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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#11 | |||
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Magnate
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Desi,
I feel so sorry for you, I really hope things start looking up for you. Yes do try the heat pad it could help with the pain. Did you ring your doctor? if so what did he say? pain free hugs Love Alison
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To the World you may be one person, but to one person, you may be the World. |
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#12 | |||
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Hi Ali,
Your so sweet to respond to everyone on here!! I have to call him around 3 today. He wasn't in the office yesterday. I told the nurse up there what was going on. She asked me how long I was pain free after that last Stellate ganglion nerve block, I told her around 2 weeks and she said that was good. So I am calling him today. I will let you all know what he says. I can't get in to see him sooner, due to him being booked till then, so I will just have to wait. Thanks again Ali, your a doll!! ~Love ya!!Desi
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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#13 | ||
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how goes the battle desi?
my guess is you slipped into that funny in between realm of pain, where you have spent so much time in pain once you experience a break in the cycle you feel like you are out of the woods and want to make up for lost time. so you do everything you wish you could have done but coudnt because it hurt to much and it overwhelms your body. since you have such good experiences with the sgb my guess is that you probably will bounce back following another one. usually the cycle for a sgb series is with the first one you experience x amount of relief with the second you experience x days plus y and with the third you experience x plus y plus z. the excessive activity is a normal reaction and the fact that your body's response is limited to one side seems to indicate that this is a normal flare cycle. with the sgbs you will continue to experience relief (unless you have hundreds of them...at some point they just stop working..go figure). if i were a betting person (and as a crps patient i would say i am ![]() every crps patient who experiences a large amount of relief following a block or a series of blocks will probably do exactly what you did (i know i did), and i know when you are curled up in bed miserable the thoughts rolling through your head are what was i thinking, no worries next time you will know you can do some of the stuff around the house but you cant get it all done in a week. i am sure you will bounce back after your next block and you will return to feeling good. its ok to stumble...we all do. you will be ok enjoy the holidays...your doc will get you in and fix you up
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rsd following a botched epideral for knee surgery 1993 remission from 99-2003 shoulder dislocation 2003 CRPS Type 2 scs (cervicle 2005) (lumbar 2007) Strong mind Strong body . |
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#14 | |||
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Thank you so much Wakegirl!
I really enjoyed reading your reply. every single thing you wrote was ohhhhhhhhhhh.. so true!! I know it will be hard over the holidays. I am hoping Bill and me and our daughter will be invited over one of our two son's homes Christmas day. My mom cooks every Christmas and we are going over there Christmas Eve. I will try to take it easy. I don't ever want to do what I did (cleaning non stop like a mad woman), LOL and then paying for it 2 days latter. uggghhh... My house is at least cleaner for Thanksgiving tomorrow! Thanks again Wakegirl!! ~Love, Desi
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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#15 | |||
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Just a quick message to say that I hope you are having pain free days again, and I hope you had fun cooking the turkey for Thanksgiving lol
Take care ((hugs)) Love Alison
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To the World you may be one person, but to one person, you may be the World. |
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#16 | |||
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Quote:
I go to my PMD tomorrow. He will most likely want to try another block?? ![]() ![]() ![]()
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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#17 | ||
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![]() Desi, I do hope you doctor can get that block underway as soon as possible so that you can get back to those improved pain days. Thanksgiving is quite a celebration over there isn't it? It hasn't really caught on here in Australia which is odd as we are very similar in all other celebration days. ![]() I am glad you all could get together and have such a fun day. Meal time at our house is Thanksgiving every day. Most meals are for 2 old adults (my husband and I) and 6 young adults with 3-4 partners. ![]() Yep, 11 or 12 most evening meal times---it is both nightmarish and wonderful (not to mention expensive) Love Tayla ![]() |
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#18 | |||
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Tayla,
I too hope that my pmd can do the next block to put this beast back into remission for a long, long time! My son is trying to back out of having Christmas dinner at his place now. Says he doesn't want his place all messed up with little one's running all around. says my place is biger, bhah, blah.. I told him , Billy, that's not right!! I am not having dinner here again!! He said mom, we will all help, my girlfriend, and Mary(my youngest sons wife) will bring food!! Even my husband was like, what the heck is he backing out for?? I told him to cook the ham and we'll be right over!! LOL Oh my yes, Tayla Thanksgiving is a huge "Celebration" over here! Now, do you get snow? What do you mean about meal times there? does your entire family live with you and your husband?? waiting for your reply.. hurry!! LOL Anyway, thanks for your kind reply back to me!! Love ya!!~Desi
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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#19 | |||
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Magnate
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Desi,
Good luck when you go and see your PM doctor. I really hope that you get the treatment you need. Take care and tell us how it goes with your PMD. Love Alison
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To the World you may be one person, but to one person, you may be the World. |
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#20 | |||
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Hi Ali, I had to cancel due to my husband's sugar being too high. I am going tomorrow at 10:00 A.M.amd I will for sure let you know what he says!! Thanks sweetie!~Love ya! Desi
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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