Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-20-2007, 08:46 AM #11
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Desi,
I feel so sorry for you, I really hope things start looking up for you.
Yes do try the heat pad it could help with the pain.
Did you ring your doctor? if so what did he say?
pain free hugs
Love
Alison
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Old 11-20-2007, 12:24 PM #12
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Hi Ali,
Your so sweet to respond to everyone on here!! I have to call him around 3 today. He wasn't in the office yesterday. I told the nurse up there what was going on. She asked me how long I was pain free after that last Stellate ganglion nerve block, I told her around 2 weeks and she said that was good. So I am calling him today. I will let you all know what he says. I can't get in to see him sooner, due to him being booked till then, so I will just have to wait. Thanks again Ali, your a doll!! ~Love ya!!Desi
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Old 11-21-2007, 10:43 PM #13
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how goes the battle desi?
my guess is you slipped into that funny in between realm of pain, where you have spent so much time in pain once you experience a break in the cycle you feel like you are out of the woods and want to make up for lost time. so you do everything you wish you could have done but coudnt because it hurt to much and it overwhelms your body. since you have such good experiences with the sgb my guess is that you probably will bounce back following another one. usually the cycle for a sgb series is with the first one you experience x amount of relief with the second you experience x days plus y and with the third you experience x plus y plus z.
the excessive activity is a normal reaction and the fact that your body's response is limited to one side seems to indicate that this is a normal flare cycle. with the sgbs you will continue to experience relief (unless you have hundreds of them...at some point they just stop working..go figure).
if i were a betting person (and as a crps patient i would say i am ) i would say try to take it easy over the remainder of the holiday (easier said than done especially when you are the cook) and after another block you will return to that wonderful place of feeling pretty good most of the time. the block wont last forever, and the more exertion you apply to your body the shorter that space of time will be.
every crps patient who experiences a large amount of relief following a block or a series of blocks will probably do exactly what you did (i know i did), and i know when you are curled up in bed miserable the thoughts rolling through your head are what was i thinking, no worries next time you will know you can do some of the stuff around the house but you cant get it all done in a week.
i am sure you will bounce back after your next block and you will return to feeling good. its ok to stumble...we all do.
you will be ok
enjoy the holidays...your doc will get you in and fix you up
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Old 11-21-2007, 11:08 PM #14
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Thank you so much Wakegirl!
I really enjoyed reading your reply. every single thing you wrote was ohhhhhhhhhhh.. so true!! I know it will be hard over the holidays. I am hoping Bill and me and our daughter will be invited over one of our two son's homes Christmas day. My mom cooks every Christmas and we are going over there Christmas Eve. I will try to take it easy. I don't ever want to do what I did (cleaning non stop like a mad woman), LOL and then paying for it 2 days latter. uggghhh... My house is at least cleaner for Thanksgiving tomorrow!
Thanks again Wakegirl!! ~Love, Desi
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Old 11-26-2007, 02:05 PM #15
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Just a quick message to say that I hope you are having pain free days again, and I hope you had fun cooking the turkey for Thanksgiving lol
Take care
((hugs))
Love Alison
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Old 11-28-2007, 06:59 PM #16
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Quote:
Originally Posted by ali12 View Post
Just a quick message to say that I hope you are having pain free days again, and I hope you had fun cooking the turkey for Thanksgiving lol
Take care
((hugs))
Love Alison
Ali, Thans again sweetie! As for pain free days, mine are so bad!! My 23 lb. turkey was so heavy, my husband had to help me a lot with that. I had 6 adults and 4 children here. All in all it was well worth it, as everyone was pleased with the food, homemade stuffing, etc.
I go to my PMD tomorrow. He will most likely want to try another block?? Love ya ali, and thanks again!!~Love, Desi
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Old 11-28-2007, 09:00 PM #17
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Desi,
I do hope you doctor can get that block underway as soon as possible so that you can get back to those improved pain days.
Thanksgiving is quite a celebration over there isn't it? It hasn't really caught on here in Australia which is odd as we are very similar in all other celebration days.
I am glad you all could get together and have such a fun day.
Meal time at our house is Thanksgiving every day. Most meals are for 2 old adults (my husband and I) and 6 young adults with 3-4 partners.
Yep, 11 or 12 most evening meal times---it is both nightmarish and wonderful (not to mention expensive)
Love Tayla
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Old 11-28-2007, 10:15 PM #18
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Tayla,
I too hope that my pmd can do the next block to put this beast back into remission for a long, long time! My son is trying to back out of having Christmas dinner at his place now. Says he doesn't want his place all messed up with little one's running all around. says my place is biger, bhah, blah.. I told him , Billy, that's not right!! I am not having dinner here again!! He said mom, we will all help, my girlfriend, and Mary(my youngest sons wife) will bring food!! Even my husband was like, what the heck is he backing out for?? I told him to cook the ham and we'll be right over!! LOL Oh my yes, Tayla Thanksgiving is a huge "Celebration" over here! Now, do you get snow? What do you mean about meal times there? does your entire family live with you and your husband?? waiting for your reply.. hurry!! LOL Anyway, thanks for your kind reply back to me!! Love ya!!~Desi
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Old 11-29-2007, 06:59 AM #19
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Desi,
Good luck when you go and see your PM doctor. I really hope that you get the treatment you need.
Take care and tell us how it goes with your PMD.
Love
Alison
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Old 11-29-2007, 02:59 PM #20
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Hi Ali, I had to cancel due to my husband's sugar being too high. I am going tomorrow at 10:00 A.M.amd I will for sure let you know what he says!! Thanks sweetie!~Love ya! Desi
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