FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
|
Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
Reply |
|
Thread Tools | Display Modes |
![]() |
#21 | ||
|
|||
Junior Member
|
Quote:
|
||
![]() |
![]() |
![]() |
#22 | ||
|
|||
Member
|
Quote:
I was taking the Inderol for migraines, not RSD. Having had both, I would much rather have low blood pressure than high. It was scary. Now, I am on neither med......I'm going to give it a try to see if I can keep my migraines at bay without it. My BP is at least stable at 125/79, pulse 81 resting. Not great but better than it was. I was sorry the Topomax didn't work. I may try it again down the road. I was in a TERRIBLE spread and flare when I was on it. Thanks for inquiring!!!! |
||
![]() |
![]() |
![]() |
#23 | ||
|
|||
Senior Member
|
Mom - how are you? Did you have your consultation with the new PM docs yet? You haven't posted much lately. Please write back and let us know what's up. I'm thinking of you...
Sandy |
||
![]() |
![]() |
"Thanks for this!" says: | MominPainRSD (04-05-2009) |
![]() |
#24 | ||
|
|||
Member
|
Oh, honey......you are so sweet!!! I have layed low since my sweet pet rat died (3 weeks ago today). I hit a MAJOR depression......I could NOT collect myself. They put me on some STRONG antidepressants this past week and I'm feeling better now.
My appt. with Dr. Lubenow is on Wednesday. It will be a 2 1/2 hour drive for me one way......I'm worried about that (hubby is driving). 5 hours in the car in one day. YIKES!! I am so hopeful he'll have something he can do for me. I tremor SO badly sometimes now I can barely keep my balance. Anyway, I've missed you all and am happy to be back. Thanks for thinking of me!!! Love to all!! |
||
![]() |
![]() |
![]() |
#25 | |||
|
||||
Member
|
kalimae
this is mostly the reason that i dont take alot of antiseizure meds because they have the tendencey to raise cailcum and i have horrible problems with my kidneys and kidney stones. so anything that i can do not to have the attacks. helps. with the meds my calcum would be high with out the meds. last week my blood work was clean and no high calicum or protein in urine so that is great i would talk with your doctor about it. there is very little warning about this side effect my uro is the one that told me about it ... glad that i could be of some help LOL carrie
__________________
hope this finds all in less pain . rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,, please check out our website to help bring awareness to RSD! . |
|||
![]() |
![]() |
![]() |
#26 | ||
|
|||
New Member
|
I had the same problem. Thank you for hopefully helping others to save there hair.
Quote:
|
||
![]() |
![]() |
![]() |
#27 | ||
|
|||
New Member
|
I've had a terrible time with hair loss which I think is caused by the Topamax. (Neither my GP or Derma can find any other cause.) It started about 3 months after I started the medication with dandruff like symptoms, itchy scalp etc. I've lost about 1/2 my hair now and am coming off the Topamax, but the really interesting thing is that the migraines aren't coming back. I've been on Topamax for about 8 months. I hope my hair starts to come back in soon and that the migraines stay away. Supposedly only a small percentage lose their hair from this drug, so if you're prescribed it you should definitely try it because it works really well for so many.
Quote:
|
||
![]() |
![]() |
![]() |
#28 | ||
|
|||
New Member
|
Quote:
I wanted to know what the name of your new meds were and if they were working, and how you are doing on your hair loss problem? Thanks, Susan |
||
![]() |
![]() |
![]() |
#29 | ||
|
|||
New Member
|
I just started taking Topamax and I have had a few minor side effects like carbonated beverages taste funny, i have also had some minor tingling. But I have also been migraine free for 10 days. This is the first time in 20 years I have been migraine free in 20 years. Side effects are different for EVERYONE. just because it says it might do something doesn't mean it is gonna happen to you. You need to talk to your doctor before you decide what to take not base it on a forum. that's my opinion. Topamax has been the best thing for me. I have tried many different meds and this has saved my life.
|
||
![]() |
![]() |
![]() |
#30 | ||
|
|||
Newly Joined
|
Can anyone pls tell me how long it took your hair to stop falling excessively after stopping Topamax? I am desperate here. Thanks.
|
||
![]() |
![]() |
Reply |
Thread Tools | |
Display Modes | |
|
|
![]() |
||||
Thread | Forum | |||
Lyrica Side Effect Question... | Thoracic Outlet Syndrome | |||
Benzo's side effect list | Bipolar Disorder | |||
Unusual Depakote side effect? | Bipolar Disorder |