Hi there,
I don't have RSD in my face but ever since I was diagnosed with RSD I have been getting problems with my teeth and I also get a sharp pain in my gums. Many of my teeth are chipped, I believe that the medications cause this to happen.
I find it hard to eat because of the problems, I have to eat on one side of my mouth. I don't get neck pain
Please speak to your PM doctor about this, he will be able to look in your mouth/neck to see what it is.
Take care
Love
Alison

It is possible CRPS is spreading, I've had this to half my head once, but after taking Prednisolon for three weeks, it got better somehow?


Later I thought it spread to my legs, (My crps is in upper body, both sides) but after a neurologist visit, she was sure this was another neuropathy, still painfull , but it is called small fiber neuropathy, in my lower parts

So we all think this is spread, when something new happens , but it is important to allways check it out with a Dr. it could be something else, and hopefully something they can repair for once!

I have RSD in my face... it didn't start there but has spread there. This was confirmed by more than one doctor. I have the same symptoms in my face that I have in the rest of my body.


Abbie

I have wondered about this myself. My face has begun to do some strange things lately. Some times it feels sunburned, will look flushed and be painful to the touch. At other times, cool air touching it is painful.

I have chronic sinus pain, and headaches. The latest on that front is a sensation as if someone is poking ice pick into my eye! It's hard to determine of these symptoms are sinus infections I am experiencing or part of my TOS/RSD. I had a C.T. scan last week during a really bad episode and it came out clear for infections and abnormalities. So who knows...

I have been having trouble swallowing as well, and have been going to a speech pathologist to learn new techniques for swallowing as well as exercises to strengthen the muscles in my soft pallate area. It has helped some.

Ali, people with chronic facial pain are known to clench their teeth, (according to my dentist). She recommended a custom made night guard, and that I wear it anytime I am in pain, as we tend to clench subconsciously. Also, the meds. dry out our mouths and make us prone to decay and gum problems. It's really important to see a dentist regularly when you have issues like we do. There are sprays, toothpastes, and rinses for dry moth to help prevent decay we can use.

Geez, I'd gladly take prednisone if they thought that would do the trick! Wouldn't that be something!

Also, good to know about the small fiber neuropathy. Although, don't they treat the various neuropathy's about the same way?? I have a friend with peripheral neuropathy, and he's on pretty much the same med's I am.

Thanks for the thread, Kyzyl363, great question!

Cala

How much prednisone did you take for three weeks? Was it tapered down?