I will write in also. There is absolutely nothing wrong with us getting something out there to get RSDS more well known.

Ada

I wrote in...I am nopainever!!!

I am very opinionated on this topic...I am so happy this was brought up.

When Paula Abdul first anounced that she had RSD, was when I 1st found out I had it. At the time, I was so afraid of the disease, that I was so happy to know a celebrity to have it. Now, I am not so happy to know that she has it or might have it.

Then the "loopy haze" she seemed to parade around in. I was hoping that phase was going to pass and she would start making more sense because she is powerful enough to raise awareness to RSD.

Then she didn't talk about RSD for along time. Did anyone watch her show? I watched every single one....and through alll the breakdowns, drama, dr appts, therapy treatments, the disease was never mentioned. I couldn't understand why? Was she hiding it?

I did post my comment on there....Thanks guys Sandra for posing that Link...Nice seeing you on this site also....lol

to all,
Heather

Hi there,
I think if Paula Abdul does have RSD then I would like a dose of the RSD she has because her activity level and lifestyle does not appear to be the one of someone who is badly affected by this disease.
The drug she was prescibed is one that is used for severe arthritis, I wonder if the diagnosis was just a little premature in her case but she has used it as a means to explain her bad behaviour.
Cheers Tayla

I think mabie she has the intermittent type.. every time she's in a car acident.. or her plane wreck she gets it again.. happens with some.. expecialy if the first RSD is as a youth.. remission, reinjury, remission reinjury etc..

~~~~~~```

Here's a transcript from when Paula was on the Larry King show, it aired May 19, 2006:

KING: Pottstown, Pennsylvania. Hello.

CALLER: Hi, Paula. I have RSD, and I've read that you have or had RSD? Can you tell me where you are with it now? Or what is going on?

KING: What is it?

ABDUL: It's reflex sympathetic dystrophy, and it happens when you have trauma caused to your spinal cord. Mine being partly from the plane crash, being hit by -- you know, in a car accident. And you know, being a dancer, I'm sure that we're masochists.

KING: So how do you treat it?

ABDUL: There is no solid cure for RSD. And I'm really sorry that you have that, and I feel for you. It is one of the toughest things. A lot of people won't know -- a lot of grown men would never be able to deal with the kind of pain...

KING: Really?

ABDUL: It is so intense. But I have found a wonderful doctor who is an immunologist, works with (inaudible) medicine, and he has found -- and this is what I love about medicine -- you can find a cure for eczema or psoriasis, and it happens to be something that acts like Botox to the nerve pain, nerve damage. And by taking a drug called Enbrel, which is for eczema and psoriasis, it allows my nerves to not freely glom onto each other, and it's been an incredible relief.

~~~~~~```

Hi Tayla
Her doctor said he was treating her with the drug for arthritis but I tend to think it was because the FDA has not aproved it's use for RSD and he was in the national spotlight.

Some RSD syndromes get better with time and only the new injurys make it bad again.. we hear of some who had it before got better only to reinjure and get it again but not as bad.. just like secondary spread is usualy not as bad as the initial injury spot, I too am awaiting my remission..

It does happen never give up.. I also know folks who are left with just residue pain after treatments, we just don't hear from them often because they once again have a life lol.

hope your day is going well,

Sandra