Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-25-2008, 02:15 AM #11
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Quote:
Originally Posted by jcrewrockstar View Post
Those friends, those buddies of yours, taking thos Neurontin doses that you mentioned, are they dead? Do they have a pulse? Do they walk like they are drunk? Just kidding, but, man, those ARE really high doses that you mentioned. Those that you know, that take Neurontin at that dosage, are they people who are also diagnosed with RSD?
You have a sense of humor and that's a big plus! Don't know what I'd do if I didn't laugh. To answer anyway, yes they're breathing, walking, talking, etc. LOLOLOL They have full body RSD, as I do. I was given it to take in the beginning but it turned me into a.....a very nasty woman!! What I usually say I can't type here. LOL

Hugs,

Karen
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Old 01-25-2008, 08:07 AM #12
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Default humor is very important!

I was hoping I didn't offend you with my, as you say, sense of humor, when refererncing some people that you know, and their dosage of Neurontin. As difficult as things get for all of us, I think having a sense of humor is incredibly important. Thank you for your willingness to share, however, what is working for others....it is greatly appreciate. Now, you said, you, personally, have tried Neurontin (and it made you a "nasty" woman)? How so?What were the side effects that you noticed when taking it? Are you still taking it?
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Old 01-25-2008, 09:03 AM #13
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Quote:
Originally Posted by jcrewrockstar View Post
Those friends, those buddies of yours, taking thos Neurontin doses that you mentioned, are they dead? Do they have a pulse? Do they walk like they are drunk? Just kidding, but, man, those ARE really high doses that you mentioned. Those that you know, that take Neurontin at that dosage, are they people who are also diagnosed with RSD?



Howdy,
I have been on 3600 mgs of Neurontin at my highest and only lessened it because it made no more difference to the 1200 I am on now.
I know several people who take at 900mgs tds. whom after a period of getting used to the symptoms are doing well on it.
The early side effects can sure be hard to adjust to but they do usuall wear off with perserverance.
Hope you are doing OK today.
Good wishes
Tayla
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Old 01-25-2008, 10:56 AM #14
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I love your attitude.
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Old 01-25-2008, 12:31 PM #15
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Default to hopealot

thanks for the compliment on my attitude. I needed a good attitude to be stroked today. It means a lot..thank you.

thank you, too, for others who are willing to share their experiences with Neurontin, and its effectiveness/ineffectivness. you are appreciated.
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Old 01-25-2008, 12:38 PM #16
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Yes it does give some releif. I feel that I will probably end up on a higher dosage yet, as my condition continues to deteriorate.
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Old 01-25-2008, 08:24 PM #17
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I am currently taking 3200 mgs of it... My doctor says its one of the meds that you can raise pretty high and play around with to see if it makes a difference.. He says it can take up to a month to notice the difference...


Pain free days and light hugs J
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Old 01-26-2008, 03:00 AM #18
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Quote:
Originally Posted by jcrewrockstar View Post
I was hoping I didn't offend you with my, as you say, sense of humor, when refererncing some people that you know, and their dosage of Neurontin. As difficult as things get for all of us, I think having a sense of humor is incredibly important. Thank you for your willingness to share, however, what is working for others....it is greatly appreciate. Now, you said, you, personally, have tried Neurontin (and it made you a "nasty" woman)? How so?What were the side effects that you noticed when taking it? Are you still taking it?

Well, every woman has mood swings, especially around "that time" LOLOL. Well......this was Sybil type mood swings, horrible nasty human is what I turned into. Yelling at everyone, everything, a piece of lint on the floor set me off! I'm not exaggerating either. I took 1 pill a day for 1 week and heck no I ain't still taking it! LOL My hubby got it and said don't you dare take another one! So I didn't and informed the doc what happened and he gave the "the look." The look of you're just lying cause you don't want to take it and are after only pain pills. ROFL Yeah, right, I made it all up! *shakes head* Whatever. I was a work comp case so got treated like a junkie anyway.

I have a really good sense of humor myself and well.....it would take a WHOLE LOT to offend me in any way.

Hugs,

Karen
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Old 01-27-2008, 01:43 PM #19
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Default To Karen

Karen,

I too am a "work comp case" as well, so, through those words alone, I feel your pain. Is your worker's comp case now resolved, or, is it ongoing right now. How did things end? What was your disability rating, and who, ultimately, got to decide what your disability rating was?

I have been dealing with worker's comp since August of last year. I just had my first IME two weeks ago, and, surprisingly, the IME went against the insurance company's wants, wishes, and persuation to justify MMI. I am sure there will be more IME's to follow, but, I guess I dodged bullet number one in that sense. I am seeing, for the first time, an RSD/Pain Managment Specialist for the first time tomorrow.

Sorry if I was asking too many questions of you, but, you, having gone through the worker's comp process, you know, I am sure, just how complicated it truly is. GRRR.

I hope that you are doing better, and that worker's comp didn't get the best of ya and win the war. They surely aren't set up to support the injured worker (or so it surely seems).


Sara
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Old 01-27-2008, 09:02 PM #20
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My case is settled and done with! I was injured Feb 5,2003 and settled Aug 2004. It was better for me to take what I could at that time. There's no lifetime medical or anything like that in FL. It's just one lump sum payment. I think I might have kept going if there had been life med but since not, I decided to go. They were going to make me go to another doc and forbid that doc to mention rsd or treat me for it. I fully believe that they were going to close my case on me without any kind of payment. I was sick and tired of living in agony, and wanted to find my own doc, one who would care. I'm very happy I did find a caring doc and don't plan on giving him up anytime soon!

I have no clue if there was a disability rating of any kind. I never went to a doc or anything that rated me even. So, as far as I know there wasn't one.

An IME with his own opinion! LOL My IME doc twisted my legs into a pretzel put me in agony and then said I don't know what's wrong with you but you can't have rsd, then listed the most idiotic reasons why I didn't. All of it took 5 minutes before I was shown the door and left to ride 2 hours to get back home.

I hope he's a good doc, so wishing you lots of good luck on your appt tomorrow! I know how bad work comp can be for sure and I got the worst end of it at every turn! You can ask all the questions you want. Something to keep in mind though is though our shabby treatment is usually the same, the rules for wc are different for every state. Something I went through or didn't might be something you have to go through.

Hugs,

Karen
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