Heather, are you feeling any better today? I've been thinking alot about you and posted some comments under your pictures in the forum. Your feet and legs look terribly painful!!!! Is Bryan home today to help with the baby? Ugh...I can't imagine. She's so cute as well, you want to hold her every second I'm sure. When I had my babies I could barely let them down. I can't imagine the hurt in wanting to but not being able to sometimes. So sorry...it's not fair.

My girlie parts don't seem to flare with burn but I can say (discreatly) sometimes there's definatley more internal sensitivity and possibly swelling... My lower back also burns as well as the skin on my abdomen when I where certain jeans. I even tried wearing nothing but sweats for an entire week...even though I'm not really a sweats kinda gal! (But I wore them in black!) One week I went to work in sweats and slippers to see if I would feel better in my feet, legs, back and abdomen...no such luck. So since it doesnt make a bit a difference what I wear...at least I can carry on being fashionably fabulous.
(LOL J/K)

I've had alot of weird things with my bowels, bladder etc. There are days when I don't go to the bathroom at all during work! (Except for make up checks) Sometimes I wonder...is it CRPS if I don't have sensitivity to touch as much as others or sometimes not at all with burning? You've made me feel relieved that you also experience it in this way...because I'd rather know what it is than NOT know...you know????

Right now my hands are red, not nearly as red as your lower half, but definately red and swollen, neck and knees as well. I think it's mainly because this place I work for is a conservation company so they are conservative with the heat which is NOT the best for me I have found!

Keeping busy is exactly what I found that has kept me trucking!

Also, sometimes during a C-section your nerves can get irritated I would imagine. Did you get a nerve block beforehand??? You could still be healing internally from your C-section? It took me literally a few months to feel okay after my first one. They cut NEW tissue. The 2nd and 3rd C-Sections I recovered nicely because they tore the tissue and muscles (or whatever) that were already used!

Have you tried the Epsun Salt baths? Massages? They seem to help with the swelling. My muscles get really tight, like contract permenatenly until I get massaged! Then after a bath and a message from LoveMuffin, they seem to get soft and I have some release and I feel less achy and burny....

Rocker,

I think it's so nice that you and Cindy have such a thoughtful relationship. Sometimes Brian and I get so caught up with work, kids, dogs and just generally trying desperatley to find time for ourselves and one another. I forget, and he does too...that we really need one another.

I love him dearly, but sometimes I consider him to be a bit insenstive, but I think it's mostly my part because I'm not in bed whrithing in pain. When I am in such pain, he's always there for me.

During my time at home, when I'm uncomfortable but still forcing myself to take care of things, he seems to forget I can't do EVERYTHING. (Like folding laundry which really makes me ache and burn) Or stopping off at a store in January at 9:00pm on the way home after a 12 hour work to get a gallon of milk when he's been home from work since 4:00!!!! I know it's my fault for not telling him it bothers me so I've made a decision to tell him. If I can share with you my weakness, I should really be able to share with him, right?

It's hard for to say I have limitations, "I can't or won't" but I wish he'd understand enough that I'm just too proud to say I can't handle anything. I wish he'd just know.... I ask a lot...I know.

Anyways, how are you feeling rocker???

Love you all!

I didn't have any blocks while I was pregnant. My pain dr didnt even want to touch me when I was prego...lol...My hubby runs an Epsom salt bath for me every other night (to keep me from drying out too much).It has helped tremendously.

I was very happy that you brought up the fact about little or no sensitivity. I used to wonder RSD or not also....But, I always read that you don't need to have all the symptoms to have RSD...I have heard of people not having burning...

I wear cute tracksuits all the time, unless I am going out...I try to be fashionably fabulous...lol...j/k

My face, neck, and chest flare crazzy style! I get beat red and it feels like a bad sunburn. Also, when I cry my tears feel like acid.

I am so happy that you have shared this with me. I feel better knowing that you have a lot of similar symptoms as me...

I envy the fact that you can work through alll this!


Heather

You have a brand new baby as well sweetie, I can't imagine having a small baby and working while having this disease. I think it would be impossible!!!!!!!

When the time is right, you'll be able to work as well.

I'm lucky I have two slow paced desk jobs and compassionate employers. Not everyone has that!

We're trying to save our house as well...we had some tenants that kind of make life difficult and we're trying to recover from that experience... As soon as we bought this house, the tenants who occupied it decided to mess out entire dream of having equity and being able to use this house as an investment for our kids college. I love this house as well, it's in the school distract and across the street from a huge park so the kids always have something to do!

I fell in love with it when we rented it, when the landlord said he wanted to help us to by it it was a dream come true!!!!!! We were hoping also to keep this house and in a few years buy a single family...looks like that's going to be on hold for a while. Financially, I could'nt stop working if I wanted to! I don't want to anyways...I'm lucky to have the job I have. If I ever left and made a full recovery from this disease, I would never find a place like these ever again! The kids education is very important. I don't want them to ever have to struggle like I had to! Sometimes I feel like I may not be around forever...if that ever happened I want the peace of mind knowing that they would be okay and never have to be penniless. I guess that's a negative approach, but I'm just always thinking ahead. Sometimes too far ahead which tends to complicate things!

I admire the Strength and Drive that you have for yourself and for your family...I pray that you keep your house! Your kids and husband are very lucky to have you...

Geez, my husband and I moved to Vegas on our own for the first time to become independent, get married, and start a family. We were ready to buy a house come March when our lease was up. But, my stoopid RSD is making us return back to live with his mom so that I can have some help with Sky. We are both saddened over this, but Bryan is so giving and understanding that he just quits his job and says "WE ARE A FAMILY NOW AND THAT"S WHAT FAMILY"S DO!". It just broke my heart. I guess It will be great to be around all my family and all his family and raise Sky out there in Cali.

For some reason I think that your kids will never struggle hun....Weird thing you say that you think that you feel like you may not be around forever...I feel the same way everyday and every time I look into Skyler's eyes...I always plan ahead!


Heather

I'm so glad you're going back to Cali around family. I think the help you'll get from both sides of your family can only help you in dealing and healing with the monster of RSD.

Thank you for all your nice words, everyday...you always uplift me.

I was actually pretty busy today, out of the house and I kept wanting to come here for a mentality fix! LOL I guess my poor fat fingers needed a break as well...hehehe


Sky will be so lucky to be around family all the time as well...think of how much everyone else gets to spoil her as well!!!!!!!!!

Are you feeling alright today huh? How are you?

Thanx for all your kind picture comments as well.

Bryan seems so cool, you can tell he's a genuinely nice guy. I can see why you both love one another!

I missed you yesterday! I was waiting for you to post something and you never did...But, I was excited to see stuff this morning...You doing ok?

Thanks for the compliments also! Bryan is so rad! I love him...Poor guy is so stressed right now with the move and he just quit a great job out here for me. The thing about Bryan is that he will never complain, EVER. I can just tell that something is affecting him. He sleeps more, he is less active, more withdrawn, etc.

I have been doing nights with Sky during the weeknights so that Bry can rest cause he works fulltime and then I sleep when He gets home. The last 2 weeks, especially since evrything has been so stressfull and my pain has been on the ups, I have had to wake him for almost every feeding to help get her back to sleep. She is the MOST DIFFICULT baby right now. She has COLIC. We give her GRIPE water with every bottle and we have her on Sensitive Similac...plus gas drops...I cried last night cause I just hate waking him up. I just couldn't hold her any longer...

I just know that everything happens for a reason and once we get back to Cali the pressure will drop some...Sky has so much family and everyone spoils the crap outta that kid. So, it's a good idea!

Love ya,
Heather

Oh, I'm so sorry Sky has Colic, poor baby, poor you guys!!!!!!

Seems like everything is just happening at once as well,huh?

Yes, Bryan, what a great guy he seems to be...tell him everyone thinks he's the perfect man, and we're all jealous! LOL