If a doctor was doing research and he wanted to be sure that these dots were purely from RSD, then yes, he would include only those with RSD in his study to be accurate. Would you feel like the doctor was rude to not include someone with RSD and TOS (or something else)?? Or would you feel singled out?

No one said each member wasn't welcome or the members with other diagnosis' weren't welcome. Look at my posts again, you are missing the whole point, Joselita.

Keep this thread on topic and stop the bickering and attacks or it will have to be closed. I would hate to see that, it's a good topic with a chance for ALL of you to discuss this.

It does make a difference in any dx if a person has more than one disease, syndrome or illness. Why is it such a big deal to clarify, so y'all get accurate data? I see no post here that excluding anyone.

Just thinking
 

I was trying to fall asleep and saw the thread and raised red dot thoughts.
Just to think out loud; Tos, fybro, and CRPS/RSD have to do with nerve activity, as part of their syndroms.
One thing Dr Togut could share with us at support group is hypernerve activitey of TOS, Allodynia, and also hyper pain perception. So if you have TOS sending hyper pain signals, or CRPS sending hyper pain signals, could the nerve tips at the skin react?

But tos and part of Crps, is hyper nerve sensitivity, sensory nerve issues, even myofascial...where the nerve inserts into the muscle and they muscle tries to protect it, makes a slpint causing muscle spasms...

If ther is a disconnection between the say feet burning, and the brain getting the signals, of the pain, would we still feel the pain? Is that notunlike a SCS that is confusing the pain signal. It is used for TOS pain, it is used for CRPS pain.....MS, and many others.......

Then also, think about shingles.....isn;t that a sensory nerve activity? I do notice, I do not get shingles, but I do get the red dots, and I can follow them around a nerve patterns. Some do get scabs on them, some take a long time to heal.

So couldn't it be just like herpes voister (sp) fever blisters, shingles, causing nerve ending flares.....
So the red pimples are inflamed nerve tips reaction....
I find relief from lidocain patches.

Like I said, just thinking outloud...
Many tosers also have lumbar and other syndroms too,
One thing that some TOSers can tell you about when they battle it, if theirs is sensory real bad, a breeze blowing, "HURTS" and Terry Cloth towel,"HURTS"..
dianne:rolleyes:

Why is it?
 

Hi Everyone,

Well, I'm not sure why these treads turn into bickering, but I'm starting to be sorry I even asked. This is the second time I've posted a question and it's turned into bickering back and forth.

There were some question about the red dots and TOS. Yes, I have TOS, but no, the dots have nothing to do with TOS. I NEVER saw the dots until after surgery when I was told I got RSD.

I also have the red dots (RSD) on my right arm (didn't have TOS) and now on my face. I have never had TOS or have any TOS symptoms affect my face.

I'm sorry that this has a "feel bad" for you. :(

Please PM me and I'd love to discuss it further with you privately.

You're welcome here and cared for.

KD

Hi there,

Please do not think it is anything you have done that has led to " bickering":(
Your question was a good one and it does seem to have proven that red spots can be caused by many reasons and are not specific to RSD/TOS or any other disease as many well people also have petechiae. The good thing is that mostly no harm comes from these but of course it is always recommended to consult a doctor to determine that there is nothing sinister going on.

Take good care
Tayla:hug:

Oh mY gosh Tayla.
Your reply made me think of something.
My daughter had a gammit of medical problems. But, one trip to the doc with red dots led to a look at dots, ask a few questions, feel, and press, of course TOS symptoms flared from exam so it was thought the RSD and TOS flare from heat made the skin "dot up."

When I took my daughter home and put some fridge items away....There was a bushel of strawberries!
LOL, when I checked her I looked and said try benadryl! So the doc got $70 to say the more obvous, flare of syndroms, and Mom got home and figured out the real problem on that occasions.

ANother time a trip to the ER for a horrific flare from an IME exam by w/c doc, the ER doc said Bursitis.

I look at the doctor and said the exam included raising her arm and twisting it before I could STOP the IME doc. So her pain was taking her to the ground when he did this and cried all the way back to our town. Took her in the ER,

I said to the ER doctor, bursitis is local to a bursi area, why would it travel down the upper arm to forearm into the hand, back up under arm and into the chest with pain? Bursitis does not travel; this is a nerve flare and needs anitinflamatory, all the demerol in the world won't touch it.

So Toradol shot, the valium shot for spasms, and with in 15 minutes some relief was easing, not pain free, but de-escalation was happening. He had a discharge sheet for Motrin in his hand when I told hom NO WAY!

Another time a migraine brought on from the nerve flare in the traps into the skull left her devestated with pain. The demerol shot did not help, again I said I found in her flares that the valium and toradol helps. Finally convinced the nurse to tell the doctor what I said. They came in and took care of it and again de-escalation started. Daughter held nurses hand and thanked her for listening and helping. I never told my daughter, but the nurse wrote in the medical records, how patient smiled soon after receiving the medications!

So we try to trust the doctors diagx, but seems we also have to do our own understanding of our bodies. We could keep better track of symptoms to flares and activities and relate what may have or have not made a flare, and what helps, and what does not.

To Ihatetos, just a thought, but you said you never had tos symptoms in your face, your did not have them in one arm.
I am not saying that this at all related to or is related to TOS,
But understanding TOS,
The cervical nerve root starts at the spine, they travel into the other nerves that branch off into the traps, arms, hands, even neck and face.

Our bodies are bilaterial, a mirror. Just because you have a worse TOS side does not mean none of the other nerves on the other side are affected by TOS, they are just not primary affected.
The body does not carry a stop sign to nerve signals. You may have slight to no symptoms on the face and arm, but the nerves are one long cell and affect a lot more then we can relate to.
IE) one day wake up with an eye droop, face feels like novacain a bit; a good one is driving a car and hitting brakes fast and bracing how it sends "Zingers" down the arms into the hands POW! What a feeling. But the zingers did not go one side or the other, the sick nevers carried the hyper signals.

Not saying this is your case, but just the typical symptoms of TOS issues.
Di
Good thread