Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-12-2007, 09:36 AM #1
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Default Hi Sandel,

I have had 3 of them and they were all painful. Some more then others. I hurt for days after having 2 of them.

Mine were to rule out TOS and none showed anything. I noticed on the TOS forum that most had experienced the same thing. They showed nothing.

I would never have another one. I think they are so useless and I wonder sometimes if it's the only job a Neurologist knows how to do. That's been my experience with all of the Neurologist accept the one I have now.



As for me, I'm with Tayla they would have to chase me down to give me another one.

I don't know if it made the RSD worse but as I said, but my pain didn't settle down for days. I was that way with examinations also though. I got to where I wouldn't let Drs. touch me and it made some mad.

I do hope that it does what you want it to do if you have it.

Ada
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Old 10-12-2007, 06:47 PM #2
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I'm going to try avoiding them in the future. They haven't been horrible but each seems to be a little worse and they always come up negative. I tend to be a little more likely to have a flare up after one but with only 5 it might be coincidence. It may be caused by just all the movement and touching rather than the shocks themselves. One doc hit a nerve in my affected hand which momentarily paralyzed the thumb and caused... ...you guessed it... ...a lot of pain.
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Old 10-12-2007, 06:56 PM #3
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I personally don't feel I will ever have another one done. One dr thought that the reason I have such severe RSD is because I might have nerve damage in my C spine. They were going to attempt to do both arms and legs but the dr decided (because of the amount of pain it would cause) to do it in just my arms. It was AGONY it send me into horrific spasm and caused one of the worst flare/ deterioations I have ever had. I know they are useful for picking up stuff like nerve damage but I would seriously think before you have one done.

Loads of love

Frogga xxxxx
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