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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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10-28-2007, 07:15 PM | #1 | |||
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There's a utube music video at the top of the page that has nothing to do with the great information contained down the colum within the blog..
http://crps-rsd-a-better-life.blogspot.com/ There is a part 1 & 2 utube video's about this girls story that was so heart warming (in this blog) Psst.. oops on the thumsdown dont know how that happened Last edited by Sandel; 10-28-2007 at 08:32 PM. Reason: added the psst.. |
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10-28-2007, 07:33 PM | #2 | |||
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Heres a quote of a portion of one of the information entrys in the above blogspot
Quote: First suggested by Sudeck in 1942, Dutch researchers' studies supported the theory that oxygen derived free radicals are possibly the mediators of mechanisms leading to some of the neurological symptoms of CRPS. They found high oxygen supply with tissue hypoxia in CRPS extremities; a diminished oxygen availability to the skeletal muscle tissue affected by chronic CRPS; and several deficiencies in the skeletal muscles of CRPS sufferers. Studies in Holland have centered around free radical scavengers as treatment for CRPS. There are many ongoing studies with DMSO, NAC in Holland. End quote. |
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10-28-2007, 09:40 PM | #3 | ||
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Hi Sandra,
I think I read that for a diagnosis of CRPS, DMSO is a legal and manadatory treatment with de Nederlander - it is a heavy duty FR scavanger. Regards |
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11-01-2007, 11:08 PM | #4 | ||
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Hi Sandel and Auberon
Thanks for visiting my blog. People in pain are under stress and stress causes the production of free radicals. I've speculated for a long time that if they have found that you can prevent the development of CRPS post wrist fracture with vitamin C then is it possible free radical scavenging antioxidants could also be a treatment. There is now some research into this and as you pointed out the Netherlands has this as part of its protocols. There is an issue with taking supplement antioxidants in large amounts. If you take vitamin C. It demolishes inflammation causing free radicals (which is why it is the antioxidant for prevention of crps post surgery. See Professor Scott Reuben's protocols on my blog). However, the antioxidant vitamin C becomes the free radical vitamin C when it gives an electron to stabilize another free radical. We actually need a balance of antioxidants so that the cycle continues. I personally believe "eating smart" is the way to go. That is adjust the foods you already eat to swap a food higher in antioxidants for one lower. Then mix your colours remembering to have lots of dark red/orange. In the end it will not be one thing that is the answer for us. Eating smart will support your other treatments. jeisea http://crps-rsd-a-better-life.blogspot.com/ crps/rsd a better life |
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11-02-2007, 07:37 AM | #5 | |||
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I fixed it to thumbs up now on your first post, Sandra
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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11-03-2007, 03:36 PM | #6 | |||
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Quote:
Hi Jeisea, very nice to meet you.. you have alot of great information on your site and I can't agree more with what you say about antioxadants and inflamation, I had not heard/considered that stress causes the release of free radicals but it makes alot of sence (or possibly a blank in my memory ).. it definatly has a direct effect on pain levels with RSD and indeed with alot chronic pain conditions I hadn't researched far in that direction.. hmm.. For the last month I have taken to drinking Rooibos naturaly decafinated tea. Rooibos (pronounced ROY-boss) appears to be matching -- and possibly besting -- the health benefits claimed for other more established teas. A favorite among South Africans for years, the beverage is said by some to have 50% more antioxidants than are found in green tea. Antioxidants are the organic substances believed to scavenge "free radicals," the toxic by-product of natural biological processes that can damage cells http://www.webmd.com/diet/features/tao-of-tea This tea tastes very good not bitter at all good for ice tea too, or before bed with a slice of lemon is so good.. soothing relaxing. I drink it all day because I don't like water so much but have dehydration problems so this works great.. More important I feel better since drinking it, more alert and my vitality is.. it's hard to explain but I just feel better than when I am not drinking it. here is another good info page about this wonderful drink that isn't actualy a tea aparently. http://coffeetea.about.com/od/typesoftea/a/rooibos.htm I also eat alot of raw vegies in the rich deeper colors greens reds orange too anything with dark skins is high in antioxadents as you say.. I love the peppers and always have the right veggies on hand now to have at least two portions with lunch and dinner.. portion is a handful When I back off the antioxident type foods and drinks I now notice a diffrence in my pain levels and how many symptoms are dominant, my sensitivitys are higher too when I am not eating right, and although I have full body generalized RSD I know my pain can be alot worse and I acredit the antioxidents I am taking. When my arm flared up from my radial angiogram and threatened to be a constant pain instead of intermitant, I upped my intakes and though it's there it's not as bad as it can get or could have been if I didn't increse antioxadents that and using it as normaly as possible. Holey sory looks like a book forming here.. I just can't say enouph about this drink.. I am also looking at starting taking Mona-Vie again another great antioxadent suplement/product I believe in and that has helped me in the past. Very nice to meet'cha Jeisea and I very much look forward to your postings. Sandra |
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11-04-2007, 04:19 AM | #7 | ||
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Thanks Sandel
I believe that what you are doing to help yourself in the way of eating and drinking smart will definitely benefit you. I posted today about a combination of things which I believe work together to help me. I feel I am winning the battle. Just now I was walking at the beach with a friend and she commented on how different I am this year to last. I was a mess last year and in constant unrelenting pain. I started my blog in August 2006, when I had finally found some things to help. I don't think any one thing is the answer for us. I think you need to find something that works and build on that. In my post I talk about the things that retrain the brain. CRPS/RSD is an insideous condition where the message the brain sends out to protect and that it hurts a lot is incorrect. It is as if the brain is constantly on high alert and anything (such as exercise) sets off an alarm signal that some is dreadfully wrong. The brain then reacts by sending a message of pain in order to protect. "On the subject of tea I read that white tea is being used to treat damage from the sun on skin. All tea is beneficial. Here's what I wrote one of my posts. We've all heard of the health benefits of tea. Flavonoids are a special group of antioxidant phytochemicals found in black and green tea and adding milk doesn't alter the benefit." jeisea |
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11-06-2007, 07:29 PM | #8 | |||
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I'm stocking up on tea and carrots tonight!
Great information...thanx!
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