yes, this thread is 2 years old and sadly I also noticed a spam affiliate signature
in the person's posts which has now been removed

I am always sorry to hear of anyone so young having to deal with this monster called RSD, my heart goes out to you. After reading yours and other posts I am wondering if you could tell me how long ago you were diagnosed. I too am very surprised that they have not tried blocks on you, and would surely recommend it. As for what your doctors say about your career being kaput....All I can say to that is don't take to heart what every doc says. Some of them can be very insensitive and they don't realize that they can create self-fulfilling prophecies. I was diagnosed with RSD when I was 24, and at that time I was told I would not walk again. I do walk most days and I also chase after two young children - I sometimes have to do things differently than other people, but my children are happy, healthy and well adjusted and tearing up the house as we speak. I had just started my career at the time RSD hit and had a great job as a counselor in a Toronto Hospital....yes, that career was over. Now I volunteer helping counsel troubled teens and run a support group - it is much different than what I planned on, but rewarding in its own way. To the next doctor that makes a remark like that to you - well, I have found over the years it is always very satisfying when I can throw something back at them - like 'thank you for your opinion, but right now I am focusing on what I can do.' Keep pushing for treatment my friend, there are many out there that are worth trying and have helped tremendously for some people...just always research them a bit first if you can. I am sure that there are a lot of caring people here that can help answer questions too. Hang in there my friend!
Gentle huggs
Kimberly

Hey Kes. Glad to meet you. Sorry it is meeting bc of rsd/cprs but yeah.

Im nikki. i am almost 16. im in south carolina. i was diagnosed when 14 after a minor break to the ball of my foot when i landed wrong in gymnastics. my rsd is almost full body.

have you tried lidocaine/lisoderm patches? i havent yet but i have heard that they help and i dont like taking lots of pills. too much 4 me to remember.

cool! syracuse is really close to my grandparents.

hello kes, i am only sixteen years old and have had rsd from my legs up my back for six years. i am currently walking with a cane and using a wheelchair for long distances. i recommend you find the best PM doctor in your error, have you tried spinal blocks. i would do PT, and start a desensitization program. i am on amitriptalyne 50mg. it helps me relax at night. nice to meet you

good luck
taylor

Hi Kes,
I am so sorry to hear about you having RSD. You are so young it is a lot to deal with. I also did not have swelling or an initial injury and was dx'd about a year and a half ago. I agree with the other posts keep looking for a treatment that will give you some relief. I have had ketamine and will be getting more treatments. I have used lidoderm patches on certain areas and they did help.
Most of all do not give up your hopes and dreams. You have a long life to live yet and I'm sure it holds many good things for you.
Kepp coming back to this site. There are a lot of good people on here who have given me encouragement when I lose faith.
hopeful