Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 12-09-2007, 03:20 PM #21
Avery777 Avery777 is offline
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Join Date: Dec 2007
Posts: 11
15 yr Member
Avery777 Avery777 is offline
Junior Member
 
Join Date: Dec 2007
Posts: 11
15 yr Member
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Thank you Linnie and Molly, Wow I don't know what day I am in anymore....but now scared to try taking any breakthroughs or Opana Er's for the fact that I know that you need to be on Morphine or something like that before stepping up to Fentanyl, or Opana. I was on Avinza for quite some time, then on to Fentanyl....but could never keep my eyes open (would wake up every hour or so, which I also do now because of the RSD pain....but would constantly fall asleep.) I really don't mean to sound like I am just complaining, I just could not take the way the meds made me feel anymore. I was like a zombie, did not want to see anyone, talk to anyone, didn't care how I looked, or what anyone thought....didn't even care if my house was clean. I am still feeling very jittery, weird skin sensitivity almost like if you touch my skin i am bruised, nausea, headaches (which they are checking me for brain tumor....everyone keep me in your prayers on that one please), very very moody....I thinkin I really screwed up and don't know which way to go now. I do hurt severely from the RSD but with all these drugs I just feel like a zombie with the flu and my arm still hurts really bad. They don't seem to help me much anyway.

Linnie what is topamax??? My dr seems to like just a few drugs and that is what he uses. ie...Fentanyl which let me just say when he changed me from that to Opana ER I still had withdrawals for a little over a week and it was awful, but he said I would just have to deal with it, and it the long run I did make it through all of that. Which is why I got the bright Idea that I could do this all bymyself. He also seems to love Opana, Cymbalta, and Lyrica....does not really talk to me of much else even when I ask if I can go down to something that makes me actually feel like a human. He says"you have RSD you will feel like this for the rest of your life".....I just can't believe that is true. Yes I amy have pain but I refuse to give up on life. Thank you all sooooo much and love and hugs to all!!

Avery
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