Frogga,

Oh Hon, I wish there was something that could be done. i do think you should have gone to hospital, I'm afraid that it could happen again, and maybe you will not have Hotti Ben and Margo there to help. I'd try just about anything to make me feel better. please keep us posted.

Gently Hugs

Mary

Hi Ali

I'm glad the educational psychologist is being useful for you! The thing with paediatric RSD is that you will be forced to see a psychologist regardless of whether you want one or not. Some teens I know just go along and just talk rubbish and others go along and decide what they want out of the sessions - some people I know have been really helped by things like learning how to pace and learning coping skills for stuff such as sleep, mindfulness etc and helping you feel more confident in managing your pain.

For me the dystonia is always present, it mainly twists my joints and leads to contractures but also it causes jerks/ shakes and occasionally convulsions. All such fun! people always end up staring but just stare back! lol.

How are things going getting ready to go back to school?

Love ya

Frogga xxxxxxxx

Aww Frogga I hope things settledown for you quickly hon.. I don't know what to sugest.. anticonvulsant drugs I imagine you are on strong doses already.. I'll do some searchin fer ideas online..
Sendin yr way soft healin hugz and body relaxin vibes my friend
Sandra