Hi there
A couple of (not so) quick questions
Baclofen
My daughter has RSD in her left leg and right arm.
Back in June she was put on Baclofen to try and control the spasms she was having in her foot and toes. This was gradually stepped up from 10 to 30 mg but the spasms, if anything, have got worse over time
The spasms present as a voilent twitching of the toes and last for around a couple of minutes before subsiding for the same period and then starting the cycle all over again
Coupled to this, Alisons Physiotherapist has also said she is quite stiff and tense not only in the RSD affected areas but in the adjacent joints
Recently we have noticed that the hand is now showing signs of the same spasm, although it is not visible at the moment you can feel the same twitching under the skins surface
Out of the blue the other night, I receved a phone call telling me the physio and Pain Consultant had discussed the spasms and both felt that baclofen was not helping so could I take Alison off it over the next few days.
We are reviewing on Wednesday - do any of you have any experience of similar spasms and of a way to control them, either medication or otherwise ?????
Swelling
Alisons lower leg has been really swollen for some weeks now, though recently the top of the calf has become softer and appears somewhat improved.
However, over the weekend the foot seems to have ballooned even more - also the toes have become very swollen and with each spasm they are excruciatingly painful. With each increase in swelling we have seen a spread in the area of hypersensitivity which puts the programme of desensitisation back - undoing any progress we have made.
Should we be concerned about this latest swelling and contact the hospital today or leave it until the review on Wednesday
Is there any possibility that this latest problems could be linked to withdrawal from Baclofen???
Many thanks again
Andrea