Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-17-2007, 07:27 PM #6
tayla4me tayla4me is offline
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Join Date: Feb 2007
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tayla4me tayla4me is offline
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Join Date: Feb 2007
Posts: 486
15 yr Member
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Hi Frogga,

It is an awful problem to have My skin is a constant source of concern for me too and up to this point have not been able to find anything in the long term that works.I am so sorry that this has been added to your already intolerable situation.
With the skin being so fragile sometime the vigorous rubbing and massaging can be detrimental to the skin integrity. In fact where Pressure area care in nursing used to involve frequent massages with all sorts of lotions and potions it is not done anymore as they were finding that just changing position was the best saviour for skin.
When your carers wash you I would not use soap as that can be worse for your skin than not touching it at all. Massaging with some very natural oil product like olive oil maybe better perhaps on alternate days.
I do believe that sheepskins (as long as you have no allergy to wool) might be your best option. There are some special splints now available for people to sleep in that are like those blow up splints used for fractures--this keeps any pressure off your skin for as long as you can tolerate them.
I probably haven't told you anything you don't already know but I DO wish I could help you

Love Tayla



Frogga,

PS- Any Vet or farm supply will have the "udder cream" We use it here often on sore human nipples too.

Last edited by tayla4me; 10-17-2007 at 07:29 PM. Reason: addit
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