Hello. I am new to all this (recently diagnosed w/ rsd) Was wondering how many rsd patients here suffer with migraines as well and what are you taking for relief? My md is now putting me on Topomax 50mgs a day.

Thanks

Julie

Hi there,
Welcome to Neurotalk. My name is Alison, I am 12 years old and I suffer from RSD in my left leg however I used to have it in my right arm but it is now fully recovered - thanks god.
I suffer from headaches/migraines, I think that the pain and medication causes them. Speak to your doctor about them though - he/she might be able to give you something to get rid of them.
Take care
Love
Alison
PS: If you need anything I am here

I have migraines... never had them before RSD...

I take Frova.... seems to work well... and fast.



Abbie

Hi there and welcome

These threads of mine might be of interest to you, as they are on the topic of migraines:
http://neurotalk.psychcentral.com/sh...ad.php?t=17664
http://neurotalk.psychcentral.com/sh...ad.php?t=19689

Hope it helps!

Hi there. Sorry to hear about your struggle. I also suffer from migranes which started right around the time I was diagnosed with RSD. I never thought anything of them until I was getting one almost every day for 5 days in a row. When I started on gabapentin (neurontin) they went away. I find I have been getting them more often again but I can't tell if it is from neck tension or that I have more widespread RSD, quite potentially now in my neck, face and head. I am taking 800mg-1200mg a shot of advil (IBProphen) at the earliest sign of an onset. Once when I was at the hospital the doctor told me that if I was going to take anything for serious pain to take more than the standard on the box but not to overdo it through out the day. So I take what I said above and it usually keeps it at bay. If it doesn't go away I know it is likely to do back tension.
That's my spin on things. Good luck! TTL J

See if you can try Celebrex instead of topamax. Look at the side effects of topamax before you try it. Our family has had two adverse effects with topamax. My daughter, Ashton, was really getting bad migraines and her Dr. put her on celebrex and they have basically gone away. Good luck.

Andrea Gibson - Mom of Ashton

Hi I also get migraines. RSD complicated migraines for me. A nerve would fire like touching a raw nerve in your tooth. This would fire every few seconds and go on for weeks. The only thing I could do was lie still and my specialist advised me to do just that. Nothing else helped. So you can see I need to find something to preven migraines as I just lost weeks of my life each time.
One of my specialists suggested I look up the studies done on vitamin B2 to prevent migraine. The double blind studies used 400mg of B2 in divided doses each day. I do not need that much. I take 150mg and it does prevent migraines. I still get occasional breakthrough migraines but these are less severe. If I don't take the B2 for 48 hours I get another migraine.

This might be worth looking into. I know there are other preventative medications including Sandomigraine and Inderal. I was taking these but am no longer able because of side effects.

You can find more about this by googling "B2 migraine.

jeisea
http://www.crps-rsd-a-better-life.blogspot.com

That website your refer to jeisea sounds so similar in their methodology of treatment to the one on the PARC website titled 'SUFFERING STOLE HER CHILDHOOD
Ottawa Sun'. It is a really sad article though, not related to the person on your website. I just find it kind of eerie to see the similarities and what happened to the person in the article. They are such different and yet similar stories of successes and hardships. If you get the chance read it.

Sorry. I interupted the flow of things I do find it interesting that taking B2 would help migranes. I am thinking I will try that. My chiropractor also bugs me about taking fish oil for its' antioxidant qualities. I might actually have to subject myself to that too. I already am a fan of epsom salt baths. I have hear Milk of Magnesia is good for CRPS/RSD people. If not, it is still nice.

Anyway. Hope we can all find some respite from migranes at the end of the day. Good Luck! TTL J

Thabnks for telling me about that. I'll go there and look. The crps/rsd a better life is my blog. The story about the migraine problem and taking B2 is mine. I have posted about this whenever I read about someone suering as I've been through so much myself. Not everything works for everyone and it's always wise to ask your doctor. Some times even "natural" things don't agree with some meds.
The same specialist who suggested I look into B2 suggested I bump up Omega3. he suggested increasing red salmon into my diet. He said cheap red salmon is just as good. Actually this doctor gave me some hope when I was told I could not take any medications. He encouraged me to go to the internet and look at alternatives.

It sounds like you are doing that too. I think most of us do. After a time I decided the best thing for me was to "eat smart".

jeisea
http://www.cros-rsd-a-better-life.blogspot.com

I have recently discovered a very effective treatment for migraine. A neurologiist Dr Yamamoto in Japan developed New Scalp Acupuncture to treat neurological disorders eg Parkinsons, MS and stroke. Only medical people are trained in this style of acupuncture. My GP has twice stopped migraine using this method. He places usually 3 special, long acupuncture needles in the scalp. For me it takes about 30 minutes for the migraine to go. At first I feel relaxation for neck and shoulder muscles, then gradually the pain eases. I've also been told that if you can be given oxygen soon after the onset of migraine it will stop the pain. One of my doctors gave me a note of the local hospital to be given 30 mins oxygen on presentation with a migraine. Research supports this hewever I've never tried this treatment.
jeisea
http://www.crps-rsd-a-better-life.blogspot.com