the hot flashes come on and face gets almost purple and its either get cooled down or else i iwll be sick. I have my secrets spots to get cooled off in.. like at walmart .. i pretend to look for veggies or ice cream just to get the coolers to get me cooled off... i even got a trick that bc summer was here it helped when i got hot to take my flip flop off and walk bare foot in the stores.. cool floor... lol.

Im just glad its not me!! i wish there were things that we could put in our purses or whatever, to make it get cold and we wouldnt have to refreeze them... like those hand warmers... I also put my pillow cases in the freezer when i get bad so i can sleep on a cool pillow... puts me right to slepp too!!

OK.. enough ramblin.. lol

Amber
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Old 10-11-2007, 09:24 AM #15
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Default holy moley....

i can't imagine what it would be like to WANT to get cold......lol.....
i went through the hot flashing crap, sweating, and feeling sick to my stomach..............i started taking my hormone pills and it really eased up some............i still get a few hot flashes daily, or if frank touches me, i instantly get one...(he insists he is HOT STUFF) LOL
But normally i am freezing......i wear my winter robe all day indoors when the air is on.even go outside with it on....myneighbors think i am nuts..........:P.......and i have an afghan on top of my legs............
i hate the grocery stores......can't imagine heading to the freezer section to cool off....laugh...i stay way far away from those aisles........frank has to get stuff out of them for me.............
he used to be really hot too, but since this horrible past year and a half, he enjoys the heat now.............
we are heading south soon, so i will be soooooo happy to not see any snow this year...........
take care ada...........good talking with ya last weekend..............
debby, i totally understand your need to distract yourself...........we are here for you whenever you need us..........
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