Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-12-2007, 07:53 AM #1
Kyzyl363 Kyzyl363 is offline
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Join Date: Nov 2007
Posts: 43
15 yr Member
Kyzyl363 Kyzyl363 is offline
Junior Member
 
Join Date: Nov 2007
Posts: 43
15 yr Member
Default Just Curious....Question

I know I have talked about symptoms elsewhere from the original site of injury. I was just wondering if anyone else has had these symptoms because mine are with me all the time now, well chronically since last Tuesday and I had one good day on Friday when everything was there but very mild and manageable.

Symptoms of (away from original injury area affected by RSD):

- burning with touch or movement or pressure;
- pink skin blotches coming and going on palms, face and feet, I mean like Deep Red or Purple and you can watch them start and get worse because it burns so intensely and if you touch it it feels really really tender;
- If pressure is added and held to any one spot, like sitting in a chair, the place where the pressure is added becomes a deeper burn or throbbing ach with a cold burn, or a constant deep burn;
- Inability to tolerate wearing some clothing that presses against the skin, like a bra, or elastic band at the waist-line or wrists because of the burning pain it causes. Kind of like having a really bad sunburn and putting on a polyester shirt.
- Really bad aching or pain in one particular set of joints but not others, mostly if pressure is applied. Like in my wrists, I can barely open a can with a can opener or pop-top, pick-up my cat, etc. Almost a constant now.
- Heart racing and inability to sit still, yet heart is not racing because you are moving around. Kind of like an anxiety attack but breathing is still fine.
- muscle spasms in the neck, shoulder and arm that sometimes produces a coldness up the outter part of your forearm up to your baby finger.

These things tend to be less irritable in the morning and much worse in the evening and at night. They may come and go during the day, depending on activity. I have been having these symptoms over various parts of my body as mentioned above. I do see a Neurologist next week and have had one doctor say it is definately nerves but has never seen anything like this before and, he thinks, is definately related to my original injury in my left ankle. These symptoms carry over my entire body and I cannot scratch any surface of my skin without getting a really bad burning pain from it.

If you know anyone or you, yourself, have experienced this please help me figure this out. I am a little freaked out these days about what is going on.
Thanks for your kind words of support. J
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