Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-16-2008, 06:35 AM #1
CZZ74 CZZ74 is offline
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Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
CZZ74 CZZ74 is offline
Member
 
Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
Default Lucky Girl with wrong dx

I am very happy for the girl posting about her misdiagnisis and her good fortune of not having RSd. what amazes me is that she and another family member were misdiagnsosed both with rsd apparently within a few years of oneanother. Things must be changing as it took years for almost anyone i know to be diagnosised and everytime i am in an ER no one has still heard of it- the ER generally has the most interns just leaving medical school so i find it very very discouraging. Infact I have met one Physican in the last 5 years other than treating physicans who specialize in RSD that even know what it is. Maybe things are improving out there for those of us that do have RSD.

I do wish the emphasis wasnt just on RSD misdiagnosis. As we all know all disorders are dx incorrectly by dr's-by the millions per minute . I would hate for it to affect much needed positive attention and research dollars RSD is finally receiving , really, just in the past three years. The first clinical trial are literally just being completed. CZ
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