I am new to this forum and am slowly finding my way around...the last thing I expected to find on this site was another greyhound owner!

Did you get your lyme disease test. There are several test for lyme disease. I was sent to an Allergist who thought I had it a few months back and he had my Dr. to order a test and my Dr. did and the hospital didn't know how to draw for it. I went back and he reseached to see what test he needed and wrote it down, I went to another place for the blood draw and this guy said he knew how to do it and I got the results back as incomplete. I didn't even pursue it after that. Make sure they know which test is needed for this.

How are you doing now? Have you been able to get anywhere on getting blocks done or the right diagnoses.

What you went through is what I did at first. I was bounced around to so many Drs. I think I saw over 50 within 2 to 3 years for the RSD, TOS, Fibro, and other things. What we run up on is that it seems like a lot of us have more then just RSD going on and that makes it harder to get the care we need.

Hope you are seeing some better days. I do know where you are with this. When I read your post it brings back the mess I was in and the pain I was in.

Ada

Welcome KittyGato!
Yes, we Greyhound owners are unfortuantely few and far between, at least in my neck of the woods! In fact, I think I may be the only one in my town! (And it's a BIG town)

It's always nice to meet others who share love of these beautiful creatures. I always always felt they rescued me instead of the other way around. Many nights they have warmed up my frozen fingers and feet! Thanx for for saving three of them. I currently have 2 but would have thousands if I had the room!

Nice to meet you! (But sorry you're here. )


Hi Ada,

How are you doing? I'm so sorry you've been through so much as well, thanx for understanding. Sometimes hearing someone else truly understands makes all the difference when we go through something as rare as this.

I'm going for a blood test tomorrow...I went yesterday after my doctor told me his office scheduled it. I went and they couldn't find me in the system!!!

My doctor called over to the lab insisting they submitted the request for my blood draw. Turns out, they were looking under the wrong name the entire time. GO FIGURE! That's why I'm going back tomorrow.

I went to the Rheumatologist as suggested by the Doctor and the Pain Center who said she wanted me tested for Lyme. He said he feels I have Complex Regional Pain Syndrome. He suggested on his report he would like me to be sent to an Acidemic Pain Center in Boston where he's had great success for his patients. (Instead of the one I was sent to)

Sent this report to the Doctor who sent me to the Pain Clinic for the SGB a few days ago...haven't heard a thing. Requested confirmation that he had received my current reports today, still have not heard! I will call tomorrow.
If I don't find some indication this will be planned soon...I'm going to try to contact a doctor I found on the internet who deals with CRPS and blocks which is closer to my home.

My days have been between pain levels of 5-7 depending on what I'm doing etc. Insomnia again as well!

Anyways, gotta run. Thanx for asking, I hope you are well. Please update!!!!



GHL