Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-25-2008, 08:25 AM #1
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Hi
Thanks for the poem, I think everyone is strong when it comes to dealing with RSD.
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Old 01-25-2008, 02:20 PM #2
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Heart GreyHoundLover and JcrewRockStaR!

GreyHoundLover,
Thanks for your kind words...We planned on getting pregnant before we were even married because my RSD had just gone full-body and I was afraid we wouldn't be able to have kids. I got pregnant in 4 months of trying and had to stay on the Fentanyl Patch 75mcg/hr..luckily I went into a slight remission from 6 weeks - 30 weeks. My first flare-up wasn't until 1 month postpartum (2 weeks ago)...I guess your body takes about 6 months to return its hormone levels to normal. So, since I had just gotten full-body, I simply forgot the really bad days. They are slowly returning. We had our ANGEL...My husband and I don't think I could go through another pregnancy with RSD.

I am going through a tough time right now. I am dealing with a million meds, home alone all day with Sky, lil bit of postpartum depression, and not knowing what to expect with my pain in the next couple months.

Did you have your kids with RSD? BTW, you are an inspiration to me. To take care of one baby is enough. I couldn't imagine being a single mom with two toddlers. You are incredible! And to make it through a nasty divorce, I couldn't imagine...you must be a "ROCK"!


JcrewRockStar,

Much Thanks to you also! I loved the Poem! My favorite insert:
"A strong woman is a woman who loves
strongly, and weeps strongly, and is strongly
terrified and has strong needs."

So, I called Bryan at work and I told him that he was my ANGEL and he said, "I know"! lol..

You make me feel so good with all of your compliments. I was having a pretty down morning and you brought me right back up.

I Love you both already very much...you will both always hold a place in my heart!

Heather
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Old 01-25-2008, 04:16 PM #3
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Default heather

I think it's great that you called your husband at work to tell him he was an angel. Sometimes, we just have to remember to, make every effort to, show gratitude through our words, or the small things we may be able to do, to those who stand by our side without fail...sort of, as you put it, "an angel."
Going through what we already have to go through is tough enough, but, I know, personally, for me, my gf is my "safe place" and that she is more medicating, in her mere presence than any inject or pill has ever been. My heart goes out to anyone who has to go it alone.
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Old 01-25-2008, 04:58 PM #4
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Tongue JCrew...

Bry is my "safe place" also. It seems like my pain is always higher when he isn't home. But, the second he walks in the door I feel a sudden lift of pressure...it's very cool!

I agree with you about putting your heart out to those that have to go it alone. I am sure that you could agree that you would be absolutely miserable without your GF. I don't know where I'd be without Bryan. He has picked me up, literally, so many times when I have fallen. He has seen me at my WORST. The scary thing is that I am only 27 and he knew what he was getting into. He jumped anyways!


Heather
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