NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Red Dots (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/29959-red-dots.html)

I just have RSD and I have red spots. They look like little blood blisters actually. Some are flat, some are raised up a bit and you can feel it, some are little, some are big. I think I got a few of them on my legs in my pics I posted.

Sometimes they just don't come out that well on the camera though. Some are big, some are little and I have them mostly on my legs. They sometimes open up and turn into sores that can take 2 weeks or more to heal. Oh, I hate when I have to shave and open one up! Dang that hurts!

I have a couple on my arms and 2 or 3 on my fingers even! I had never had these before RSD, but once I got it, they popped up all over my legs with a couple of months and have been there ever since. From all the people I've talked to over the years, lots of RSD'ers get them. Some people get actual rashes others dots. RSD makes no sense, and I hope I have made some sense and didn't ramble too much. *sheepish look*

Hugs,

Karen

I have got red spots too.. usta be just on my legs but now I see I have them on my lower torso too a whole lot of em.. like lil inside blood blisters or burst corpulses er what ever ya callem.. like varicose veins but substitute vein for cell.. little burst cells mabie?

Thanks good topic subject.

Hi

I also have the red dots - they turn into sores on my feet but I have them down my legs and arms (I have full body RSD but not TOS) and apparently my back? They look very impressive alongside the purple swelling! It's weird some of them are raised (the ones on my legs) but the ones on my arms don't really appear to be - it's definetly odd!!! I find (especially on my feet) that they get patches of red surrounding them - (it's odd because the red is boiling hot to the touch whilst the rest of my legs are ice cold - anyone else noticed that?).

Does anyone here get frequent ulcers/ absesses? do you think they are associated with the red dots? Just a random question.

Love ya

Frogga

PS Does TOS caused red dots? Just if it causes impaired blood circulation to the arms (which I think it does) then the altered blood flow might be responsible for them? I don't know - someone with more info can you enlighten me?

PPS - As CRPS (RSD) is a Syndrome ( a group of symptoms) it is interesting to discover whether this is "pure" RSD or not because could give some more hints to the mechanism involved. I know that I also have dystonia (which is caused by the CNS and brain so not going to be involved) and HMS (weak connective tissues because of collagen issues which also wouldn't cause the dots) so don't think I have anything dermatological that could be responsible.

for those that feel ok about it...what about posting pictures of the spots? i know it can be hard to compare the type of spots just by descriptions.

and saying if you have just rsd...or rsd and tos?

i have a few photos......
side view of foot shows red dots that will probably turn into a lesion.........some are red, some are brown...
front view of leg shows scarring from lesions along with more brown and red spots...
i have rsd, not tos.

RSD and FM.. ok hope this works can never get the pics right.. seems to me they sorta pitted when my calf was hard as a rock (taken 2005)

I don't recall anyone on the TOS forum specifically mentioning any dots like that. But a few do have RSD also.

Just totally thinking out loud here-

I'm thinking it might have something to do with the skin and temp changes due to RSD, the hot, cold, burning, swelling, mottling etc.
Like the skin, nerves and system is going thru all this stuff and odd things like these just show up???

do they fade or come and go?

any relation to severity of symptoms?

If they stay for a while and seem to go thru the changes that are mentioned for moles and such - it would be good to have them checked just as a precaution.

:grouphug:

Hi all,

Vasomotor instability caused by malfunctioning sympathetic/autonomic systems can cause trophic changes in the skin. My doctor tells me that my red spots (yes, I have them too) are caused by small subcutaneous bleeds in fragile capilliaries of the skin.
These spots are called Petechiae and are common in many people and advancing age is one reason.
They can occur in allergies, some medications like steroids and aspirins can cause them and some autoimmune diseases.
Some serious illnesses will present with red spots but these don't "blanch" when you press onto them.
The good thing is that they are usually benign and the worst thing about them is the way they look:(:(

I would not say that this is necessarily a specific symptom of RSD/CRPS but a possible one.
Cheers
Tayla:hug:

I have to say that I am embarrassed. I want to apologize to DealingwithTOS and every and any other member here on this board that has some other dx besides RSD. I want you all to know that not everyone here on this board thinks that you need only post symptoms if you solely have RSD, so that we can get “pure” information, or whatever this is about.

I doubt that ANY of us here have ONLY RSD. I myself only have an RSD dx, but ALSO have symptoms of TOS, CFS, and IBS. Oh..I forgot; I DO have an additional dx or so; I have arthritis, degenerative discs, and chronic clinical depression.

I guess that means that my input here about an “red dots” isn’t wanted here in this thread. Or, I guess that I will now have to detail EVERY single DX that I have when responding to threads about RSD symptoms or possible symptoms. If that is the case, I doubt that there will be a lot of posting going on here. I know that I won’t want to go through every stupid dx that I have each time I answer posts like this, and I really doubt that I am the only one. When you have painful stuff going on with your upper and lower body, your time on the computer can be VERY limited. Not all of us here have and programs like DragonSpeak, and have to actualy type our responses. If we are now required to go through EVERY single Dx or possible Dx when responding to questions like this....well...I fear that the vast majority will get unanswered, except by a chosen few here.

Or, will we be required to have to put all of our dx’s, possible dx’s and other symptoms that we don’t know exactly what are, in a big huge long list on our signature, so that it will show up with each and every post we make? I am sorry, but I myself don’t want to have to do that. I have to deal with all of my various painful problems on a daily basis, and I DO NOT want to have to look at a list of them every single day that I come here to post. I understand that others find such lists most helpful to themselves, and that is fine. However, I don’t think that we ALL should have to do such a thing if we do not want to. All of us here are different, and handle our various dx’s, pains and problems differently. I really don’t see what is wrong with that.

This is whole thing is just ridiculous, if you ask me.

So...I want to apologize to dealingwithtos (who STARTED this thread), and to hopeliveshere, ada, jo55, flippinout, DdayMBB, Beth, buckwheat, olecyn, dawn3063, DiMarie, DebbyV, tayla4me and to everyone and anyone else that has a TOS of Fibro or other dx besides RSD (because I know that I didn’t list all of you all). Not everyone here thinks that you should only be posting here if you have JUST RSD. Not everyone here thinks that is it necessary to go through a list all of your various dx’s when you ask RSD questions.

If it is such a *thing* to have ONLY RSD, then maybe we should have a subforum made up for those that ONLY want people with ONLY RSD to post about their symptoms and problems. I am betting that such a forum would be very small, and not very active (except for a clique or two using it), but maybe it would help others that come here to read and find out information to not feel that they shouldn’t post, or to worry that when they do, their posts and dx’s and symptoms will be called into question.

I am just so sorry, and so embarrassed. This isn’t how this group used to be. I don’t know what has gone on to make it so now. But, I want folks to know that not EVERYONE feels like this, and some of us are very appalled and sorry to see this kind of thing going on.

Everyone here suffers with RSD, and everyone here suffers with PAIN, no matter how many different forms is comes in, or how many different dx’s are causing it. I think that we would all do well to keep that in mind. I don’t think that it could hurt, at any rate. Pain is pain, and the only people that understand it truly and fully are others that have to live with it each and every day. Like everyone here does.

I hope that everyone, no matter how many dx’s they have, has a better day tomorrow. This is a hard time of year for most of us. Maybe we can all keep that in mind?

:hug:
Jose

Quote:

Originally Posted by Sandel (Post 157320)

RSD and FM.. ok hope this works can never get the pics right.. seems to me they sorta pitted when my calf was hard as a rock (taken 2005)

Oh my Sandra!! Your poor leg looks like a lobster.I am hoping that you get to feeling better!! ~Love, Desi:)