Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-31-2007, 01:05 PM #11
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Default Hi Dolphin...

I am not sure if you remember me or not, but you helped me a great deal. I had just dound out I was pregnant in March of 07 when my RSD went full body. I was so scared about meds and everything else.

I just wanted to say Thanks! along with, I am sorry for your grieving. I couldn't imagine being without my lil one. She is so beautiful and I honestly couldn't have done it without you. I have been trying to find you to thank you and just found this sad post.

I just had her 3 weeks ago and she is sooo healthy and happy. I did have a remission like you said, from about 6 weeks-30 weeks. Then the flare-uos began again. Then, I had a c-ection and they gave me a spinal. I can't believe the relief I had in my legs. I have only had a few flare-ups. Do you know how long it takes for my hormones to return to normal and when my RSD should come back full swing?

I just hope that you know how much you truely helped me. I don't even know you and I feel like we talk all the time.

I hope you keep that head up and have a great New Year. You are Truely a BLESSING!

HUGS!!!
Heather & Skyler
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Old 12-31-2007, 06:56 PM #12
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I am so sorry but feel I understand after watching my husband year after year during the holidays....it ranges from anger to tears and he has not enjoyed any of them. He lost a child, both parents, 2 brothers and 6 close friends all between Thanksgiving and X-Mas and this year his beloved schnauzer of 12 years on X-Mas day no less......so I have watched him hurt for 30 years. His baby girl would have been my age and he still carries her picture. I think the only way we can go on is to remember all the good times and the love. Time is supposed to heal all, who knows?? I hope you can survive the pain and things get easier for you. I am lucky that I have not lost a child but was terrified when my middle son was in Iraq 2 years ago, he made it home whole in body but not in mind.
Again I am wishing I had the words to comfort but I was never good at that....but I do feel your pain and wish I could take some away.
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Back injury 1999, PN,DDD, Spinal Stenosis, Arthritis, Chronic pain, Lumbar Fusion 6-06, Pain Worse then Ever Since!10-10-06 Arachnoiditis! CES! now numbness from waist to thighs, bowel, bladder paralysis, self caths, chronic constipation. Left sided weakness! No appetite depression! Bed 22 hrs day!
Under care of PM 3 years. Diabetic, lost over 100 lbs was 300+, now 174 lbs. Normal labs, diet controlled!
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Old 01-02-2008, 06:45 PM #13
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Dolphin,
You & your husband might consider going to grief counseling so you can maybe atleast compromise on alot of things dealing with this grief you are going thru.

My husband & I just lost one of the 2 grandson's we raised from the age of 10 yrs old this past October. He was to be 22 in Nov. We both are dealing with that grief differently. Jack raised Ron & Michael on his own the first 18 months or so. Then we met & I took them on as my own children when we married. He is more like your husband in this respect, he doesn't talk about Ron at all. But we do deal with it as we are going thru court proceedings because he was a hit & run by a woman driving while intoxicated double the legal limit. So there are issues. And it has affected our relationship too. Then on Dec 10th we almost lost my daughter due to Pulmonary Embolisms. She is only 30 yrs old, & they were due to BC pills she was taking to control endometriosis. So that really hit me hard. I haven't quite been myself since then either. And neither has my daughter. Ron's death hit her hard also as they were as brother & sister. And now she almost lost her own life. We are really messed up around here. And I didn't mean for this to become long winded as I have no idea how it feels to loose an infant, but I now do know how it feels to loose a child you think of as your own child, that you raised as if your very own for many years. And then how close I came again within a few months of going thru that intense pain again..........it hurts, it is a nightmare(Ron's death) you have seen others go thru never imagining that you would get the nightmare phone call, or that
in a few months you would hear in the same ER how close you came to loosing another child. Well events change us & we are about to check into grief counseling ourselves. So thought perhaps this might be something you haven't thought of doing. Even if your husband won't go, you could still go for yourself. It is ourselves we must help before we can help anyone else.

Hoping this next year brings happier events for you & your family.

DebbyV
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Old 01-02-2008, 07:40 PM #14
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Heart Hi Dolphin

Dolphin,

I'm so sorry for your loss. I'm new to this forum, so we've never met. My heart goes out to you though. I can't imagine what you must be going through.

I have three children of my own, and a step-son in England. The thought of losing any of my children is too painful to imagine. I have heard of people growing apart when losing a child. I think mostly it's because we all handle things differently and don't think the other person could possibly understand. I have faith you and your husband will find one another and share your sorrows together. I agree, I think therapy will help you. You have two other beautiful daughters, they must feel the pain as well. Maybe a support group would be perfect for you.

I wish there was something I could do for you. Or any of you going through the loss of a loved one at this time. I'm so sorry.

Blesses xoxo

GHL
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