Dear Alison,
You are such a ray of sunshine. I relate to you in many ways, I had Juvenial RA from the age of 8 through my early adulthood, it really stinks when we are young and get hit with health issues that change our lives so early. I love your attitude, you appear to be quite the cheerleader and show your kindness, compassion to us all.
Thank you again for such a warm welcome!!
Rivkah

Many thanks for your kind words, I really appriciate it. I am so sorry that you have had health issues since the age of 8, yes it does stink.
RSD is horrible for anyone but especially for young children like myself, I am unable to go to school, I haven't seen my friends for ages (I have seen a few of them but not many), I can't go shopping etc. I can't do things that normal 12 year olds do, it gets me really mad. I am sure you know how it feels. I just feel like I am too young to be dealing with RSD.
If you need anything I am here, just PM me or reply, I am happy to help you
Pain free hugs
Love
Alison
-x-

Hey Rivkah - welcome!!! I have lost bone mass from my jaw as well which means that my teeth are moving around in my mouth which is really annoying - it means that even though I have worn braces and stuff my teeth are going crooked. Apparently I've lost the bone mass from RSD and my meds.

Ali - I thought you were back at school now? for 2 hours a day? hope your knee improves - try and keep it as mobile as possible and do desensitisation etc on it.

Love

Rosie xxxxxxxxx

Wow! Sorry to hear about this. I am just confused, the jaw bone on the left side is pretty well shot, so I am losing my molars. On a good note, makes my cheek bones look very high What do you mean by your teeth are moving around in your mouth? Are they loose or ???
All of this has happened so fast, who knew a fall could do so much damage?
Thanks for all the warm welcomes!
Rivkah

Rivkah,
I am scared to go to the dentist due to the state of my teeth. 2 of my teeth are chipped, one of which is really bad and painful. I have 3 teeth that are wobbly. I only started having problems with my teeth after I was diagnosed with RSD, I do believe that the RSD/Medications cause teeth problems. I think I also suffer from gum disease but I am not sure.

I found this on 'google' it is an interesting article and maybe you could ask your dentist if he could do the following:
My dentist follows a procedure to prevent flare ups of CRPS. He uses cream to deaden the area before injecting. Then uses a non adrenaline local. He also injects local again at the end of the treatment which is kept short. On my last visit he didn't do this as it was just a check up. Unfortunately I had a facial flare up as a result of handling and cleaning. In future , even for check ups we'll be following the procedure we know works to prevent a problem.

This is also an interesting website about dental issues with RSD/CRPS:
http://www.rsds.org/3/treatment/rsd_dentistry_brown.htm

Take care
Love
Alison

Dear Ali,
You are a GEM! I see so much of myself in you, when I was younger there was no internet, so I remember being in UCLA Medical Center for two years, going home 2 times during that period. I did not see my parents very often as they had a farm to run, my siblings and a 200 mile drive. Books became my best friends and I read everything I could get my hands on, yes, the Doctors finally allowed me access to the medical library...so interesting stuff there!
Enough about me....I just see a glow about you, a caring, concerned and gracious young woman, we should all be such. Your attitude will carry you far, trust me on this on.
As my father use to say: "Riv, we are all a little bit broken, some of it you see, and some of it you don't. With you little bit, it is obvious, but remember, no one is without something." So, not only was he a farmer of the land, he was a farmer of lessons.

Be well Ali and keep shining for us all,
Riv

Rivkah,
Many thanks for your kind words ((hugs))
I am very similar to you, I love reading and learning about new things. I am always reading my moms books - even though they are for adults lol. I want to be a vet when I grow up, but this seems impossible at the moment due to my RSD, I love animals and I own a few myself.
Thanks
Love
Alison

I have trouble with grooving at the gumline on the outside of all the teeth except the very front. It appears to be caused by "setting" my jaw too tightly probably as a reaction to pain.