Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 10-02-2007, 04:32 PM #1
lostmary's Avatar
lostmary lostmary is offline
Member
 
Join Date: Apr 2007
Location: fredericksburg, Virginia
Posts: 459
15 yr Member
lostmary lostmary is offline
Member
lostmary's Avatar
 
Join Date: Apr 2007
Location: fredericksburg, Virginia
Posts: 459
15 yr Member
Shocked Getting the SCS

Wow

What a day. Just found out that I am getting the trial scs on Oct 17th. Also getting the block on Monday. Now I'm rushing to get a phych eval (getting it tonight at 7.00pm), and an ekg. I thought I would have more time to get things going. What a afternoon. right now I'm gonna get ready to go to see the shrink. Have no idea what to expect. I just know I'm soooooo tired. I must get all this stuff taken care of. The trial gets implanted about noon on the 17th. I need to be there by 9;00 am to meet with the ans rep and the team. Fun fun...
be back later.

Mary
__________________
There is no future, there is no past, we must make each moment last
lostmary is offline   Reply With QuoteReply With Quote

advertisement
Old 10-02-2007, 05:50 PM #2
dawn3063's Avatar
dawn3063 dawn3063 is offline
Member
 
Join Date: Aug 2006
Location: Southern California
Posts: 518
15 yr Member
dawn3063 dawn3063 is offline
Member
dawn3063's Avatar
 
Join Date: Aug 2006
Location: Southern California
Posts: 518
15 yr Member
Heart

Mary...
I bet you will do just fine tonight...
Wow,It looks like your gonna beat Desi and I to the stimulator...

Many Hugs
&
Dawn
__________________
Live Well, Love Much, Laugh Often
.
dawn3063 is offline   Reply With QuoteReply With Quote
Old 10-02-2007, 06:21 PM #3
InHisHands InHisHands is offline
Member
 
Join Date: Dec 2006
Posts: 808
15 yr Member
InHisHands InHisHands is offline
Member
 
Join Date: Dec 2006
Posts: 808
15 yr Member
Default

I hope and pray it goes well, Mary!!
InHisHands is offline   Reply With QuoteReply With Quote
Old 10-03-2007, 07:23 PM #4
wakegirl wakegirl is offline
Member
 
Join Date: Aug 2007
Posts: 119
15 yr Member
wakegirl wakegirl is offline
Member
 
Join Date: Aug 2007
Posts: 119
15 yr Member
Default sorry i missed this yesterday

the psych evals i have had werent that stressful mostly they are just trying to make sure that you will be able to handle the stress of the process. i think they pretty much expect all of us to say we are depressed (who wouldnt be ). one i went to was a real stickler about how i had handled the change in my life menatlly...the whole did you drink, do drugs, try to kill yourself...have you maintained family ties, social bonds. i had him a little concerned and had to have my shrink talk to him (apparently he was concerned because i was so unfazed by the whole thing) of course he never asked me when i was first diagnosed and didnt bother to find out the fact that i was an athlete that managed to get hurt regularly.
the first guy had me fill in like 130 little circles (like the SATs all over again...now that stressed me out).
the second psych eval was much better (better doc better shrink...go figure) he basically talked to me for about an hour and a half and had no concerns about me having the trial or the permenant.
anyway i hope things went well for you i know the entire process especially when it happens so quickly adds stress and pressure to the proccess.
i do have one question what area is your stim going to cover (and which system has your doc chosen) it makes a big difference in comfort after the procedure, the time it takes to heal, and in mho how effecive the stim is
__________________
rsd following a botched epideral for knee surgery 1993
remission from 99-2003 shoulder dislocation 2003
CRPS Type 2 scs (cervicle 2005) (lumbar 2007)
Strong mind Strong body
.
wakegirl is offline   Reply With QuoteReply With Quote
Old 10-03-2007, 08:34 PM #5
lostmary's Avatar
lostmary lostmary is offline
Member
 
Join Date: Apr 2007
Location: fredericksburg, Virginia
Posts: 459
15 yr Member
lostmary lostmary is offline
Member
lostmary's Avatar
 
Join Date: Apr 2007
Location: fredericksburg, Virginia
Posts: 459
15 yr Member
Default

wakegirl,


The eval was ok. I spoke to him about an hr last nite, and today took the paper test. There were about 700 questions. Talk about being embarrassed. I did the test, (fill in circles) and left and went shopping etc. got home there was a message from the office that I forgot to answer the last 15 on the back of the page. Oh well...I'm getting a ANS system, and it is going to be for my feet and legs. both sides. I'm so excited about getting it. how did you do? how long to heal? how long before you could do anything normal...My best friend in OK called and she is going to come out after the perm on gets put in and help me. Hubby wants to do it all himself. I'll have her come out after about the 2-3rd week. I have horses here and she will help me with them. I don't know how long I'll have to wait to clean the stalls and feed them and all, but I'll follow the docs instructions and do as I'm told. I am going to ride before the trial tho. somehow, I don't think I'll be able to ride after I get it implanted. You can PM me if you like with any advice etc.

Mary
__________________
There is no future, there is no past, we must make each moment last
lostmary is offline   Reply With QuoteReply With Quote
Old 10-03-2007, 10:02 PM #6
HopeLivesHere HopeLivesHere is offline
Member
 
Join Date: Sep 2006
Posts: 292
15 yr Member
HopeLivesHere HopeLivesHere is offline
Member
 
Join Date: Sep 2006
Posts: 292
15 yr Member
Default

Hi Mary,

My b-i-l has been in pain for 7 years, the last year he was bedbound.

He had a SCS put in a month ago for both legs also.

He had to wait 2 weeks before they turned it on, paddles had to scar in place

He had instand relief. He's been going to the gym and on the treadmill for the past 10 days...even asked to go out to breakfast for the first time in 7 years.
His depression lifted right away.

I hope yours goes this well !!
HopeLivesHere is offline   Reply With QuoteReply With Quote
Old 10-04-2007, 12:25 PM #7
tayla4me tayla4me is offline
Member
 
Join Date: Feb 2007
Posts: 486
15 yr Member
tayla4me tayla4me is offline
Member
 
Join Date: Feb 2007
Posts: 486
15 yr Member
Default



Good luck with your SCS Mary,
I hope you soon have some good news for us all.

Cheers Tayla
tayla4me is offline   Reply With QuoteReply With Quote
Old 10-05-2007, 11:57 PM #8
Desi's Avatar
Desi Desi is offline
Member
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Desi Desi is offline
Member
Desi's Avatar
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Default

[COLOR="Blue"]Of course, I am sending ya huge((Hugs, Mary))) that everything works out very, very well for ya!! Until then, be careful riding your horses before you get the SCS, I am happy knowing that you have a friend that will be coming to help you out with your beloved horses. I am so excited for you getting the SCS and know you will benefit so much from it, as you will be well on your way to some pain free "ouchies" `Love, Desi
__________________
I Will Always Believe in Poems, Prayers And Promises
Love, Desi
.
Desi is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 02:08 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.